DR. IZABELLA WENTZ, PHARM D

Thyroid Pharmacist

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The Many Faces of Hashimoto's

The Many Faces of Hashimoto’s

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Do you swing back and forth from hypothyroidism to hyperthyroidism?

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People who are newly diagnosed with Hashimoto’s are often confused about the symptoms they are experiencing….

I know I was shocked to have been diagnosed with hypothyroidism and not hyperthyroidism.  I was thin, anxious, irritable and had heart palpitations in addition to feeling cold, forgetful and tired.

What I didn’t know at the time, is that 90-95% of cases of hypothyroidism are caused by Hashimoto’s, an autoimmune attack on the thyroid, and Hashimoto’s has a unique set of symptoms compared to non-autoimmune hypothyroidism.

People with Hashimoto’s may experience BOTH hypothyroid and hyperthyroid symptoms because as the thyroid cells are destroyed, stored hormones are released into the circulation causing a toxic level of thyroid hormone in the body, also known as thyrotoxicosis or Hashitoxicosis.  Eventually, the stored thyroid may become depleted and due to thyroid cell damage, the person is no longer able to produce enough hormones. At this time, hypothyroidism develops.

Hypothyroidism

Some of the more common symptoms of hypothyroidism, or deficiency of thyroid hormone, include slower metabolism leading to gaining weight, forgetfulness, feeling cold or cold intolerance, depression, fatigue, dry skin, constipation, loss of ambition, hair loss, muscle cramps, stiffness, joint pain, a loss of the outer third eyebrow, menstrual irregularities, infertility, weakness.

Hyperthyroidism

Hyperthyroidism or an overabundance of thyroid hormone has a stimulatory effect. Classical symptoms include weight loss, palpitations, anxiety, eye bulging, tremors, irritability, menstrual disturbances, fatigue, heat intolerance, and increased appetite. Patients may often have hair loss.

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Additional Hashimoto’s Symptoms

In addition to experiencing symptoms of hypo- and hyperthyroidism, most people with Hashimoto’s also experience a variety of other symptoms, especially gastrointestinal distress, such as Irritable Bowel Syndrome (IBS), Acid Reflux (GERD), diarrhea, constipation, bloating etc.

These symptoms were my first clue at making a connection between my autoimmune condition and the status of my intestinal health.  I soon came to learn that the intestines control the immune system! Thus, one key to restoring thyroid health lies in restoring the health of your intestines…

Read my other posts on Hashimoto’s below

PS. You can also download a free Thyroid Diet Guide, 10 Thyroid friendly recipes, and the Nutrient Depletions and Digestion chapter for free by going to my thyroid free gifts page. You will also receive occasional updates about new research, resources, giveaways and helpful information.

For future updates, make sure to follow us on Facebook!

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    • Hi, I had my Thyroid checked 7years ago and my TSH was very low 0.07 and my T3 and T4 were on the high side but I did’t do anything about it just thought it was a fluke thing cuz I never had issues with my Thyroid before. I am going to see an Endo in October just to get it checked. I do have a lot of both hypo/hyper symtoms. Should I be concerned???

      Reply

  2. Often the same underlying causes for one autoimmune condition will trigger another…
    Reply

    • Dr.wentz

      I have Hashimoto’s. I experience hyper and hypo constantly. My antibodies was a 900 and my T3 free Was a little high but everything else was normal my other antibodies I believe was the three which it was high also. Do you have any recommendations?

      Reply

      • Sharon – thank you for reaching out. Graves and Hashimoto’s are both autoimmune conditions that affect the thyroid. They are thought to be closely related. Sometimes one turns into the other. The difference is the site of the antibody attack. In Hashimoto’s, the antibodies are found to thyroglobulin (in 80%) and thyroid peroxidase (TPO) enzyme (in 95% of people)-Hashimoto’s results in hypothyroidism and is usually treated with Synthroid and replacement hormone.

        The same antibodies may be present in a smaller percentage of people who have Graves, but the main antibody is to the TSH Receptor (TSHR-Ab). Usually, people with Graves have hyperthyroidism, and they are treated conventionally with thyroid suppressing drugs (methimazole) or radioactive iodine to destroy the thyroid. At that point, the thyroid will no longer produce hormones on its own, and these people end up on Synthroid as well.

        Most thyroid conditions result from the immune system attacking the thyroid because the immune system is out of balance. Even when the thyroid is taken out surgically or treated with radioactive iodine the autoimmunity still persists in most cases. Many people will have their thyroids removed, and will develop new autoimmune disorders such as Lupus, Rheumatoid arthritis, etc. The immune system just finds a different target.

        We need to rebalance the immune system to prevent this (sometimes the autoimmunity can be reversed as well! The gut determines your immune system. With the exception of discussing proper thyroid medication dosing, the majority of my website and my book focuses on balancing the immune system. The info I present is based on my own research and journey for overcoming my autoimmune thyroid condition. Here are the links to my books:

        Hashimoto’s Root Cause
        http://amzn.to/2DoeC80

        Hashimoto’s Protocol
        http://amzn.to/2B5J1mq

        Reply

  3. My TSH was 3.6 & my PCP told me it was normal. I requested an increase of Synthroid. My dose went from 100mcg to 125mcg. After reading your posts and researching, I eliminated gluten. I was on my new Synthroid dose for 3 months and gluten free for 7 weeks when my TSH came back at 0.3. Do you think it’s a combination of the new dose and gluten free that caused it to drop so much? I was diagnosed with Hashimotos around 3 months with my TPO at 131.
    Reply

  4. I have most of these symptoms goiter, ibs, tired, palpatations, hairloss and I have also developed a rash that is spreading that has not been clearly diognosed… A cbc and a tsh test all turned out normal… any help? :-/
    Reply

    • Hi. I have been on synthroid for 17 yrs. Recently, we have discovered a growth on my thyroid. It is growing very quickly. I have had numerous biopsies with non-cancerous results. 2 weeks ago my doctor took me off synthroid because my thyroid is now making too much thyroid hormone. It is better to just have my thyroid and tumor removed? I asl because 12 yrs ago my husband had papilllay carcinoma and his entire thuroid was removed and he managed really well.

      Reply

      • Vanessa – thank you for following this page. Nodules and goiters are often the result of toxicity and/or the autoimmune process. So, doing interventions to reduce the autoimmune attack on the thyroid, and toxicity, can be helpful to reduce them. Most thyroid conditions result from the immune system attacking the thyroid because the immune system is out of balance. Even when the thyroid is taken out surgically, is ‘dead’, or treated with radioactive iodine the autoimmunity still persists in most cases. Many people will have their thyroids removed, and will develop new autoimmune disorders such as Lupus, Rheumatoid arthritis, etc. The immune system just finds a different target. We need to re-balance the immune system to prevent this (sometimes the autoimmunity can be reversed as well). The gut determines your immune system. With the exception of discussing proper thyroid medication dosing, the majority of my website and my book focuses on balancing the immune system. The info I present is based on my own research and journey for overcoming my autoimmune thyroid condition.

        Hashimoto’s Protocol
        thyroidpharmacist.com/protocol

        Hashimoto’s Root Cause
        http://www.amazon.com/gp/product/0615825796?ie=UTF8&camp=1789&creativeASIN=0615825796&linkCode=xm2&tag=thyroipharma-20

        Reply

  5. I was able to get rid of my rash by doing a Candita cleanse. I bought a kit with herbs in the Heath food store and followed their diet recommendation. Absolutely no sugar, alcohol, or fruit for a few weeks.
    It worked….never saw the rash again. What also worked for a mile was Dr Scholls athlete foot cream as it kills the fungus in the rash…..but the herbs and diet removed it permenantly.
    Reply

  6. I need a good Doctor in So. Cal that understands HOSHIMOTOS and deals with it
    PLEASE HELP!
    Reply

  7. Is there a connection to Fibromyalgia? Many symptoms are the same. I’m on 13 pills a day with little relief. Do dr. Usually test for any of B deficiencies? I already know I’m b12 deficient but it doesn’t seem to help much with injections.
    Reply

  8. i was told I had it too, started on meds didn’t like the way I felt,heard about hormone replacement therapy,systems are the same plus thyroid is a hormone,find a doc that does hormones replacement
    Reply

  9. I have Grave’s – hyperT, have similar symptoms along with weight gain. Was 3.0 and now my THS has come back 4.21 – dr hasn’t prescribed anything in 2 years. New bloodwork in Nov. confusing fluctuating between the 2. Any suggestions?
    Reply

    • Lynn- Graves and Hashimoto’s are both autoimmune conditions that affect the thyroid. They are thought to be closely related. Sometimes one turns into the other. The difference is the site of the antibody attack. In Hashimoto’s, the antibodies are found to thyroglobulin (in 80%) and thyroid peroxidase (TPO) enzyme (in 95% of people)-Hashimoto’s results in hypothyroidism and is usually treated with Synthroid and replacement hormone.

      The same antibodies may be present in a smaller percentage of people who have Graves, but the main antibody is to the TSH Receptor (TSHR-Ab). Usually people with Graves have hyperthyroidism and they are treated conventionally with thyroid suppressing drugs (methimazole) or radioactive iodine to destroy the thyroid. At that point, the thyroid will no longer produce hormones on its own and these people end up on Synthroid as well.

      Most thyroid conditions result from the immune system attacking the thyroid because the immune system is out of balance. Even when the thyroid is taken out surgically or treated with radioactive iodine the autoimmunity still persists in most cases. Many people will have their thyroids removed, and will develop new autoimmune disorders such as Lupus, Rheumatoid arthritis, etc. The immune system just finds a different target. We need to rebalance the immune system to prevent this (sometimes the autoimmunity can be reversed as well! The gut determines your immune system. With the exception of discussing proper thyroid medication dosing, the majority of my website and my book focuses on balancing the immune system. The info I present is based on my own research in journey for overcoming my autoimmune thyroid condition.

      http://www.amazon.com/gp/product/0615825796?ie=UTF8&camp=1789&creativeASIN=0615825796&linkCode=xm2&tag=thyroipharma-20

      Reply

  10. Hello, I had some hyper symptoms as well, really irritable and stressed, couldn’t sleep at night and then I would wake up feeling tired. So, i went to an endo and took some tests. At first i had really high levels of T4 and really low of tsh, then i took antiTPO and antiTG tests and was diagnosed with hashitoxicosis. My latest tests showed a very high tsh (38 when the range here is 0.3-3.0) while my T4 and T3 were whithin range, so my doc decreased my medication from 20mg methimazole to 5 mg daily. At that time I had started gaining weight. Although it’s been 2 months since then and the lower dose helped me stop gaining weight (i suppose), I still feel drowsy towards late evening sometimes and I’ve noticed hair loss more than usual (when brushing and washing my hair). I have to admit, sometimes I skipped my dose because I was feeling so under the weather, sluggish and bored, there were even times I wanted to cry for no apparent reason. I will be having another test in a few days.
    So, I have some questions. Is it right to treat hashitoxicosis as if it was regular hyperthyroidism, as far as medication is concerned? Do the same things apply concerning nutrition as in hashimoto hypo? Will changing my diet to the autoimmune protocol help save my thyroid before I go hypo? Also, I read that exposure to high tsh causes goiter, am i at risk or it had to be more than a couple months to cause me a problem? Should i always ask for a full check (including antibodies) or is it ok to check them once a year? Thank you for all the info!It will help my family understand a bit more about hashimoto’s and why I have these “inexplicable” mood changes.
    Reply

    • Sofia- Hashimoto’s is a complicated condition with many layers that need to be unraveled. While conventional medicine only looks at each body system as a separate category, and is only concerned with the thyroid’s ability to produce thyroid hormone, Hashimoto’s is more than just hypothyroidism. Thyroid tissue can regenerate, but the rate at which it does is not always predictable. Thus, some are able to stop the autoimmune attack on their thyroid and regain normal thyroid function. Others can reduce the dose of medications, and others will need to stay on the medications indefinitely. I’m currently working on some protocols to help with tissue regeneration.

      Reversing Hashimoto’s means different things to different people. For some, it means a reduction in symptoms and for others it means a reduction in your antibodies. I had both. Here a few articles that might be helpful for you 🙂

      IS IT POSSIBLE TO RECOVER THYROID FUNCTION IN HASHIMOTO’S
      https://thyroidphramacist.com/blog/is-it-possible-to-recover-thyroid-function-in-hashimotos

      REVERSING AUTOIMMUNITY? AND THE PERFECT STORM
      https://thyroidpharmacist.com/articles/reversing-autoimmunity-and-the-perfect-storm/

      Reply

  11. I had thyroid cancer in 1995. I since have RA and Sjogrens . I have been on synthroid all of these years . I wonder if since my body is anything but Normal, if my body converts T3 to T4 like it is supposed to? My Dr, does the same test as most Dr. , u know the same , one size fits all test.
    I have been over weight since my thyroid was removed , I feel like some of my systems of RA, SS and thyroid are all the same . I would love to have the T3 test done,my Dr. Will not do it
    Reply

    • Carol- Most thyroid conditions result from the immune system attacking the thyroid because the immune system is out of balance. Even when the thyroid is taken out surgically, is ‘dead’, or treated with radioactive iodine the autoimmunity still persists in most cases. Many people will have their thyroids removed, and will develop new autoimmune disorders such as Lupus, Rheumatoid arthritis, etc. The immune system just finds a different target. We need to re-balance the immune system to prevent this (sometimes the autoimmunity can be reversed as well). The gut determines your immune system. With the exception of discussing proper thyroid medication dosing, the majority of my website and my book focuses on balancing the immune system. The info I present is based on my own research and journey for overcoming my autoimmune thyroid condition.

      HASHIMOTO’S ROOT CAUSE BOOK
      http://www.amazon.com/gp/product/0615825796?ie=UTF8&camp=1789&creativeASIN=0615825796&linkCode=xm2&tag=thyroipharma-20

      Reply

  12. Hello. I have been diagnosed with Hypothyroidism but my blood levels are always in “normal range”. I have never been given meds for this due to the normal levels. I have bad hair loss, bridal nails, fatigue, tiredness, can’t sleep at night, dry flakey skin, forgetfulness. Also I have several nogules on my thyroid. I have not seen an Endo as of yet. I am really concerned with all these things going on not to mention my huge weight gain and I’m only 30.
    Reply

    • April- Most conventional physicians use the TSH test to determine if one has a thyroid disorder and to dose thyroid medications.

      However, this test can often times be misleading, as levels of circulating hormones may fluctuate at different times, such as in Hashimoto’s, the person affected may fluctuate between highs and lows.

      Additionally, when scientists first set the “normal” ranges of TSH for healthy individuals, they inadvertently included elderly patients and others with compromised thyroid function in the calculations leading to an overly lax reference range.

      This resulted in people with underactive thyroid hormones being told that their thyroid tests were “normal,” based on this skewed reference range.

      WHAT TO DO IF YOUR TSH IS NORMAL AND YOU ARE ANYTHING BUT
      https://thyroidphramacist.com/blog/what-to-do-if-your-tsh-is-normal-and-you-are-anything-but

      Here are the tests you need for diagnosis. Most endocrinologists don’t run them all so you will have to request them. Make sure to request a copy of your labs as well.

      TOP 6 THYROID TESTS FOR DIAGNOSIS
      https://thyroidphramacist.com/blog/top-6-thyroid-tests

      Reply

  14. I was diagnosed with Hashis in Aug and was put of 50 Levo. I felt so much better for the first few months but now it seems like my symptoms are returning. I follow a no gluten or dairy diet . I can feel my thyroid is enlarged and it hurts. It radiates pain to my head and down into my chest cavity. I have heart palpitations that make me feel lightheaded and like passing out. My energy level seems fine and my weight is stable. My labs are all in the bottom 1/3 of the range so the Dr. Says everything is fine. Is there anything I can do? I felt so much better but am now going backwards.
    Please help !
    Reply

  15. Dana: FIND ANOTHER DOCTOR! You need to find a doctor willing to treat SYMPTOMS not blood test NUMBERS. It won’t be easy believe me, but you HAVE to get The right dosage of medication. Do not take generic Synthroid!
    Reply

  16. Please take this question to a forum of great people who all have major experience with this its called thyroid UK health unlocked!!!! They have helped me through the initial diagnosis of this crappy disease and are always there with serious helpful information!!! Please come join us there and learn with me too!!
    Reply

  17. I have symptoms from both sides: weight, fatigue, anxiety, depression, heat sensitive, heart palpatations, hair and eybrows, dry skin, foggie brain, forgetful, sleep, nervous. I had lymes diseas when problem started. Lymes was diagnosed 29 yr. later.
    Reply

  18. i was diagnosed with Hashimoto’s in the mid 90’s and told it was common, no treatment needed, went on with my life, have had every kind of health problem you can think of, never thought any of it could be thyroid relate. In early 2014, was found that my thyroid was so enlarged that it was cutting off my airway, labs showed super high anti thyroid antibodies, once again Hashimoto’s?? I had to have TT in Nov. 2014. My question is do you still have Hashimoto’s with no thyroid? I won’t even go into the myriad of problems since surgery, the worst being, permanent hypoparathyroidism and unpredictable hypocalcemia. Shew, so if I still have Hashimoto’s, do I need additional treatment for that?
    Reply

    • Karen- Most thyroid conditions result from the immune system attacking the thyroid because the immune system is out of balance. Even when the thyroid is taken out surgically, is ‘dead’, or treated with radioactive iodine the autoimmunity still persists in most cases. Many people will have their thyroids removed, and will develop new autoimmune disorders such as Lupus, Rheumatoid arthritis, etc. The immune system just finds a different target. We need to re-balance the immune system to prevent this (sometimes the autoimmunity can be reversed as well). The gut determines your immune system. With the exception of discussing proper thyroid medication dosing, the majority of my website and my book focuses on balancing the immune system. The info I present is based on my own research and journey for overcoming my autoimmune thyroid condition.

      HASHIMOTO’S ROOT CAUSE BOOK
      http://www.amazon.com/gp/product/0615825796?ie=UTF8&camp=1789&creativeASIN=0615825796&linkCode=xm2&tag=thyroipharma-20

      Reply

  19. i was diagnosed with Hashimoto’s when I was 23. I had trouble swallowing even water and lost 6 lbs in one week so my dr. Diagnosed and had me tested. I took synthroid for about 1 year and my doctor took me off. I’m 46 now and I’ve had symptoms and nodules but when tested they say everything is normal. I’ve gained about 50 to 60 lbs since I was first diagnosed. Before diagnosis I was too thin. I’ve often wondered why he took me off the medication after one year. I wouldn’t think it would be cured.
    Reply

  20. i was told I had hoshimotos in 1984 after the birth of my son, in 1990 they gave me radioactive iodine injections… I’m still confused about what’s going on with me and this condition.. Now since I have no insurance I can’t get my synthroid, getting so tired, no energy at all.
    A little worried about this situation
    Reply

    • Rebecca- Most thyroid conditions result from the immune system attacking the thyroid because the immune system is out of balance. Even when the thyroid is taken out surgically, is ‘dead’, or treated with radioactive iodine the autoimmunity still persists in most cases. Many people will have their thyroids removed, and will develop new autoimmune disorders such as Lupus, Rheumatoid arthritis, etc. The immune system just finds a different target. We need to re-balance the immune system to prevent this (sometimes the autoimmunity can be reversed as well). The gut determines your immune system. With the exception of discussing proper thyroid medication dosing, the majority of my website and my book focuses on balancing the immune system. The info I present is based on my own research and journey for overcoming my autoimmune thyroid condition.

      HASHIMOTO’S ROOT CAUSE BOOK
      http://www.amazon.com/gp/product/0615825796?ie=UTF8&camp=1789&creativeASIN=0615825796&linkCode=xm2&tag=thyroipharma-20

      Reply

  21. i was diagnosed with hypo thyroid in 2008. I live in cheyenne Wy. What test do I request to find out if it’s Hashimoto’s?
    Reply

  22. I had read somewhere on your page about beer helping w/ symptoms & I cannot remember where I had seen it or exactly what it said. A beer or two works wonderfully for me & gives me my energy back. What is the correlation between the two ?
    Reply

  24. Switch to All Free and Clear detergent. Make sure you are not using too much detergent and double rinse the clothing, sheets and towels. Use Lubridern lotion, Aquaphor.
    Reply

  25. I’m the same way Brenda. I cry every time I read a post of symptoms. I have every hypo and hyper symptom listed including a thyroid module and fluctuate constantly between the 2. I have normal labs and have had so many doctors tell me I’m fine when I’m not.
    Reply

    • E- You may be interested in checking out the Root Cause Recipe Portal. It is full of autoimmune paleo and paleo recipes. You’re able to organize weekly shopping lists, meal planning, etc. Hope you check it out.

      http://rootcauserecipes.com/

      Reply

  30. You need to see a doctor who knows more about Hashimotos more than most (and those are very hard to find) ‘good luck and start looking now!!!
    Reply

  31. I’m the same way. I have every symptom and Im always told I’m fine by doctors. It’s getting so out of hand now that I worry how much more my body and soul can take of feeling so bad. I’ve spent a lot of time and money searching for a doctor who will listen to me and still on that trail. I pray daily that I will find answers and will certainly pray for you too.
    Reply

    • Amber- Most conventional physicians use the TSH test to determine if one has a thyroid disorder and to dose thyroid medications.

      However, this test can often times be misleading, as levels of circulating hormones may fluctuate at different times, such as in Hashimoto’s, the person affected may fluctuate between highs and lows.

      Additionally, when scientists first set the “normal” ranges of TSH for healthy individuals, they inadvertently included elderly patients and others with compromised thyroid function in the calculations leading to an overly lax reference range.

      This resulted in people with underactive thyroid hormones being told that their thyroid tests were “normal,” based on this skewed reference range.

      WHAT TO DO IF YOUR TSH IS NORMAL AND YOU ARE ANYTHING BUT
      https://thyroidphramacist.com/blog/what-to-do-if-your-tsh-is-normal-and-you-are-anything-but

      Here are the tests you need for diagnosis. Most endocrinologists don’t run them all so you will have to request them. Make sure to request a copy of your labs as well.

      TOP 6 THYROID TESTS FOR DIAGNOSIS
      https://thyroidphramacist.com/blog/top-6-thyroid-tests

      Reply

  34. When I finally went to the dr. my TSH level was 156. There was permanent nerve damage to my connective tissue. I know during truly stressful times my levels freak out. I am lucky to be alive, but continue to need help. Trying gluten free to help, just started so I’ll have to see how this goes. Any other suggestions are appreciated.
    Reply

  35. How do i know if i have Hashimotos?Hypo, thyroid removed 10 years ago,medication daily but still a lot of symptoms.
    Reply

    • Cheryl- Most thyroid conditions result from the immune system attacking the thyroid because the immune system is out of balance. Even when the thyroid is taken out surgically, is ‘dead’, or treated with radioactive iodine the autoimmunity still persists in most cases. Many people will have their thyroids removed, and will develop new autoimmune disorders such as Lupus, Rheumatoid arthritis, etc. The immune system just finds a different target. We need to re-balance the immune system to prevent this (sometimes the autoimmunity can be reversed as well). The gut determines your immune system. With the exception of discussing proper thyroid medication dosing, the majority of my website and my book focuses on balancing the immune system. The info I present is based on my own research and journey for overcoming my autoimmune thyroid condition.

      HASHIMOTO’S ROOT CAUSE BOOK
      http://www.amazon.com/gp/product/0615825796?ie=UTF8&camp=1789&creativeASIN=0615825796&linkCode=xm2&tag=thyroipharma-20

      Reply

  36. me too Cheryl and I have had Hashimotos for over 30 years and still looking up stuff because I may go back to A Natural thyroid supplement like Armour or Naturoid or something like that
    Reply

  37. You can order your own labwork at directlabs.com if your practitioner won’t do them
    Reply

  38. had thyroid removed about 35 years ago not on any meds but am losing hair, brittle nails, weight gain, joint pain, am 77 but feel weak out of breath a lot, there is about 6 cases of thyroid problems in fam,ily my mom also had hers removed, great grandma had large goiter also?
    Reply

    • Emily- Most thyroid conditions result from the immune system attacking the thyroid because the immune system is out of balance. Even when the thyroid is taken out surgically, is ‘dead’, or treated with radioactive iodine the autoimmunity still persists in most cases. Many people will have their thyroids removed, and will develop new autoimmune disorders such as Lupus, Rheumatoid arthritis, etc. The immune system just finds a different target. We need to re-balance the immune system to prevent this (sometimes the autoimmunity can be reversed as well). The gut determines your immune system. With the exception of discussing proper thyroid medication dosing, the majority of my website and my book focuses on balancing the immune system. The info I present is based on my own research and journey for overcoming my autoimmune thyroid condition.

      HASHIMOTO’S ROOT CAUSE BOOK
      http://www.amazon.com/gp/product/0615825796?ie=UTF8&camp=1789&creativeASIN=0615825796&linkCode=xm2&tag=thyroipharma-20

      Reply

  39. I have exhibited symptoms of hypothyroidism. Since Doc commenced me on Lithium in 1987. Please help me by saying another option I may undertake. Thank you Mary.
    Reply

  41. I have symptoms of both, tired, hair loss, weight gain, dry skin, brittle nails, sweating, and many more. Doctor says My hormones are all over the place,says I am peri menopause. I am 48 years old. Thyroid tested normal. Could I have Hashimotos? Or is it just hormonal?
    Reply

  42. My symptoms began 20 years ago, and I was diagnosed 14 years ago. For many years I fluctuated between hypo and hyper. Now, I experience symptoms of both all the time, with intermittent fluctuations of other symptoms. It is so easy to be frustrated and discouraged. Instead, I do the best I can to take care of my self, and live by the philosophy: “Every day is an adventure!”
    Reply

  43. I was just diagnosed with Hashi this summer. My TPO is 91… is this just a mild case or does it not matter the number just that I tested positive for the antibodies?
    Reply

  44. Hi I have been recently diagnosed with Hashmoto disease but probably have had it for more than 10 years. The thyroxin medication according to the Specialist was a quick fix as my TSH ,T3 and T4 quickly came into normal rang and now cured .My GP can now look after me. But the Specialist showed no interest in the autoimmune side. I at the time was producing huge amounts of phelgm from around the thyroid which was dripping in to my lungs, a hacking cough bringing up phelgm. I didn’t have a head cold or infected sinus. This condition neither improving after 2 courses of antibiotics. I was told to go back to the GP for treatment for this complaint. I am now wondering do other suffers of Hashmoto easily develop such infections which are not considered a part of Hashmotos disease?
    Reply

  45. Im sharing my strength and hope! The only way to address hashi, for me, it’s completely grain free. Mediterranean diet is great. Prep all food, eat very little out…. I feel great. But if I cheat, I get ill! Try it, it will give your life back. Ive been off everything over 3 years.
    Reply

  46. I was diagnosed with Hashimoto’s when I was 20 and have been on Synthroid since. I’m positive for antibodies and have two nodules. I also have been diagnosed with anxiety, depression, and ADHD and take medications to control everything. Lately I’ve noticed I can’t handle my alcohol intake, now at age 33, then I have in the past. I used to be able to drink 8 beers and be fine. Now, I have 4 beers and I blackout and have the worst hangover for 2 days. Is there a correlation between thyroid function levels and alcohol?

    Reply

  47. OH MY so I have gone from TSH from being 10.3 to 1.79 to my now 0.019. Seriously this yoyo ride has got to stop. SO now what. I see my doctor tomorrow. So tired of being this way. So very tried.

    Reply

  48. I have no thyroid, ever since my hysterectomy my body will not balance thyroid hormones. I’m either really or really high or really low just can not attain a balance which is driving me nuts emotionally and physically. We have tried gluten free diet and medication change and nothing has worked any advice would be greatly appreciate.

    Reply

    • Monica – thank you for following this page. My heart goes out to you. <3

      Most thyroid conditions result from the immune system attacking the thyroid because the immune system is out of balance. Even when the thyroid is taken out surgically, is ‘dead,' or treated with radioactive iodine the autoimmunity still persists in most cases. Many people will have their thyroids removed, and will develop new autoimmune disorders such as Lupus, Rheumatoid arthritis, etc. The immune system just finds a different target. We need to re-balance the immune system to prevent this (sometimes the autoimmunity can be reversed as well). The gut determines your immune system. With the exception of discussing proper thyroid medication dosing, the majority of my website and my book focuses on balancing the immune system. The info I present is based on my own research and journey for overcoming my autoimmune thyroid condition.

      Hashimoto’s Root Cause
      http://www.amazon.com/gp/product/0615825796?ie=UTF8&camp=1789&creativeASIN=0615825796&linkCode=xm2&tag=thyroipharma-20

      Hashimoto’s Protocol
      thyroidpharmacist.com/protocol

      IS HASHIMOTO’S A SURGICAL DISEASE
      https://thyroidpharmacist.com/articles/is-hashimotos-a-surgical-disease

      Reply

  49. so interesting that we can be both. I fit more signs of hyper but I’m far from the standard “thin” that most people think of as being hyper. As I learn more I almost want to throw up my hands and give up.

    Reply

    • Carol – thank you for following this page.

      Graves and Hashimoto’s are both autoimmune conditions that affect the thyroid. They are thought to be closely related. Sometimes one turns into the other. The difference is the site of the antibody attack. In Hashimoto’s, the antibodies are found to thyroglobulin (in 80%) and thyroid peroxidase (TPO) enzyme (in 95% of people)-Hashimoto’s results in hypothyroidism and is usually treated with Synthroid and replacement hormone.

      The same antibodies may be present in a smaller percentage of people who have Graves, but the main antibody is to the TSH Receptor (TSHR-Ab). Usually, people with Graves have hyperthyroidism, and they are treated conventionally with thyroid suppressing drugs (methimazole) or radioactive iodine to destroy the thyroid. At that point, the thyroid will no longer produce hormones on its own, and these people end up on Synthroid as well.

      Most thyroid conditions result from the immune system attacking the thyroid because the immune system is out of balance. Even when the thyroid is taken out surgically or treated with radioactive iodine the autoimmunity still persists in most cases. Many people will have their thyroids removed, and will develop new autoimmune disorders such as Lupus, Rheumatoid arthritis, etc. The immune system just finds a different target.

      We need to rebalance the immune system to prevent this (sometimes the autoimmunity can be reversed as well! The gut determines your immune system. With the exception of discussing proper thyroid medication dosing, the majority of my website and my book focuses on balancing the immune system. The info I present is based on my own research and journey for overcoming my autoimmune thyroid condition.

      Hashimoto’s Root Cause
      http://www.amazon.com/gp/product/0615825796?ie=UTF8&camp=1789&creativeASIN=0615825796&linkCode=xm2&tag=thyroipharma-20

      Hashimoto’s Protocol
      thyroidpharmacist.com/protocol

      Reply

  50. Dr Izabella I hope you can help. There is a lot of information coming and all very confusing. I seem to be a “medical mystery” but I can’t believe I am alone in this. When I initially went to an endo he ran all of the tests including uptake and another I can’t think of. TSH was non existent, free t4 2.84, free t3 7.9, TSI 370, TPO 55.5, Anti TG 188. I was diagnosed with Graves. Of course the Dr wanted to put me on meds to slow my thyroid but since I also had high anti-bodies for hashi, had symptoms of hyper and hypo, and I was in the process of watching your video series that didn’t sit with me. I went GF and started looking for an integrative DR. I did find one and they put me on LDN. This Dr took baseline blood work again and I was thrilled to see that my TSI was NORMAL just from being gf and even before taking the LDN. Other antibodies were still high so I started the LDN. After a month my antibodies, T4 and T4 are MUCH higher and TSH is still non-existent. t4 3.46, t3 8.7, TSI <89, TPO 262.1, Anti TG 616. I have symptoms of hyper (heart palps, heat intolerance) and hypo (constipation, weight gain, brittle hair and nails). I am at a loss of where to go for help now. The integrative dr said I am hyper but have hashi antibodies. I was surprised when I was told that they couldn't help me an that I need to go back to an endo. I don't understand why TSI is normal but everything else in elevated esp while taking LDN. Also don't understand how my thyroid is throwing out so many hormones yet have such high hashi anti-bodies. I am in the suburbs of Chicago and noticed a lot of you series was filmed here. Can you help me understand this and/or can you direct me to someone who can help?

    Thank you,
    Kim

    Reply

    • Kim – thank you for following this page. I’m sorry to hear that you are struggling! 🙁

      Graves and Hashimoto’s are both autoimmune conditions that affect the thyroid. They are thought to be closely related. Sometimes one turns into the other. The difference is the site of the antibody attack. In Hashimoto’s, the antibodies are found to thyroglobulin (in 80%) and thyroid peroxidase (TPO) enzyme (in 95% of people)-Hashimoto’s results in hypothyroidism and is usually treated with Synthroid and replacement hormone.

      The same antibodies may be present in a smaller percentage of people who have Graves, but the main antibody is to the TSH Receptor (TSHR-Ab). Usually, people with Graves have hyperthyroidism, and they are treated conventionally with thyroid suppressing drugs (methimazole) or radioactive iodine to destroy the thyroid. At that point, the thyroid will no longer produce hormones on its own, and these people end up on Synthroid as well.

      Most thyroid conditions result from the immune system attacking the thyroid because the immune system is out of balance. Even when the thyroid is taken out surgically or treated with radioactive iodine the autoimmunity still persists in most cases. Many people will have their thyroids removed, and will develop new autoimmune disorders such as Lupus, Rheumatoid arthritis, etc. The immune system just finds a different target.

      We need to rebalance the immune system to prevent this (sometimes the autoimmunity can be reversed as well! The gut determines your immune system. With the exception of discussing proper thyroid medication dosing, the majority of my website and my book focuses on balancing the immune system. The info I present is based on my own research and journey for overcoming my autoimmune thyroid condition.

      Hashimoto’s Root Cause
      http://www.amazon.com/gp/product/0615825796?ie=UTF8&camp=1789&creativeASIN=0615825796&linkCode=xm2&tag=thyroipharma-20

      Hashimoto’s Protocol
      thyroidpharmacist.com/protocol

      Reply

  51. Hi Dr Izabella
    I have been diagnosed hypotthyroid since 2009 and on thyroxine since then but have always had fluctuating but usually worsening TSH levels even as my dose has gradually increased over that time. Anti TPO results have come back clear though this has not been tested for a few years. Last year anti-thyroglobulin came back 252. The endo asked for this test. My doctor says it is not relevant and only TPO levels should be checked for Hashimotos. Could this result alone indicate hashimotos?

    Reply

  52. Hello and thank you for your expertise. I recently was tested with a TSH of 55-yes that is correct. With a thyroid underfunctioning to that degree I have gained no weight. Can anyone suggest why? I do fatigue very easily but no other hypo symptoms. My present med is a dessicated thyroid that I take sublingually so I would think most of the med is utilized in my body. Thanks

    Reply

    • Stan – thank you for following this page and my research. Most people with Hashimoto’s will experience weight gain, and so of course that’s what gets the most focus, but some people actually experience weight loss, or they can’t keep their weight on. This is especially problematic when a person has multiple food sensitivities and needs to adhere to an autoimmune diet that restricts foods.

      Most people will see a dramatic reduction in gut symptoms, brain symptoms, skin breakouts and pain by eliminating the foods they are sensitive to. Some will also see a significant reduction in thyroid antibodies! An additional subset of people will actually be able to get their Hashimoto’s into complete remission just by getting off the foods they react to, normalizing their thyroid antibodies, and some even normalizing their thyroid function!

      FOOD SENSITIVITIES AND HASHIMOTO’S
      https://thyroidpharmacist.com/articles/food-sensitivities-and-hashimotos

      WHAT’S CAUSING YOUR LEAKY GUT
      https://thyroidpharmacist.com/articles/whats-causing-your-leaky-gut

      Reply

  53. Dr. Wentz, when you say that Hashimoto’s can lead to weight loss and hyper-like symptoms because of the attack on the thyroid, would this excess of thyroid hormone be detected by blood test as a low TSH or is it possible to have those kind of symptoms with a high TSH?

    Reply

  54. I have had Hashimotos Disease for 20 years. I started taking Selenium, Vitamin D, B12, Fish Oil, and a multi vitamin about 4 months ago. I have been on Synthroid for 20 years with 125 mcg dose most of the time. I had blood work done inMarch and I was hyper. My doctor decreased my Synthroid to 112 mcg. I went back this week and i was still Hyper. She decreased my Synthroid again, now to 75 mcg. Whats goin on with me? Please help!

    Reply

    • Pamela – thank you for following this page. Graves and Hashimoto’s are both autoimmune conditions that affect the thyroid. They are thought to be closely related. Sometimes one turns into the other. The difference is the site of the antibody attack. In Hashimoto’s, the antibodies are found to thyroglobulin (in 80%) and thyroid peroxidase (TPO) enzyme (in 95% of people) – Hashimoto’s results in hypothyroidism and is usually treated with Synthroid and replacement hormone.

      The same antibodies may be present in a smaller percentage of people who have Graves, but the main antibody is to the TSH Receptor (TSHR-Ab). Usually people with Graves have hyperthyroidism and they are treated conventionally with thyroid suppressing drugs (methimazole) or radioactive iodine to destroy the thyroid. At that point, the thyroid will no longer produce hormones on its own and these people end up on Synthroid as well.

      Most thyroid conditions result from the immune system attacking the thyroid because the immune system is out of balance. Even when the thyroid is taken out surgically or treated with radioactive iodine, the autoimmunity still persists in most cases. Many people will have their thyroids removed, and will develop new autoimmune disorders such as Lupus, Rheumatoid arthritis, etc. The immune system just finds a different target. We need to rebalance the immune system to prevent this (sometimes the autoimmunity can be reversed as well). The gut determines your immune system. With the exception of discussing proper thyroid medication dosing, the majority of my website and my book focuses on balancing the immune system. The information I present is based on my own research, in my journey for overcoming my autoimmune thyroid condition.

      Hashimoto’s Protocol
      thyroidpharmacist.com/protocol

      Hashimoto’s Root Cause
      http://www.amazon.com/gp/product/0615825796?ie=UTF8&camp=1789&creativeASIN=0615825796&linkCode=xm2&tag=thyroipharma-20

      Reply

  55. Hello i am 19 years old Male, i just recently got diagnosed with hashimotos. When i started to feel crappy like in 2 to 3 days my whole right side of my body hurt i could not move my wrists or anything. than it just is not strictly on my right side of my body. i dont know how to explain it my right side of my body just feels different than my left. i also am experiencing termeros in my tremors hands is this normal? its mostly on my right side. im very scared.

    Reply

  56. Hello Dr Izabella,
    I have Hashimoto, I was hypothyroid and on NDT. Since a few weeks I have gone hyperthyroid for the first time, I have the classic symptoms like the heart palpitations, shaky, etc. My question is, do I lower my NDT until the hyperthyroid goes back to hypo? Or stay on the same dose I was until my body sorts itself out? I have been trying to find information online, but I can’t find any. I hope you can help.
    Best wishes from NZ, Maria.

    Reply

    • Maria – thank you for following this page. People with Hashimoto’s may experience BOTH hypothyroid and hyperthyroid symptoms because as the thyroid cells are destroyed, stored hormones are released into the circulation causing a toxic level of thyroid hormone in the body, also known as thyrotoxicosis or Hashitoxicosis. Eventually, the stored thyroid may become depleted and due to thyroid cell damage, the person is no longer able to produce enough hormones. At this time, hypothyroidism develops.
      I recommend that you refer back to your practitioner, who is familiar with your health history or that find a functional medicine clinician. It’s an entire medical specialty dedicated to finding and treating underlying causes and prevention of serious chronic disease rather than disease symptoms.

      FUNCTIONAL MEDICINE APPROACH TO THE THYROID
      https://thyroidpharmacist.com/articles/functional-medicine-approach-to-the-thyroid

      CLINICIAN DATABASE
      http://www.thyroidpharmacistconsulting.com/clinician-database.html

      FIND A FUNCTIONAL MEDICINE CLINICIAN
      https://ifm.org/find-a-practitioner/

      Reply

  57. Hi
    I was dx hypothyroid 16 years ago and placed on Levothyroxine. Never felt healthy in that time, always run down, poor work attendance etc. Since having my youngest whose nearly 3 now I’ve got progressively worse, at my worst I was literally bedridden. Now dx with Hashimotos and taking T3 but still feel ill. Any advice?
    Thanks

    Reply

  58. I have been battling with doctors for two+ years as my list of symptoms continue to grow…in short, each year brings new symptoms. I have family history of hypo, thyroid cancer, goiters, IBS, Gastroparesis, B-12 deficiency, etc. etc. I myself have a nodule. I am self-pay so all the doctors were resistant to what they deemed as unnecessary expensive tests (TPO &Thyroglobulin) until I recently insisted. Most notably is that part of my field of vision in my left eye has gone blurry and they told me I am a mystery cause there tests couldn’t figure it out. I am no where close to a hypochondriac, have enjoyed great health most of my life. But as I see myself start to develop more and more symptoms similar to so many family members before me and concern for my children to follow suite…I am desperately trying to figure this out. Please advise, help, direction would be so appreciated!!! thanks
    Cyndi

    Reply

  59. Do you treat hashimotos the same during a hyperthyroid phase as you do in hypothyroid phases? I just discovered I have hashimotos but I am having hyperthyroid symptoms so taking more thyroid hormone doesn’t make sense to me.

    Reply

    • Moriah – thank you for reaching out! Graves and Hashimoto’s are both autoimmune conditions that affect the thyroid. They are thought to be closely related. Sometimes one turns into the other. The difference is the site of the antibody attack. In Hashimoto’s, the antibodies are found to thyroglobulin (in 80%) and thyroid peroxidase (TPO) enzyme (in 95% of people)-Hashimoto’s results in hypothyroidism and is usually treated with Synthroid and replacement hormone.

      The same antibodies may be present in a smaller percentage of people who have Graves, but the main antibody is to the TSH Receptor (TSHR-Ab). Usually, people with Graves have hyperthyroidism, and they are treated conventionally with thyroid suppressing drugs (methimazole) or radioactive iodine to destroy the thyroid. At that point, the thyroid will no longer produce hormones on its own, and these people end up on Synthroid as well.

      Most thyroid conditions result from the immune system attacking the thyroid because the immune system is out of balance. Even when the thyroid is taken out surgically or treated with radioactive iodine the autoimmunity still persists in most cases. Many people will have their thyroids removed, and will develop new autoimmune disorders such as Lupus, Rheumatoid arthritis, etc. The immune system just finds a different target.

      We need to rebalance the immune system to prevent this (sometimes the autoimmunity can be reversed as well! The gut determines your immune system. With the exception of discussing proper thyroid medication dosing, the majority of my website and my book focuses on balancing the immune system. The info I present is based on my own research and journey for overcoming my autoimmune thyroid condition. Here are the links to my books:

      Hashimoto’s Root Cause
      http://www.amazon.com/gp/product/0615825796?ie=UTF8&camp=1789&creativeASIN=0615825796&linkCode=xm2&tag=thyroipharma-20

      Hashimoto’s Protocol
      thyroidpharmacist.com/protocol

      Reply

  60. I have Hyperthyroidism. I’m vegan and Gluten Free i do not take any animal food . I would like to folow your diet but can I replace animal protein with anything alse??

    Reply

    • Irina – thank you for reaching out. Recovering from adrenal fatigue and hypothyroidism when following a vegetarian diet is very challenging, as vegetarian diets are often carbohydrate heavy. Vegetarian sources of protein such as legumes (beans), dairy, grains, soy and some seeds may be incompatible with trying to heal a leaky gut, which is almost always present with Hashimoto’s. Pea protein is an alternative that may be easier to digest and is less likely to cause food sensitivities.

      I have created my own line of supplements, which also includes an Organic Pea Protein. Here’s the link: https://rootcology.com/collections/supplements/products/copy-of-purepaleo-protein-vanilla

      Eggs, some seeds, and nuts would be the preferred sources of protein for vegetarians. However, some people with Hashimoto’s may be intolerant to those as well, especially in the early stages of starting a healing diet. Being a vegan is even more challenging, and nuts and seeds would be the go-to source of protein, which are usually too difficult to digest for many in the beginning of their thyroid healing journeys.

      While vegan and vegetarian diets have been reported to be extremely helpful with autoimmune and chronic conditions, I have not been able to find reports of people recovering from Hashimoto’s by following a vegan diet. Even devout vegans who are nutritionally conscious still struggle with low body temperatures, hypothyroidism and Hashimoto’s.

      Additionally, many former vegans have reported improved symptoms of Hashimoto’s following transitioning to a Paleo diet. Based on this, I believe that animal proteins must play an important role in building back the health of people with Hashimoto’s. That said, while meats and fats are important for healing, eating them exclusively will produce an acidic environment in the body, hindering healing, and thus the diet should be balanced with plenty of nutrient rich vegetables (suggested ratio may be 20% meat/80% veggie).

      Additionally, vegan and raw vegan diets can be extremely helpful for cleansing and detoxifying, especially for those with persistent protein digestion issues. A vegan diet can be followed for a few days to a few weeks and may help the body detoxify. B12 and iron or ferritin supplements should be utilized at this time to prevent deficiency. Please know that I’m a big proponent of bio-individuality which honors the distinct nutritional needs of every human being. I’m not saying everybody needs to eat meat, but I am saying to listen to your body if it needs meat. Here are a few articles which might help:

      AUTOIMMUNE PALEO DIET
      https://thyroidpharmacist.com/articles/autoimmune-paleo-diet

      ELIMINATION DIET FOR HASHIMOTO’S
      https://thyroidpharmacist.com/articles/elimination-diet-for-hashimotos

      Reply

  61. I recently had my TSH level checked and my doctor said that I had such low amounts it was undetectable, which I now understand means hyperthyroidism. She’s not checking me for antigens and my t3 and t4 levels. She thinks it’s Hashimoto’s, but from everything I am reading Hashimoto’s causes hypothyroidism. Is that possible? I’m just not sure if it’s possible to have hyperthyroidism caused by Hashimoto’s. Can you clear this up for me? Thanks in advance.

    Reply

    • Holly – thank you for reaching out. Graves and Hashimoto’s are both autoimmune conditions that affect the thyroid. They are thought to be closely related. Sometimes one turns into the other. The difference is the site of the antibody attack. In Hashimoto’s, the antibodies are found to thyroglobulin (in 80%) and thyroid peroxidase (TPO) enzyme (in 95% of people)-Hashimoto’s results in hypothyroidism and is usually treated with Synthroid and replacement hormone.

      The same antibodies may be present in a smaller percentage of people who have Graves, but the main antibody is to the TSH Receptor (TSHR-Ab). Usually, people with Graves have hyperthyroidism, and they are treated conventionally with thyroid suppressing drugs (methimazole) or radioactive iodine to destroy the thyroid. At that point, the thyroid will no longer produce hormones on its own, and these people end up on Synthroid as well.

      Most thyroid conditions result from the immune system attacking the thyroid because the immune system is out of balance. Even when the thyroid is taken out surgically or treated with radioactive iodine the autoimmunity still persists in most cases. Many people will have their thyroids removed, and will develop new autoimmune disorders such as Lupus, Rheumatoid arthritis, etc. The immune system just finds a different target.

      We need to rebalance the immune system to prevent this (sometimes the autoimmunity can be reversed as well! The gut determines your immune system. With the exception of discussing proper thyroid medication dosing, the majority of my website and my book focuses on balancing the immune system. The info I present is based on my own research and journey for overcoming my autoimmune thyroid condition. Here are the links to my books:

      Hashimoto’s Root Cause
      https://www.amazon.com/gp/product/0615825796?ie=UTF8&camp=1789&creativeASIN=0615825796&linkCode=xm2&tag=thyroipharma-20

      Hashimoto’s Protocol
      thyroidpharmacist.com/protocol

      Reply

  62. My dad is the hospital. He has many conditions (MS, heart disease, thyroid and more)… he’s a mess. He has been on thyroid medicine for probably 20 years. I noticed that the hospitalist decided to check his TSH likely because he is in afib. The same hospitalist a few years ago did this and took my completely off her levothyroxine 100 mg because it came back low. The thing is she didn’t do any of the other thyroid tests. And because of my mom’s situation no one tested her thyroid for a year and no surprise the TSH was in the 8’s. By the way I have Hashimoto’s. My dad’s test came back as .15. I would love to know your thoughts and whether I should try to intervene. With the afib I can see where they are coming from but he is also currently on the medicine to lower the TSH so you would definitely so it should be low. Thank you! I am so glad that I found your information.

    Reply

  63. Hello ,
    I am 24 years old and just did my pharmacy master’s degree. Two years ago I started having health problems. It all started with swollen cervical lymph nodes which no doctor could explain. Three antibiotics after I became really sick and the nodes weren’t going away. I was constantly dizzy , had extreme fatigue , nausea and abdominal pain. Somehow I managed to get some tests and blood work. My antibodies were pretty high and I was diagnosed with Hashimoto’s . The problem was that TSH , T3 and T4 were all in the so called normal range. Doctors weren’t concerned because I was a young healthy 22 year old girl , tall and skinny. Than I was diagnosed with chronic gastritis and GERD and was told they cannot do anything else for me than prescribe me PPIs. For 2 years now I haven’t felt like myself for more than half a day. I still have all the symptoms , can’t eat properly because of leaky gut and constant abdominal pain , get dizzy and my brain doesn’t work as it used to. I just try to ignore my symptoms and go on with my life , but some days I feel like giving up.

    I recently read ‘Root cause’ and plan to try some of your recommendations. I read above that you also weren’t the typical hypothyroid case (with no weight gain) and this is my main concern. Is there a possibility to have all those syptoms with my hormones in the normal range and with being skinny as I am or do I have to look for some other cause?

    Thanks in advance. Sorry for the long post , but I hope sharing all the symptoms I have could help someone else in the same situation.

    Reply

    • Velina – thank you for sharing your journey. Most conventional physicians use the TSH test to determine if one has a thyroid disorder and to dose thyroid medications. However, this test can often times be misleading, as levels of circulating hormones may fluctuate at different times, such as in Hashimoto’s, where the person affected may fluctuate between highs and lows.

      Additionally, when scientists first set the “normal” ranges of TSH for healthy individuals, they inadvertently included elderly patients and others with compromised thyroid function in the calculations, leading to an overly lax reference range. This resulted in people with underactive thyroid hormones being told that their thyroid tests were “normal,” based on this skewed reference range.

      WHAT TO DO IF YOUR TSH IS NORMAL AND YOU ARE ANYTHING BUT
      https://thyroidpharmacist.com/articles/what-to-do-if-your-tsh-is-normal-and-you-are-anything-but/

      Here are the tests you need for diagnosis. Most endocrinologists don’t run them all so you will have to request them. Make sure to request a copy of your labs as well.
      TOP 10 THYROID TESTS AND HOW TO INTERPRET THEM
      https://thyroidpharmacist.com/articles/top-6-thyroid-tests/

      Reply

  64. I have hashimotos! It’s been a night mare. Dizziness all the time on and off. Right now my biggest problem is my heart. My heart rate is going as low as 30. The cardiologist I’m seeing has said he thinks it’s depression and tried me on an antidepressant, but after 5 days I quit it because it made me feel terrible! My endocrinologist says my thyroid wouldn’t cause my heart to slow down that much. I’m feeling like I’m at the end of my ropes with this! I have went gluten free multiple times and nothing has seemed to help me. My thyroid goes from not working to over working and it causes other major issues. My last tpo was over 2000. 😭 where do I go from here?

    Reply

    • Kay – thank you for following this page. Most thyroid conditions result from the immune system attacking the thyroid because the immune system is out of balance. Even when the thyroid is taken out surgically or treated with radioactive iodine the autoimmunity still persists in most cases. Many people will have their thyroids removed, and will develop new autoimmune disorders such as Lupus, Rheumatoid arthritis, etc. The immune system just finds a different target.

      We need to rebalance the immune system to prevent this (sometimes the autoimmunity can be reversed as well! The gut determines your immune system. With the exception of discussing proper thyroid medication dosing, the majority of my website and my book focuses on balancing the immune system. The info I present is based on my own research and journey for overcoming my autoimmune thyroid condition. Here are the links to my books:

      Hashimoto’s Root Cause
      http://amzn.to/2DoeC80

      Hashimoto’s Protocol
      http://amzn.to/2B5J1mq

      Reply

  65. Hi Izabella,
    I love your blog. It’s so helpful.
    I have Hashmotis and have lived with it for over 10 years.
    I usually manage variations in symptoms by getting blood tests and making minor changes in my throxine levels.
    I’m a Naturopath and use supplements and acknowledge the necessity to keep on top of gut function with diet and supplements. I have recently come through a stressful phase which has left me with different symptoms than I usually experience when I am out of balance.
    I’m thinking it may be a low level thyroid storm .
    I would really like your help. I have been experiencing brain fag, bad memory and recall, overheating, anxiety, insomnia both onset and offset . Bowels, skin, muscles have been ok, energy levels high. Unable to nap and rest. Pressure behind my eyes and in my face. The thing that has really bothered me is the lack of sleep. I take my thyroxine at night and one night I noticed a real increase in alertness soon after taking it and didn’t sleep till after 2pm that night, this has been the pattern. The next night I decided not to take it and slept like a baby. Took it again , awake. Stopped, slept well..
    blood tests are
    16/3/18
    TSH 3.5 (.04-4.0)
    T4 21(10-20)
    T3 (4-8)
    I do best when my TSH is 1-1.5
    So that’s hypo for me.
    Symptoms are hyper and I am just uncertain as to how long I can stop taking the thyroxine so I can sleep and also get my TSH
    back to where I work best. Any suggestions?

    Reply

    • Madhu – thank you for following this page. People with Hashimoto’s may experience BOTH hypothyroid and hyperthyroid symptoms because as the thyroid cells are destroyed, stored hormones are released into the circulation causing a toxic level of thyroid hormone in the body, also known as thyrotoxicosis or Hashitoxicosis. Eventually, the stored thyroid may become depleted and due to thyroid cell damage, the person is no longer able to produce enough hormones. At this time, hypothyroidism develops.
      THE MANY FACES OF HASHIMOTO’S
      https://thyroidpharmacist.com/articles/the-many-faces-of-hashimotos/

      Most thyroid conditions result from the immune system attacking the thyroid because the immune system is out of balance. Even when the thyroid is taken out surgically or treated with radioactive iodine the autoimmunity still persists in most cases. Many people will have their thyroids removed, and will develop new autoimmune disorders such as Lupus, Rheumatoid arthritis, etc. The immune system just finds a different target.

      We need to rebalance the immune system to prevent this. Sometimes the autoimmunity can be reversed as well! The gut determines your immune system. With the exception of discussing proper thyroid medication dosing, the majority of my website and my book focuses on balancing the immune system. The info I present is based on my own research and journey for overcoming my autoimmune thyroid condition. Here are the links to my books:

      Hashimoto’s Root Cause
      http://amzn.to/2DoeC80

      Hashimoto’s Protocol
      http://amzn.to/2B5J1mq

      Reply

  66. First, I can’t thank you enough for such a descriptive website with awesome content. Its surely a goldmine for people like me. I am writing a long post, hope you will read through it.
    I am from India (Bangalore). My case is weird since so many doctors and specialist couldn’t figure out the symptoms that are mentioned across this site and it moves back to 2011 where my TSH was a little high (5.x) and it was ignored (found in routine annual medical health check). Then, following years also showed an increased cholesterol level (high range) and again TSH was silently ignored. (6.X) Its like the general physician never cared about it and I being ignorant about TSH just moved on. Parallelly I started having frequent stomach upsets and I just took the prescribed medicines for the cure. Eventually the stomach issues enlarged and after Colonoscopy, endoscopy etc. doctors told me that I have IBS. They asked me stop Whey protein and other supplements which I regularly took as a part of my gym routine and prescribed some medicines (which never helped).
    It was during 2014 the IBS was at its peak, I was having severe bloating, diarrhea, acid reflux etc. and I started with a chest pain on the left side. Again, on my routine checkup I was told that I was having a pleural effusion. I went to the top doctors and most of them prescribed tuberculosis medicine without even running a diagnosis for TB. Finally, I went to a doc and asked him forcefully to run a series of tests on blood, sputum, drained liquid culture, skin test etc .and everything came back negative for tuberculosis. So, I never took TB medicine and eventually I cured myself by Ayurvedic medicines (which works for me 99% of the times). There were 2 doctors who were fair enough to go against the norms and tell me that, 1. It might be eosinophilic pleural effusion (eosinophil count = 4X in the culture and blood) 2. It’s happened because of the increased acid reflux while asleep, that it aspirated to lungs and caused an infection and finally, CT scan revealed a calcified granuloma of 1.3 mm in the left lung and the case was closed telling me go live with it!
    After this incident, my symptoms like, knee/back pain, brain fog, insomnia, fatigue, anxiety etc. increased a lot. I can’t keep count on how many specialists I visited and most of them told me that I am taking too much of stress and I need to consult a psychiatrist. Its at this point I lost it with the so-called doctors and started doing my own research. Ayurvedic medicines have always helped me bring TSH down. I have already taken supplements that you have mentioned like Selenium, Magnesium, CoQ 10 etc. on and off, during these years.
    I almost took control of my IBS by isolating many food items from my regular diet like Gluten for example and switching to A2 Milk and products, going Organic! (also following Ayurvedic detox methodology called Panchakarma). But I still suffer from diarrhea/constipation.
    I finally managed to argue with an endocrinologist and get Anti TPO test done last year. Till then every single one of them told me that being a Male its OK to have TSH at levels of 6-8 and never come back again till it crosses 10.
    My Anti TPO came at 800+ and the doctor prescribed me Thyroxine .25 mcg and didn’t say word more. I knew that this is the regular protocol and he won’t look beyond that.
    Here is a brief history if you are interested in chronological order:
    9/2010: T3: 1.03 ng/ml, T4: 6.95 ug/dl, TSH: 2.73
    12/2011: TSH: 5.29
    5/2012: T3: 0.80 ng/ml, T4: 6.07 ug/dl, TSH: 4.30
    2/2013: TSH: 4.0, IBS Starting stage
    2/2014: Pleural Effusion, Very High Eosinophils, Severe IBS
    4/2015: TSH: 6.4, FT4: 1.51
    2/2015: TSH: 7.75
    6/2015: TSH: 5.3
    12/2015: TSH: 4.99
    4/2017: TSH: 6.02
    11/2017: Anti TPO: 801, Prescribed Thyroxine .25mcg (didn’t start)
    2/2018: T3: 73 ng/dl, T4: 5.10 mg/dl, TSH: 4.02 (Normal)

    Others:
    ANA: Negative, Cholesterol: Always just on the higher side, Uric Acid: Normal, S.Cretainine: Normal, Colonoscopy: Normal, Endoscopy: LES LAX, H.Pylori (Not seen), Stool routine: Bacteria: +, Cysts: Ascaris L
    Blood pressure: Keeps varying Normal – High, CT Scan: Head/Neck: Normal, USG Neck: Normal, 3T MRI Whole Spine: Normal, USG Abdomen: Normal

    Currently I am facing joint pains, high fatigue, severe anxiety / insomnia/depression issues.
    Here are my questions and I really hope you will answer them:
    1. Do I need any more tests to drill down to the exact issue?
    2. Currently do I need to start with Thyroxine? Is this the reason for my anxiety?
    3. Should I continue with supplements like Selenium, Magnesium etc.?
    4. Should I continue taking Glutamine for healing leaky gut?
    5. Are there any more tests that I need for my GI issues?
    6. Dairy(A2 : Milk and Yogurt), Rice/pulses is something that is hard to exclude for me What’s your recommendation?

    Thanks and Regards

    Reply

  67. I have a history of hypothyroidism in my family and recently found out that my mother was diagnosed with Hashimoto’s (she apparently knew but didn’t tell me). I have many of the symptoms related to hypothyroidism as well as being diagnosed with fibromyalgia (I read the article you referenced and saw how the symptoms overlapped) and Joint Hypermobility Syndrome. The fatigue kills me and I’ve constantly had my TSH and FT4 tested. I recently had my TSH, TT4, and FT3 tested and all came back within the “normal” range. Here are my test results:
    TSH: 1.326 (0.300-3.00)
    TT4: 10.8 (4.5-12.0) I’m also on birth control
    FT3: 2.5 (2.3-4.4)
    In the past, my TSH has been as high as 2.87 and my FT4 has been as low as 0.90 (0.78-2.19).
    Is there anything specifically that I should bring up to my PCM? My numbers are within the accepted range, but they’re on the very low end.

    Reply

    • Heather – Thank you for following this page. Most people feel best with a TSH of around 1 or lower and with a Free T4 and Free T3 in the upper half of the range. It is expected that your TSH will be very suppressed when optimal on NDT medication. How much thyroid replacement therapy is needed is unique and different for each person, so it’s important to work with a functional medicine practitioner or a doctor, who can closely monitor your dosage and your progress.Every six weeks is usually a good schedule for testing your thyroid hormones. Here is a research article which might help further:

      TOP 10 THYROID TESTS FOR DIAGNOSIS
      https://thyroidpharmacist.com/articles/top-6-thyroid-tests/

      Reply

  68. I have hashimotos and I have heart palpitations whenever I exercise or get up suddenly. I noticed that my blood pressure goes from being slightly high to being normal again, which I don’t understand. I also have been having this weird issue with my left eye that has just gotten progressively worse ever since I was diagnosed. It protrudes more than the other eye, and I have a lot of pressure around it and headaches. Sometimes I’ll have pain in my upper teeth too. I thought maybe I had a sinus issue but I’ve been to several doctors about that and don’t have anything sinus related going on. Do you think these symptoms I’m having are related to hashimotos?

    Reply

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