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Do You Have Hypothyroidism, Hashimoto's or Both?

Do You Have Hypothyroidism or Hashimoto’s or Both?

Medically reviewed and written by Izabella Wentz, PharmD, FASCP

Dr. Izabella Wentz / March 21, 2015

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Did you know 95% of hypothyroid patients also have Hashimoto’s?

I often get messages from readers who say that they have hypothyroidism but not Hashimoto’s. However, often they have BOTH.

What is the difference between hypothyroidism and Hashimoto’s?

Hypothyroidism, by definition, is a clinical state. It is a state of low levels of thyroid hormone in the body.

The low levels of thyroid hormone can occur as a result of a variety of different reasons, such as iodine deficiency, surgical removal of the thyroid, excess use of thyroid suppressing medications, pituitary suppression, or damage to the thyroid (physical or disease induced).

Most cases of hypothyroidism in the United States, Canada, Europe, and in most countries that add iodine to their salt supply are caused by Hashimoto’s, an autoimmune condition. Depending on the source, estimates are that between 90-97% of those with hypothyroidism in the United States have Hashimoto’s.

Have you been diagnosed with hypothyroidism?

Unfortunately, many people think that if they had Hashimoto’s, their doctors would have certainly told them.

But that’s not usually the case. Many doctors simply don’t test their patients for Hashimoto’s. That’s because the conventional medical model treats autoimmune thyroid disorders in the same way as they would treat someone with a nutrient deficiency induced thyroid disorder, a congenital defect of the thyroid gland, someone who was born without a thyroid, or someone who had their thyroid removed or treated with radioactive iodine… with synthetic thyroid hormones.

I found a useful tool called Google Trends that allows you to looks at the search trends in Google searches for various topics.

Below you will find a chart showing searches in RED for HYPOTHYROIDISM and searches in BLUE for HASHIMOTO’S.  As you can see the number of searches for HYPOTHYROIDISM clearly surpasses those for HASHIMOTO’S.

Picture

These trends lead me to wonder if the people searching for hypothyroidism have ever been tested for Hashimoto’s…

After being diagnosed with hypothyroidism, many people are told that their “thyroid is sluggish” and that these things happen with age and often hear: “Just take this pill, you’ll be fine…”

But they’re not told that they have an autoimmune condition.

Thus, they never think to ask the question: “Why is my immune system attacking my thyroid?” Therefore, they never know to address the immune system imbalance and never get an opportunity to prevent or reverse the progression of the disease.

If you’ve been diagnosed with hypothyroidism, you should also be tested for Hashimoto’s.

Often, a person will be diagnosed with Hashimoto’s after already being diagnosed with hypothyroidism. Therefore, she will have both Hashimoto’s and hypothyroidism.

But it’s also possible to have Hashimoto’s and not yet have hypothyroidism.

Other times I’ll get messages from readers with lots of Hashimoto’s related symptoms who say they’ve repeatedly been tested for thyroid issues, but all of their tests have come out “fine.” That’s because they have never been given the specific tests for Hashimoto’s.

Studies have found that thyroid antibodies indicative of Hashimoto’s can be present for as long as a decade before the person develops impaired thyroid function. I suspect that they can be elevated for much longer, and it may take a person many decades to learn that he/she has hypothyroidism due to inadequate use of the TSH screening test.

Elevated thyroid antibodies have been connected with feelings of distress, anxiety, and depression in those with Hashimoto’s.

Also, the higher the antibodies, the more likely you are to experience symptoms of hyperthyroidism (when the thyroid cells are broken down, and stored hormone is dumped into the bloodstream), as well as hypothyroidism (when we don’t have enough thyroid hormone). Your TSH screening tests may still fall into the “normal range.” Thus, in the early stages of Hashimoto’s, the person may still be able to make enough thyroid hormone and will have “normal” thyroid function.

The higher the thyroid antibodies, the higher your likelihood of developing overt hypothyroidism and possibly additional autoimmune conditions.

Make sure to read here if you swing back and forth from hypothyroidism to hyperthyroidism.

You can read more about the TSH test in my post: What to do when your TSH is normal, and you are anything but…

The autoimmune attack on the thyroid develops decades before a person becomes hypothyroid. Catching the condition early allows us to prevent progression and needless suffering. The person may suffer from symptoms of Hashimoto’s for years before they are finally diagnosed with hypothyroidism and placed on medications.

Recently two women in my family were diagnosed with Hashimoto’s. I love and admire them both very much.  Both are in their sixties and struggled with symptoms like anxiety, fatigue, cold intolerance, weight fluctuations, and brain fog for many decades.

They are both very highly educated women (one has a doctorate, the other has a masters) and have been very health conscious as far back as I can remember, going to fitness classes, eating organic foods, and lecturing me on my liberal use of sugar in my younger days 🙂

Both of them have also been tested for thyroid problems by their doctors—repeatedly—and told that their thyroid function was “normal.” This is because their doctors did not run the correct tests, just an outdated “screening test.”

Both women requested the correct tests at my insistence, and sure enough, they both have Hashimoto’s. I’m glad that we finally have an answer to their mysterious symptoms, and we can now get them on the right path to healing so that we can prevent the progression of their conditions.

I am a proponent of not just using medications for hypothyroidism caused by Hashimoto’s but also of rebalancing the immune system to prevent further attack on the thyroid. You can read more in my post on various opportunities for interventions for Hashimoto’s and hypothyroidism.

Ideally, a person would get diagnosed with Hashimoto’s before she is diagnosed with hypothyroidism. That way she would know that she is at risk for hypothyroidism and would have an opportunity to identify the underlying reasons for her immune system’s attack on the thyroid.

So how do you diagnose Hashimoto’s?

Thyroid ultrasounds, as well as blood tests, are used to diagnose Hashimoto’s. (Looking for a practitioner who follows the root cause approach? Enter your email below for my free list of contacts!)

In most cases of Hashimoto’s thyroiditis, blood tests will reveal one or two types of anti-thyroid antibodies.

Thyroid peroxidase antibody (TPOAb) is the most common antibody present (in up to 95% of those with Hashimoto’s), and often antibodies against thyroglobulin (TGAb) are found as well (around 80%).

These antibodies may appear decades before a change in TSH is detected, thus allowing people to make an intervention before the thyroid gland gets damaged to a point where it will no longer be able to make enough thyroid hormone. While it’s possible to regenerate thyroid tissue, and some people can come off medications, (some do it faster than others, and I’m currently studying ways to accelerate thyroid tissue regeneration), it’s much easier to prevent the destruction of thyroid tissue than to regenerate it. An ounce of prevention is worth a pound of cure.

Thus, thyroid antibody screening is always crucial in suspected thyroid disease.

At-risk populations: Hashimoto’s runs in families and is 5-8 times more common in women. Therefore I would urge all of you with Hashimoto’s and/or hypothyroidism to encourage your daughters, sisters, mothers, aunts, and grandmothers to get tested, especially if they are in the age range of puberty, pregnancy, and perimenopause—the three most common times for thyroid hormone abnormalities to surface. Also, just because the condition is more common in women does not mean that men are not affected. I would urge you to have your male family members tested as well.

Top 6 Thyroid Tests

Here is a comprehensive list of the top 6 thyroid tests take to your doctor and can ask for tests for Hashimoto’s and hypothyroidism. Be sure to request a copy of your thyroid labs so that you can see them yourself and ensure that they are interpreted correctly.

  1. TSH (Thyroid Stimulating Hormone)
  2. Thyroid peroxidase antibodies (TPO Antibodies)
  3. Thyroglobulin Antibodies (TG Antibodies)
  4. Thyroid Ultrasound
  5. Free T3
  6. Free T4

Glossary

TSH – This is a pituitary hormone that responds to low/high amounts of circulating thyroid hormone. In advanced cases of Hashimoto’s and primary hypothyroidism, this lab test will be elevated, (read the post about interpreting the TSH test). In the case of Graves’ disease, the TSH will be low. People with Hashimoto’s and central hypothyroidism may have a normal reading on this test.

Thyroid peroxidase antibodies (TPO Antibodies) and Thyroglobulin Antibodies (TG Antibodies) – Most people with Hashimoto’s will have an elevation of one or both of these antibodies. These antibodies are often elevated for decades before a change in TSH is seen. People with Graves’ disease and thyroid cancer may also have an elevation in thyroid antibodies including TPO & TG, as well as TSH receptor antibodies.

Thyroid Ultrasound – A small percentage of people may have Hashimoto’s, but may not have thyroid antibodies detectable in the blood. Doing a thyroid ultrasound will help your physician determine a diagnosis.

Free T3 & Free T4 – These tests measure the levels of active thyroid hormone circulating in the body. When these levels are low, but your TSH tests in the normal range, this may lead your physician to suspect a rare type of hypothyroidism, known as central hypothyroidism.

If your doctor will not order these tests for you, you can pay out of pocket and order them yourself thought a company like Ulta Lab Tests.

PS. You can also download a free Thyroid Diet Guide, 10 Thyroid friendly recipes, and the Nutrient Depletions and Digestion chapter for free by signing up for my weekly newsletter. You will also receive occasional updates about new research, resources, giveaways and helpful information.

For future updates, make sure to follow us on Facebook!

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Filed Under: Autoimmune, Symptoms Tagged With: Antibodies, Books, Hypothyroidism, Root Cause, Tg Antibodies, TPO Antibodies, TSH, Ultrasound

Dr. Izabella Wentz

Dr. Izabella Wentz, PharmD, FASCP, is a clinical pharmacist, New York Times Bestselling Author, and a pioneering expert in lifestyle interventions for treating Hashimoto’s Thyroiditis.

She received a Doctor of Pharmacy degree from the Midwestern University Chicago College of Pharmacy at the age of 23, and has worked as a community pharmacist, a clinical consulting pharmacist, as well as a medication safety pharmacist. She is a Fellow of the American Society of Consultant Pharmacists and holds certifications in Medication Therapy Management and Advanced Diabetes Care.

Dr. Wentz has dedicated her career to addressing the root causes of autoimmune thyroid disease, after being diagnosed with Hashimoto’s Thyroiditis in 2009. As a patient advocate, researcher, clinician and educator, she is committed to raising awareness on how to overcome autoimmune thyroid disease.

Disclaimer: The information contained herein is for informational purposes only and should not be construed as medical advice. Please consult your physician for any health problems and before making any medical or lifestyle changes.

Lifestyle changes can result in improved thyroid function and/or an increased absorption of thyroid hormone medications, leading to a lower required dose and possible symptoms of hyperthyroidism at a dose that was previously stable. Please discuss lifestyle changes with your physician and ensure that your thyroid function is monitored every 6-8 weeks while making lifestyle changes. Symptoms of overmedication include, but are not limited to: rapid or irregular heartbeat, nervousness, irritability or mood swings, muscle weakness or tremors, diarrhea, menstrual irregularities, hair loss, weight loss, insomnia, chest pain, and excessive sweating. Do not start, change, increase, decrease or discontinue your medications without consulting with your physician.

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Reader Interactions

Comments

  1. Amber says

    November 20, 2014 at 8:03 PM

    Just wanted to let you know I am also in Michigan and on my 4th year since being diagnosed w/o any action from my doctor. I am pushing that my dr. do some research or refer me to a specialist at my appointment next week
    Reply
    • Dr. Izabella Wentz says

      December 4, 2016 at 2:57 PM

      Amber- I strongly encourage you to keep looking until you find a skilled practitioner who can help you with Hashimoto’s, they are out there. Here is an article I wrote about my challenges finding Dr. Right.

      MY RECENT CHALLENGES AND FINDING DR. RIGHT
      https://thyroidpharmacist.com/articles/my-challenges-and-finding-dr-right

      Reply
      • Jennifer says

        August 5, 2018 at 10:08 PM

        I’m being treated for hypothyroidism with brand synthroid and generic cytomel. I felt amazing at first and now I feel awful. I’ve had my antibodies checked and they were only at a 10. A few years later they haven’t really changed, now an 11. The range is under 30 for normal with this lab. My thyroid levels are the best they’ve ever been, exempt just TSH is 1.3 and I don’t remember the others but they were very good. I’ve had my iron, D, b12 checked etc and nothing is exceptionally low. I take vitamin d (with fat) and iron (with vit c – empty stomach) to boost my levels a little. I still don’t feel great. Oddly my 24 hour urine was really high for iodine which is so weird. I don’t take Iodine supplements or consume excessive in my diet. I don’t get it. Doc is retesting. Also doing a hormone saliva test. Nothing indicates hashimotos. I feel like there’s nothing out there for people like me. It’s all about hashimotos.

        Reply
        • Dr. Izabella says

          August 6, 2018 at 3:52 PM

          Jennifer – thank you for reaching out and sharing your journey. I understand how frustrating this can be. Most thyroid conditions result from the immune system attacking the thyroid because the immune system is out of balance. Even when the thyroid is taken out surgically or treated with radioactive iodine the autoimmunity still persists in most cases. Many people will have their thyroids removed, and will develop new autoimmune disorders such as Lupus, Rheumatoid arthritis, etc. The immune system just finds a different target.

          We need to rebalance the immune system to prevent this. Sometimes the autoimmunity can be reversed as well! The gut determines your immune system. With the exception of discussing proper thyroid medication dosing, the majority of my website and my book focuses on balancing the immune system. The info I present is based on my own research and journey for overcoming my autoimmune thyroid condition. Here are the links to my books:

          Hashimoto’s Root Cause
          http://amzn.to/2DoeC80

          Hashimoto’s Protocol
          http://amzn.to/2B5J1mq

          Reply
      • Mary Ann says

        August 30, 2019 at 6:35 AM

        Every doctor I have gone to says there is nothing they can do about the Hashimoto’s. Every single one! They say they can only treat my Hypothyroidism. I have gone from Hypo to Hyper a few times over the course years. I have tried both natural and synthetic drugs.

        Reply
        • Dr. Izabella Wentz says

          September 2, 2019 at 2:41 PM

          Mary Ann – thank you for reaching out and sharing your journey. I am so sorry you are struggling. I understand how hard it is to find a practitioner. <3 There are many measures you can take to reclaim your health, even without the help of a good doctor. Have you read my book, Hashimoto’s The Root Cause? Here’s the link in case you’re interested.

          Hashimoto's Root Cause
          http://amzn.to/2DoeC80

          Hashimoto’s Protocol
          The Hashimoto’s Protocol book is a step by step in depth-plan that streamlines the most effective interventions.
          http://amzn.to/2B5J1mq

          E-Book on Optimizing Medications
          https://thyroidpharmacist.com/checkout/?product_id=4702

          Reply
    • Bonnie Zadeyan says

      April 13, 2018 at 12:46 PM

      So glad I came across this article! My son has Hashimoto’s and we keep a close eye on his thyroid panel. Your article mentions one possible scenario where the TSH is normal but the fT4 and fT3 are low. Well in my son’s case, his TSH is on the high side but his fT4 and fT3 are normal. What do you make of this? I don’t believe these results suggest is is hypo.

      Reply
      • Aleata says

        June 16, 2018 at 12:08 AM

        From my understanding on what my doctor explained to me is that the TSH will be high because your thyroid is unable to turn it into T3 and T4 hence the hypo part.

        Reply
  2. JoAnne says

    November 21, 2014 at 6:31 AM

    I have an ultrasound every year and every year the size of my nodules increases. I’ve managed to “manage” most of my Hashi symptoms with dietary changes ( due to MANY food sensitivities) and supplements. I’ve been to 3 different Drs. who insisted the TSH was good enough so I went out on my own and ordered tests online. I gave up on Drs. due to lack of insurance and ignorance. So far I’m holding steady….but am concerned about the nodules.
    Reply
    • Dr. Izabella Wentz says

      December 4, 2016 at 2:58 PM

      JoAnne- I highly recommend that you work with a functional medicine clinician. It’s a whole medical specialty dedicated to finding and treating underlying causes and prevention of serious chronic disease rather than disease symptoms.

      FUNCTIONAL MEDICINE APPROACH TO THE THYROID
      https://thyroidpharmacist.com/articles/functional-medicine-approach-to-the-thyroid

      CLINICIAN DATABASE
      http://www.thyroidpharmacistconsulting.com/clinician-database.html

      FIND A FUNCTIONAL MEDICINE CLINICIAN
      https://www.functionalmedicine.org/practitioner_search.aspx?id=117

      Reply
  3. Pat Ronk says

    February 11, 2015 at 2:57 AM

    How do you order your own lab tests online?
    Reply
    • Dr. Izabella Wentz says

      December 4, 2016 at 2:59 PM

      Pat- I’ve negotiated better pricing with Direct labs for the Facebook group Hashimoto’s 411. You will get them here cheaper than going through most other places. If you would like to order your own labs, you can use the link below.

      DIRECT LABS AND HASHIMOTO’S
      https://www.directlabs.com/thyroidrx/OrderTests/tabid/29159/language/en-US/Default.aspx

      Also, much of the information required to get your health back is covered in my book, Hashimoto’s: The Root Cause. You might be interested in checking it out.
      http://www.amazon.com/gp/product/0615825796?ie=UTF8&camp=1789&creativeASIN=0615825796&linkCode=xm2&tag=thyroipharma-20

      Reply
  4. Paula says

    February 11, 2015 at 6:26 PM

    Has it been determined whether the nodules are “hot” or ” cold” ? This distinction is very important treatment wise.
    Reply
  5. Barbara Burque says

    February 12, 2015 at 3:03 PM

    I was diagnosed with hypothyroidism 7 years after my Daughter was diagnosed,, 8 years ago I became an insomniac, lost 30 pounds had palpitations with a heart rate of 140 and took myself off of thyroid medications. I have seen 4 endo. MD’s and I have 4 tumors in my thyoid with No anawers. My tsh is the same as when i WAS ON ENDO MEDICATION.
    Reply
    • Dr. Izabella Wentz says

      December 4, 2016 at 3:06 PM

      Barbara- Did you know that if you live in the United States, the UK, Australia, Europe and most developed countries that add iodine to the salt supply and take thyroid medications, there’s a higher probability that you do have Hashimoto’s?

      Depending on the source, estimates are that between 90-95% of those with hypothyroidism have Hashimoto’s.

      But most doctors will never tell people that they have Hashimoto’s, or that their own immune system is attacking their thyroid. People are told that their “thyroid is sluggish”, and that these things happen with age and “Just take this pill, you’ll be fine.” Hashimoto’s is a complicated condition with many layers that need to be unraveled. While conventional medicine only looks at each body system as a separate category, and is only concerned with the thyroid’s ability to produce thyroid hormone, Hashimoto’s is more than just hypothyroidism. I wanted to pass along these articles that I wrote. I hope they help 🙂

      WHERE DO I START WITH HASHIMOTO’S
      https://thyroidpharmacist.com/articles/where-do-i-start-with-hashimotos/

      OVERCOMING HASHIMOTO’S
      https://thyroidpharmacist.com/articles/overcoming-hashimotos-in-the-new-year/

      Reply
  6. Apri l says

    February 14, 2015 at 8:25 PM

    What you need to do is to let your doctor know that they are basically your employee and they are being paid so you want to be treated. Endocrinologists are the type of doctor you should be seeing. Then the next step is to try to find an Endocrine doctor that specializes in conditions of the Thyroid because most Endo docs are into Diabetes (which by the way can happen to you when you have a thyroid that is untreated). I feel your pain when it comes to doctors because I have had to change in the middle of having a flair my TSH went from a 1.46 to a 4.89 in the span of 3 months. The thing with Hashimoto’s is that even though you are taking the medications you can still be symptomatic, have flairs, etc. It is something that you have to address the whole body. Which if you are super jacked up, with fatigue and brain fog is very challenging. I am often to tired to cook food for myself when I get home from work . I am also struggling with chronic nausea which no one seems to have answers for…..but I digress. You have to have the right doctor for this disease because so many are clueless about the nature of the beast. I put on a lot of weigh trying to get my thyroid treated (I was telling my doctors I had a thyroid problem and they kept telling me no you don’t) 7 yrs later even after being diagnosed and living life on a roller coaster (feeling good, feeling horrible, feeling bad, feeling GREAT, feeling like I am going to die etc., <<
    Reply
  7. Dr. Izabella says

    November 23, 2014 at 6:43 PM

    Jill- I’d say at least once a year if you’re stable. Otherwise, I’d recommend doing more frequent testing if you’re still having symptoms. You can test as often as every 4-6 weeks after a med dose adjustment. Hope that helps
    Reply
  8. donna says

    February 11, 2015 at 2:59 AM

    I spoke to my endo’s Nurse Practitioner this week, and she said that once antibodies are tested, they are never tested again. I have been diagnosed, so there is no reason to test again. I “argued” that knowing the levels can dictate gut health, and if I am on the right track in making corrections to my overall health . She responded that as long as my TSH levels are in range, I am being treated properly. I have a good relationship with my PCP, so I will be asking him for the script to get the antibodies tested again. I was assuming all these years that the antibodies were being tested. We know what “assume” means.
    Reply
    • Dr. Izabella Wentz says

      December 4, 2016 at 3:07 PM

      Donna- I know how frustrating it can be. I strongly encourage you to keep looking until you find a skilled practitioner who can help you with Hashimoto’s, they are out there. Here is an article I wrote about my challenges finding Dr. Right.

      MY RECENT CHALLENGES AND FINDING DR. RIGHT
      https://thyroidpharmacist.com/articles/my-challenges-and-finding-dr-right

      Reply
  9. Jennifer says

    February 11, 2015 at 8:19 PM

    Dr Fabello-Gamiao in Livonia is great!
    Reply
    • Dr. Izabella Wentz says

      December 4, 2016 at 3:08 PM

      Jennifer- Thank you so much for sharing! Thyroid tissue can regenerate, but the rate at which it does is not always predictable. Thus, some are able to stop the autoimmune attack on their thyroid and regain normal thyroid function. Others can reduce the dose of medications, and others will need to stay on the medications indefinitely. I’m currently working on some protocols to help with tissue regeneration.

      Reversing Hashimoto’s means different things to different people. For some, it means a reduction in symptoms and for others it means a reduction in your antibodies. I had both. Here a few articles that might be helpful for you 🙂

      IS IT POSSIBLE TO RECOVER THYROID FUNCTION IN HASHIMOTO’S
      https://thyroidpharmacist.com/articles/is-it-possible-to-recover-thyroid-function-in-hashimotos

      REVERSING AUTOIMMUNITY? AND THE PERFECT STORM
      https://thyroidpharmacist.com/articles/reversing-autoimmunity-and-the-perfect-storm/

      Reply
  10. Jo says

    November 20, 2014 at 2:11 AM

    i have taken Synthroid for 30 years for hypothyroidism. In the past 10 years I’ve suffered from iron deficiency anemia and a heart attack from a torn artery in my heart. In May I had a seizure several months after my dr lowered my Synthroid dosage from .150 to .112 because he said I “seemed” anxious (did no blood tests). I believe this caused my seizure. Now an endo I’m seeing has told me I have Hashimotos (my dr had said two weeks before the seizure that my antibodies were attacking my thyroid – this was after I insisted on him testing antibodies). I’m now taking an anti-seizure drug and feel it’s wreaking havoc with my thyroid and possibly B12. Just can’t come back from this seizure as I did the anemia and heart attack. I’m so scared I have Hashimotos encephalopathy which I happened to stumble on in my research. Seeing endo tomorrow but don’t know if she’ll take that fear seriously. Drs often perceive thyroid sufferers as hypochondriacs I think. I’m very worried I’m never going to feel well again
    Reply
  11. Dr. Izabella says

    November 23, 2014 at 6:44 PM

    Jo- I’m sorry to hear about everything you’re going though. I hope that this page will help you and that you get the answers you’re looking for from your doc. If not, don’t be afraid to get a second opinion. I’m a fan of functional medicine doctors.
    Reply
  12. Shelley O. says

    February 11, 2015 at 4:35 PM

    thank goodness you keep yourself well-informed. Don’t let what you are reading physically manifest itself. The power of the brain is “unparalleled” so get test results and a doctor who you have a good repore with. Keep your mind & body calm. Thinking of you. 😉
    Reply
    • Dr. Izabella Wentz says

      December 4, 2016 at 3:10 PM

      Shelley- Do you have Hashimoto’s or a thyroid condition?

      Hashimoto’s is a complicated condition with many layers that need to be unraveled. While conventional medicine only looks at each body system as a separate category, and is only concerned with the thyroid’s ability to produce thyroid hormone, Hashimoto’s is more than just hypothyroidism. I wanted to pass along these articles that I wrote. I hope they help 🙂

      WHERE DO I START WITH HASHIMOTO’S
      https://thyroidpharmacist.com/articles/where-do-i-start-with-hashimotos/

      OVERCOMING HASHIMOTO’S
      https://thyroidpharmacist.com/articles/overcoming-hashimotos-in-the-new-year/

      Reply
  13. Kim says

    February 13, 2015 at 8:37 PM

    My daughter was diagnosed with Hashimoto’s Encephalopathy 10 months ago. She is 9 years old. This has been and continues to be the absolute worst time of our lives! She was hospitalized for 107 days and has suffered through so many seizures, (5 of those were status, of which she had to be intubated) She spent 57 days in day rehab and is home now but continues outpatient therapy. Steroid therapy did not work for her, plasmapheresis did not work for her, but she did seem to improve after several rounds of Rituxamab infusions as well as a couple of Cytoxan infusions (chemotherapy).
    From what we were told, it is very rare for children to develop Hashimoto’s Encephalopathy. I’m not sure what the future holds for her and that is a very frightening notion.
    Reply
    • Dr. Izabella Wentz says

      December 4, 2016 at 3:12 PM

      Kim- I am so sorry to hear that. Thank you so much for sharing. I look forward to hearing her progress on this page.

      Reply
  14. April Briqueleur says

    February 14, 2015 at 8:35 PM

    That is another thing that drives me crazy, have anxiety, and heart palpitations is thyroid related and just because you are being treated that doesn’t mean that they stop, I am also in menopause and that along with the Hashi’s/thyroid issue is enough to make a person run naked down the street screaming–rubber room material. I feel so bad for you Jo because I know what you are saying. I also want to say I want to send lost of positive energy your way. I often feel as you do and have no had a heart attach or seizures. There are just so many more bad days then there are good ones. Take care and I hope that you do find many more wells days between the bad ones.
    Reply
    • Dr. Izabella Wentz says

      December 4, 2016 at 3:14 PM

      April- Thank you so much for having such a positive attitude! Anxiety symptoms are very common in people with thyroid disorders.

      HASHIMOTO’S AND ANXIETY
      https://thyroidpharmacist.com/articles/hashimotos-and-anxiety

      AUTOIMMUNE THYROID DISEASE AND ANXIETY
      https://thyroidpharmacist.com/articles/autoimmune-thyroid-disease-and-anxiety

      ARE YOU GOING CRAZY OR IS IT JUST YOUR THYROID
      https://thyroidpharmacist.com/articles/are-you-going-crazy-or-is-it-just-your-thyroid

      Reply
  15. Nicole says

    March 22, 2015 at 7:01 PM

    I hate not being taken seriously.. sry we all go thru this life altering disease
    Reply
    • Dr. Izabella Wentz says

      December 4, 2016 at 3:15 PM

      Nicole- When I was first diagnosed with Hashimoto’s, I felt so alone. My doctor didn’t think it was a big deal, and none of my friends or co-workers had it. It wasn’t until I started to research online that I found others who were going through the same thing.

      A couple of years after my diagnosis, I found Hashimoto’s 411, a closed Facebook group run by Alice Berry McDonnell. This group is amazing! It is comprised of an army of highly motivated, smart, supportive women and men (now 45,000+ strong), and each of them sharing ideas of what worked for them, things they were planning to try, and offering support to one another. The comfort I received from knowing that there were others going through the same challenges as I, was enormous.

      https://www.facebook.com/groups/hashimotos411/

      Ask questions. Post your thoughts. Scan the files. It is an absolutely amazing resource. Best of all it’s kept private from spammers.

      Reply
  16. Marlene Duke says

    November 20, 2014 at 5:46 AM

    I asked my doctor to test me for hypothyroidism and he gave me the tenth degree. Wanted to know why I wanted the test. I am 44, overweight and can’t get the weight off. I also have just about every symptom there is for it. Finally he ordered the test. I did not like him much. The test came out “fine”. But now I won’t go back and get tested for Hashimoto’s from him anyway.
    Reply
  17. Dr. Izabella says

    November 23, 2014 at 6:46 PM

    Sorry to hear that Marlene- you deserve better. I’m glad that you’ve chosen to seek out a practitioner that will be more understanding.
    Reply
  18. Jessica says

    February 12, 2015 at 6:54 AM

    Marlene, I too got attitude when I asked for a thyroid test. I KNEW I had it and the dr wanted to convince me it was blood sugar and depression… I strongly told him I wanted a thyroid blood test. What do you know.. I’m hypo. It amazes me how ignorant and rude some drs can be!
    Reply
    • Dr. Izabella Wentz says

      December 4, 2016 at 3:16 PM

      Jessica- I am so sorry to hear that. I strongly encourage you to keep looking until you find a skilled practitioner who can help you with Hashimoto’s, they are out there. Here is an article I wrote about my challenges finding Dr. Right.

      MY RECENT CHALLENGES AND FINDING DR. RIGHT
      https://thyroidpharmacist.com/articles/my-challenges-and-finding-dr-right

      Reply
  19. April Briqueleur says

    February 14, 2015 at 8:43 PM

    Jessica, FIRE your doctor and write him a letter telling him why. I have had that experience as well and while it is horrible trying to find a doctor when you are feeling good, trying to find one when you are in the throws of a flare is daunting. Doctors need to be reminded that they are indeed working for the patient. They are not your GOD, your father, or your dictator. FInd a Endo Dr. who specializes in Thyroid, or when you are scheduling for a new doctor ask the question on the phone…..what does this doctor know about thyroid conditions, and autoimmune disorders. If you have one autoimmune disorder you have many, Good luck to you I can totally relate to the drs evil eye, and what even more maddening is that who knows your body better then you.
    Reply
  20. Rhonda says

    February 16, 2015 at 10:46 PM

    You have the right to copies of any bloodwork or test results you have done. I get copies of everything and keep a folder. I have Hashimoto’s and hypothyroidism, I also have Lupus and Fibromyalgia, when autoimmune diseases start it seems they run right over us!!!
    Reply
    • Dr. Izabella Wentz says

      December 4, 2016 at 3:18 PM

      Rhonda- Thank you so much for sharing. You may find this article interesting! 🙂

      PAIN HASHIMOTOS AND FIBROMYALGIA…
      https://thyroidpharmacist.com/articles/pain-hashimotos-and-fibromyalgia/

      Reply
  21. Sherry says

    November 20, 2014 at 6:03 AM

    My daughter was just diagnosed with Hashimoto’s after I was. Her thyroid is 4.5 and her doctor said that she’s fine and sent her home. I’m having a hard time worth this. Shouldn’t she be doing something so she doesn’t end up like me?
    Reply
  22. Dr. Izabella says

    November 23, 2014 at 6:49 PM

    Hi Sherry- Sorry to hear about your daughter’s diagnosis. Unfortunately that’s the mainstream medical approach. I’m hoping to raise awareness about the other things you can do to prevent the condition from progressing, and sometimes reversing it. Here’s a post that may help: https://thyroidpharmacist.com/articles/are-you-doing-everything-for-your-thyroid-but-not-yet-well – I also have a patient guide about Hashimoto’s that has a lot more info/
    Reply
  23. Nicole says

    March 22, 2015 at 7:09 PM

    Your an amazing person who amazes me with the amount of care u have for ppl like me with this life altering disease of hashis
    Reply
  24. Bea says

    November 20, 2014 at 4:20 PM

    Can a person who had RAI for hyperthyroidism develop Hashimotos?
    Reply
  25. Dr. Izabella says

    November 23, 2014 at 6:46 PM

    Hi Bea- Most thyroid conditions result from the immune system attacking the thyroid because the immune system is out of balance. Even when the thyroid is taken out surgically or treated with radioactive iodine the autoimmunity still persists in most cases. Many people will have their thyroids removed, and will develop new autoimmune disorders such as Lupus, Rheumatoid arthritis, etc. The immune system just finds a different target 🙁 We need to rebalance the immune system to prevent this (sometimes the autoimmunity can be reversed as well! The gut determines your immune system. With the exception of discussing proper thyroid medication dosing, the majority of my website and my book focuses on balancing the immune system. The info I present is based on my own research in journey for overcoming my autoimmune thyroid condition. Here’s the info on the book http://www.thyroidpharmacist.com/book. Hope it helps!
    Reply
  26. sherrie says

    March 23, 2015 at 3:43 AM

    Ok I had a ultrasound and biopsy done last week was told that it showed no signs of hashimoto have a lymph node that was biopsied which had signs of it was fighting off an infections them started being questioned about auto immune disorders. Such as lupus RA etc.
    I am still as clueless as I was prior to my tests. I am exhausted no energy. Just need help
    Reply
    • Dr. Izabella Wentz says

      December 4, 2016 at 3:19 PM

      Sherrie- Fatigue was the most debilitating symptom I experienced with Hashimoto’s. It actually started 8 years before I was finally diagnosed in 2009, after I got Mono (Epstein-Barr Virus) in college. I needed to sleep for 12 hours each night to be able to function, and by “function” I mean after hitting the snooze button on my alarm clock for two hours (ask my poor husband), I would drag myself out of bed and then had to drink 4-6 cups of caffeine everyday to keep myself awake. I often had Red Bull and Pepsi for breakfast, and was the epitome of “wired but tired”. I hope my articles help you get started 🙂

      OVERCOMING THYROID FATIGUE
      https://thyroidpharmacist.com/articles/top-10-tips-for-overcoming-hashimotos-fatigue

      THIAMINE AND THYROID FATIGUE
      https://thyroidpharmacist.com/articles/thiamine-and-thyroid-fatigue

      Reply
  27. Darlene says

    November 20, 2014 at 4:53 PM

    I was told my daughter was going to get hashis also after an u.s. but never was told to do anything to postpone or prevent or heal the thyroid?????
    Reply
  28. Dr. Izabella says

    November 23, 2014 at 6:47 PM

    Darlene, unfortunately that’s the mainstream approach. I’m hoping to change that as you can prevent the damage, sometimes reverse it as well. Here’s one of my other posts, hope it helps: https://thyroidpharmacist.com/articles/are-you-doing-everything-for-your-thyroid-but-not-yet-well
    Reply
  29. Nita says

    November 20, 2014 at 5:25 PM

    I have an awesome Dr. He diagnosed me on my second visit with him after blood work and urin test on first visit. This was two weeks later ,3 yrs. ago. He stays on top of my blood work every month. I too had never heard of Hashimoto disease.
    Reply
    • Dr. Izabella Wentz says

      December 4, 2016 at 3:19 PM

      Nita- Thyroid tissue can regenerate, but the rate at which it does is not always predictable. Thus, some are able to stop the autoimmune attack on their thyroid and regain normal thyroid function. Others can reduce the dose of medications, and others will need to stay on the medications indefinitely. I’m currently working on some protocols to help with tissue regeneration.

      Reversing Hashimoto’s means different things to different people. For some, it means a reduction in symptoms and for others it means a reduction in your antibodies. I had both. Here a few articles that might be helpful for you 🙂

      IS IT POSSIBLE TO RECOVER THYROID FUNCTION IN HASHIMOTO’S
      https://thyroidpharmacist.com/articles/is-it-possible-to-recover-thyroid-function-in-hashimotos

      REVERSING AUTOIMMUNITY? AND THE PERFECT STORM
      https://thyroidpharmacist.com/articles/reversing-autoimmunity-and-the-perfect-storm/

      Reply
  30. sandra says

    November 20, 2014 at 7:26 PM

    I have Hashimoto and 6 yrs ago waw diagnosed with sev err e R.A. and Lupus. I have been taking steroids methotrexate as well as infusions to stop the attack. I am no better than when I started. Now I am 100.lbs overweight and can’t lose a pound. They have never done anything besides L tyroxine for my hashsmotos. Can you help?
    Reply
    • Dr. Izabella Wentz says

      December 4, 2016 at 3:20 PM

      Sandra- When it comes to weight gain these are a couple of things to think about.

      1) What was your recent TSH, Free T3 and Free T4? Sometimes when those numbers are on the outskirts of normal, your metabolic rate may still be impaired making it more difficult for you to burn calories. Most people report feeling well with a TSH between 0.5-2.

      2) What type of medication are you on? Some report more weight loss with T4/T3 combinations (Armour, Nature-Throid, compounded medications) versus T4 medications (Synthroid, Levoxyl, Tirosint) alone. T4 is a precursor to T3, but some individuals do not convert T4 to T3 properly, and the T3 component is the metabolically active one.

      3) What type of diet are you eating? Some report more weight loss with T4/T3 combination vs T4 alone. Some do not convert T4 properly.The Standard American Diet (S.A.D.) full of sugar and simple carbohydrates is perfectly designed to cause us to gain weight year after year. Even yogurts that are marketed as “healthy” contain the equivalent of 16 teaspoons of sugar. Divorcing the S.A.D. is often a step that many of us must take to not just lose weight, but to also feel better. Some diets that have been helpful include the Body Ecology Diet, the Paleo Diet, the Virgin Diet, Autoimmune Paleo Diet, GAPS diet, SCD diet, Weston A. Price Diet, or the Mediterranean Diet. You may need to modify these diets to your own individuality.

      BEST DIET FOR HASHIMOTO’S AND HYPOTHYROIDISM
      https://thyroidpharmacist.com/articles/best-diet-for-hashimotos-hypothyroidism

      HOW TO LOSE WEIGHT WITH HASHIMOTO’S AND HYPOTHYROIDISM
      https://thyroidpharmacist.com/articles/how-to-lose-weight-with-hashimotos

      Reply
  31. Cheryl Ratcliff says

    February 11, 2015 at 4:10 PM

    Sandra, Google leaky gut and auto immune disorders. Steroids, which i was on for 5 years, feed the Candida which is the source of the leaky gut. A good Probiotic, which you can order from my website, is key to healing the leaky gut, inflammation and resolving your issues with the auto immune disorders.
    Reply
  32. dora says

    November 20, 2014 at 9:35 PM

    I had thyroid cancer and hasimotos both in 2005 and I wonder if after thyroidectomy and radioactive iodine if the hashimoto goes away or will I always have it ?
    Reply
    • Dr. Izabella Wentz says

      December 4, 2016 at 3:21 PM

      Dora- Most thyroid conditions result from the immune system attacking the thyroid because the immune system is out of balance. Even when the thyroid is taken out surgically, is ‘dead’, or treated with radioactive iodine the autoimmunity still persists in most cases. Many people will have their thyroids removed, and will develop new autoimmune disorders such as Lupus, Rheumatoid arthritis, etc. The immune system just finds a different target. We need to re-balance the immune system to prevent this (sometimes the autoimmunity can be reversed as well). The gut determines your immune system. With the exception of discussing proper thyroid medication dosing, the majority of my website and my book focuses on balancing the immune system. The info I present is based on my own research and journey for overcoming my autoimmune thyroid condition.

      HASHIMOTO’S ROOT CAUSE BOOK
      http://www.amazon.com/gp/product/0615825796?ie=UTF8&camp=1789&creativeASIN=0615825796&linkCode=xm2&tag=thyroipharma-20

      Reply
  33. Kim Coggins says

    November 20, 2014 at 10:08 PM

    I am so thankful for the information you put out for all of us! I would have been one of those people who claim to just have hypothyroidism if it had not been for a great doctor who made me go see an endocrinologist where I was properly diagnosed with hashimoto’s. He also made sure I knew it was genetic and that my kids should be tested. Armed with that information, my daughter was empowered to make sure she had the right testing done when her tsh number was normal. She was quickly diagnosed with Hashimoto’s when they did the correct tests and is being treated based on how she is feeling along with her numbers. I will definitely be sharing this article with family members who are symptomatic but won’t listen to what I say.
    Reply
    • Dr. Izabella Wentz says

      December 6, 2016 at 12:06 PM

      Kim- Thank you so much for sharing! I think it is great that you and your family have empowered themselves to take there health back! I look forward to hearing more of your progress on this page! Here is an article you may find interesting as well! 🙂

      REVERSING AUTOIMMUNITY? AND THE PERFECT STORM
      https://thyroidpharmacist.com/articles/reversing-autoimmunity-and-the-perfect-storm/

      Reply
  34. Diana Swan says

    November 20, 2014 at 11:16 PM

    A few months after turning 40,I was diagnosed with Hashimoto`s.I have been on several variations of synthroid,levothyroxine,etc.The reason I mentioned the age was most doctors just dismissed my weight gains,insomnia,high strung nervousness as pre-menopause.My dosage has recently been lowered to 75 because of palpitations.but the weight will NOT come off!
    Reply
    • Dr. Izabella Wentz says

      December 6, 2016 at 12:09 PM

      Diana- When it comes to weight gain these are a couple of things to think about.

      1) What was your recent TSH, Free T3 and Free T4? Sometimes when those numbers are on the outskirts of normal, your metabolic rate may still be impaired making it more difficult for you to burn calories. Most people report feeling well with a TSH between 0.5-2.

      2) What type of medication are you on? Some report more weight loss with T4/T3 combinations (Armour, Nature-Throid, compounded medications) versus T4 medications (Synthroid, Levoxyl, Tirosint) alone. T4 is a precursor to T3, but some individuals do not convert T4 to T3 properly, and the T3 component is the metabolically active one.

      3) What type of diet are you eating? Some report more weight loss with T4/T3 combination vs T4 alone. Some do not convert T4 properly.The Standard American Diet (S.A.D.) full of sugar and simple carbohydrates is perfectly designed to cause us to gain weight year after year. Even yogurts that are marketed as “healthy” contain the equivalent of 16 teaspoons of sugar. Divorcing the S.A.D. is often a step that many of us must take to not just lose weight, but to also feel better. Some diets that have been helpful include the Body Ecology Diet, the Paleo Diet, the Virgin Diet, Autoimmune Paleo Diet, GAPS diet, SCD diet, Weston A. Price Diet, or the Mediterranean Diet. You may need to modify these diets to your own individuality.

      BEST DIET FOR HASHIMOTO’S AND HYPOTHYROIDISM
      https://thyroidpharmacist.com/articles/best-diet-for-hashimotos-hypothyroidism

      HOW TO LOSE WEIGHT WITH HASHIMOTO’S AND HYPOTHYROIDISM
      https://thyroidpharmacist.com/articles/how-to-lose-weight-with-hashimotos

      Reply
  35. dee Williams says

    November 21, 2014 at 5:11 AM

    i have been takeing levothroxine 25mcg tab after 3year i have quit taking the pill so what do i need to no
    Reply
    • Dr. Izabella Wentz says

      December 6, 2016 at 12:11 PM

      Dee- Thyroid tissue can regenerate, but the rate at which it does is not always predictable. Thus, some are able to stop the autoimmune attack on their thyroid and regain normal thyroid function. Others can reduce the dose of medications, and others will need to stay on the medications indefinitely. I’m currently working on some protocols to help with tissue regeneration.

      Reversing Hashimoto’s means different things to different people. For some, it means a reduction in symptoms and for others it means a reduction in your antibodies. I had both. Here a few articles that might be helpful for you 🙂

      IS IT POSSIBLE TO RECOVER THYROID FUNCTION IN HASHIMOTO’S
      https://thyroidpharmacist.com/articles/is-it-possible-to-recover-thyroid-function-in-hashimotos

      REVERSING AUTOIMMUNITY? AND THE PERFECT STORM
      https://thyroidpharmacist.com/articles/reversing-autoimmunity-and-the-perfect-storm/

      HASHIMOTO’S SELF CARE, GETTING AND STAYING IN REMISSION
      https://thyroidpharmacist.com/articles/hashimotos-self-care

      Reply
  36. Roberta says

    November 21, 2014 at 5:45 PM

    My thyroid is getting better, thank you Dr Wentz, you are so right, Drs will tell you differently, saying it is genetics, anything to tell us very dangerous, my so who is incarcerated, had his removed, with cancer on his thyroid,and it make’s me very sad, because I know there is a cure.
    Reply
    • Dr. Izabella Wentz says

      December 6, 2016 at 12:14 PM

      Roberta- Here is some information you may find interesting.

      Three things MUST be present in order for autoimmunity to occur…

      1. Genetic predisposition
      2. Environmental triggers
      3. Intestinal permeability (leaky gut)

      Developing autoimmunity is like a three-legged stool, all of these factors must be present for autoimmunity to occur! When you remove one of these, you can prevent or stop autoimmune disease. While we can’t change genes, if we know the trigger, we can remove it and we can heal the gut.

      REVERSING AUTOIMMUNITY AND THE PERFECT STORM
      https://thyroidpharmacist.com/articles/reversing-autoimmunity-and-the-perfect-storm/

      IS HASHIMOTO’S HYPOTHYROIDISM GENETIC
      https://thyroidpharmacist.com/articles/is-hashimotos-genetic

      Reply
  37. Sheridan says

    November 22, 2014 at 11:52 AM

    I was diagnosed with Hashimoto’s about 2 months before I had my thyroid removed. I was diagnosed with hypothyroidism 21years ago at age of 6. I had a wreck 1.5yrs ago and during scans nodules were discovered on my thyroid. That’s when I was referred to specialists(2). Then they suggested having my thyroid removed. I’m curious now if that was even necessary. I’m also a gastric bypass patient(2012).
    Reply
    • Dr. Izabella Wentz says

      December 6, 2016 at 12:19 PM

      Sheridan- Most thyroid conditions result from the immune system attacking the thyroid because the immune system is out of balance. Even when the thyroid is taken out surgically, is ‘dead’, or treated with radioactive iodine the autoimmunity still persists in most cases. Many people will have their thyroids removed, and will develop new autoimmune disorders such as Lupus, Rheumatoid arthritis, etc. The immune system just finds a different target. We need to re-balance the immune system to prevent this (sometimes the autoimmunity can be reversed as well). The gut determines your immune system. With the exception of discussing proper thyroid medication dosing, the majority of my website and my book focuses on balancing the immune system. The info I present is based on my own research and journey for overcoming my autoimmune thyroid condition.

      HASHIMOTO’S ROOT CAUSE BOOK
      http://www.amazon.com/gp/product/0615825796?ie=UTF8&camp=1789&creativeASIN=0615825796&linkCode=xm2&tag=thyroipharma-20

      Reply
  38. carey says

    February 13, 2015 at 6:37 AM

    I have been on levothroxin for about 5 years now and have done the gastric bypass in 2004. I was having ear problems and seen a ENT doc and he felt my thyroid and he said it was enlarged, he ask me if I had a hard time swallowing and breathing I said I did but I thought I was actually coming down with a cold because it starts in with my throat then goes to my chest he no its not a cold did a ct scan and stated its wrapping around my trachea. Had surgery it was a baseball size. But he told me that I have hasitomas which I never heard of and I have every symptom of that for a long time. I put weight back on and hard to lose. I’m wondering if having the gastric bypass created all of this. Your story sounds too much like mine
    Reply
    • Dr. Izabella Wentz says

      December 6, 2016 at 12:22 PM

      Carey- When it comes to weight gain these are a couple of things to think about.

      1) What was your recent TSH, Free T3 and Free T4? Sometimes when those numbers are on the outskirts of normal, your metabolic rate may still be impaired making it more difficult for you to burn calories. Most people report feeling well with a TSH between 0.5-2.

      2) What type of medication are you on? Some report more weight loss with T4/T3 combinations (Armour, Nature-Throid, compounded medications) versus T4 medications (Synthroid, Levoxyl, Tirosint) alone. T4 is a precursor to T3, but some individuals do not convert T4 to T3 properly, and the T3 component is the metabolically active one.

      3) What type of diet are you eating? Some report more weight loss with T4/T3 combination vs T4 alone. Some do not convert T4 properly.The Standard American Diet (S.A.D.) full of sugar and simple carbohydrates is perfectly designed to cause us to gain weight year after year. Even yogurts that are marketed as “healthy” contain the equivalent of 16 teaspoons of sugar. Divorcing the S.A.D. is often a step that many of us must take to not just lose weight, but to also feel better. Some diets that have been helpful include the Body Ecology Diet, the Paleo Diet, the Virgin Diet, Autoimmune Paleo Diet, GAPS diet, SCD diet, Weston A. Price Diet, or the Mediterranean Diet. You may need to modify these diets to your own individuality.

      BEST DIET FOR HASHIMOTO’S AND HYPOTHYROIDISM
      https://thyroidpharmacist.com/articles/best-diet-for-hashimotos-hypothyroidism

      HOW TO LOSE WEIGHT WITH HASHIMOTO’S AND HYPOTHYROIDISM
      https://thyroidpharmacist.com/articles/how-to-lose-weight-with-hashimotos

      Reply
  39. Francisca Sanchez Caro says

    November 26, 2014 at 12:21 PM

    Is it 1.200 of antiboidies anti-peroxidasa very high?
    Reply
    • Dr. Izabella Wentz says

      December 6, 2016 at 12:23 PM

      Francisca- I’m afraid I can’t comment on your lab results due to liability. I can tell you that while reference ranges of what’s “normal” may vary depending on the lab that produces the test reports, most thyroid patients feel best with a TSH between 0.5-2, and with Free T3 and Free T4 in the top half of the reference range. 🙂

      Reply
  40. Joanna says

    November 26, 2014 at 6:03 PM

    I don’t know if I have Hashimoto’s. I don’t appear to have those symptyoms, but I have been diagnosed with hypothyroidism. My doctor put me on Armour, but I am having a lot of hair loss and I asked my doctor to do a Thyroid panel. He did all but the ultrasound. He says everything was normal, but the T3 Uptake was 27.5% and the normal range is 27.8 -40.7. I am upset and he dismisses it because it is close to the range. Doesn’t that tell me that I do not have active thyroid hormone? If that’s the case, why is my T4, Total 7.2, right in the middle of the range and TSH is 1.21, good level. All antibodies were less than 1 IU/mL. Not only am I afraid, I don’t know where to go and what else to do!!! I can’t imagine what would happen if I went off of the Armour. Should I be concerned with the T3 Uptake? Also, the doctor has me on Bioidentical hormones. I am 62, 115 lbs. and feel wonderful, but my hair is really going fast. PLEASE ADVISE. Are there any other tests I should be doing? Thanks and frustrated!!
    Reply
    • Dr. Izabella Wentz says

      December 6, 2016 at 12:25 PM

      Joanna- Did you know that if you live in the United States, the UK, Australia, Europe and most developed countries that add iodine to the salt supply and take thyroid medications, there’s a higher probability that you do have Hashimoto’s?

      Depending on the source, estimates are that between 90-95% of those with hypothyroidism have Hashimoto’s.

      But most doctors will never tell people that they have Hashimoto’s, or that their own immune system is attacking their thyroid. People are told that their “thyroid is sluggish”, and that these things happen with age and “Just take this pill, you’ll be fine.” Hashimoto’s is a complicated condition with many layers that need to be unraveled. While conventional medicine only looks at each body system as a separate category, and is only concerned with the thyroid’s ability to produce thyroid hormone, Hashimoto’s is more than just hypothyroidism. I wanted to pass along these articles that I wrote. I hope they help 🙂

      WHERE DO I START WITH HASHIMOTO’S
      https://thyroidpharmacist.com/articles/where-do-i-start-with-hashimotos/

      OVERCOMING HASHIMOTO’S
      https://thyroidpharmacist.com/articles/overcoming-hashimotos-in-the-new-year/

      Reply
  41. Liz says

    February 11, 2015 at 8:06 PM

    You might me anemic, have your ferritin levels checked and start taking evening primrose.
    Reply
    • Dr. Izabella Wentz says

      December 6, 2016 at 12:26 PM

      Liz- Do you have Hashimoto’s or a thyroid condition?

      Hashimoto’s is a complicated condition with many layers that need to be unraveled. While conventional medicine only looks at each body system as a separate category, and is only concerned with the thyroid’s ability to produce thyroid hormone, Hashimoto’s is more than just hypothyroidism. I wanted to pass along these articles that I wrote. I hope they help 🙂

      WHERE DO I START WITH HASHIMOTO’S
      https://thyroidpharmacist.com/articles/where-do-i-start-with-hashimotos/

      OVERCOMING HASHIMOTO’S
      https://thyroidpharmacist.com/articles/overcoming-hashimotos-in-the-new-year/

      Reply
  42. april says

    February 14, 2015 at 8:51 PM

    T3 is the aspect that effects your brain. Is Armour a generic? I have found that the generic are not really good to take as they have inconstant dosage. The medication that is for T3 is called Cytomel. you could always ask for a little of this and check your numbers again.
    Reply
  43. Lisa says

    April 26, 2015 at 9:09 PM

    have them check your Ferritin level. The range of normal is wide but if you are in the lower part of the range the Derm I work for suggests taking Ferrous Sulfate 325mg three times daily.
    Reply
  44. Liz Ann says

    December 8, 2014 at 4:14 AM

    I was told I had Hashimoto’s 18 years ago and have been on levothroid or synthroid since then. Recently my dr. upped my dose to 100 mcg (TSH was 5) and I suffered terrible arrhythmia, heart and back pain and heart pounding. We reduced it to .88… no relief… .75 no relief. So I went a few days without synthroid and felt so much better. Now TSH is at 85 but TPO Ab is 31, T3 1.7 and T4 .69. I don’t want to go back on synthroid and feel so lousy. Suggestions?
    Reply
    • Dr. Izabella Wentz says

      December 6, 2016 at 12:27 PM

      Liz Ann- There are quite a few options for thyroid medications. In my experience, what works for one person may not work for another. If your doctor will not prescribe the medication you are looking for, ask your local pharmacist for doctors in your area who prescribe the medication you are looking to try. Have you read these articles?

      WHICH THYROID MEDICATION IS BEST?
      https://thyroidpharmacist.com/articles/which-thyroid-medication-is-best/

      TOP 11 THINGS YOU NEED TO KNOW ABOUT THYROID MEDICATIONS
      https://thyroidpharmacist.com/articles/top-11-things-you-need-to-know-about-thyroid-medications/

      Reply
  45. Juli says

    December 11, 2014 at 10:08 AM

    Find a good natureopath and ask for a natural compounded thyroid medication, sometimes it includes Armour thyroid.
    Reply
    • Dr. Izabella Wentz says

      December 6, 2016 at 12:29 PM

      Juli- Thank you so much for following this page! You may find this article interesting! 🙂

      WHY THYROID PATIENTS NEED CHANGE
      https://thyroidpharmacist.com/articles/why-thyroid-patients-need-change

      Reply
  46. Lynda says

    February 12, 2015 at 6:18 AM

    I was just recently diagnosed with hashimotos. I provided my dr with information how I kept tract of eating right and training which lead him to get the tests done. Also thyroid runs in my family. I’ve started levo thyroxin and it’s helped greatly. My mom had Graves’ disease and said the same thing about synthroid and has switched to the same as I have a few yes back and she said it’s been great for her.
    Reply
    • Dr. Izabella Wentz says

      December 6, 2016 at 12:32 PM

      Lynda- Thank you so much for sharing! Graves and Hashimoto’s are both autoimmune conditions that affect the thyroid. They are thought to be closely related. Sometimes one turns into the other. The difference is the site of the antibody attack. In Hashimoto’s, the antibodies are found to thyroglobulin (in 80%) and thyroid peroxidase (TPO) enzyme (in 95% of people)-Hashimoto’s results in hypothyroidism and is usually treated with Synthroid and replacement hormone.

      The same antibodies may be present in a smaller percentage of people who have Graves, but the main antibody is to the TSH Receptor (TSHR-Ab). Usually people with Graves have hyperthyroidism and they are treated conventionally with thyroid suppressing drugs (methimazole) or radioactive iodine to destroy the thyroid. At that point, the thyroid will no longer produce hormones on its own and these people end up on Synthroid as well.

      Most thyroid conditions result from the immune system attacking the thyroid because the immune system is out of balance. Even when the thyroid is taken out surgically or treated with radioactive iodine the autoimmunity still persists in most cases. Many people will have their thyroids removed, and will develop new autoimmune disorders such as Lupus, Rheumatoid arthritis, etc. The immune system just finds a different target. We need to rebalance the immune system to prevent this (sometimes the autoimmunity can be reversed as well! The gut determines your immune system. With the exception of discussing proper thyroid medication dosing, the majority of my website and my book focuses on balancing the immune system. The info I present is based on my own research in journey for overcoming my autoimmune thyroid condition.

      http://www.amazon.com/gp/product/0615825796?ie=UTF8&camp=1789&creativeASIN=0615825796&linkCode=xm2&tag=thyroipharma-20

      Reply
  47. Jennifer Shaner says

    December 9, 2014 at 5:37 AM

    T3, Free
    6/27 8/29 11/7
    2.6 2.93.3
    I was diagnosed with Hashimoto’s over 25 yrs. ago but the endocrinologist has retired and I have no records of those early visits and treatments. I have been treated since by both my primary doctor and recently another enodocrinologist but neither will document on my chart that it is Hashimoto’s, nor have they tested to confirm. They only write that I am hypothyroid. I have fought my way into being treated with Armour recently (105 MG) but I am having issues with the endo., besides cost, and so I am switching to my primary exclusively. The problem is when I requested Free T3 and Free T4 to be checked they refused and became freaked out by my supressed TSH (which seems to have come up since my last tests if I heard right). I have scheduled another appointment with the specific provider I plan to use but was told by the nurse I had better bring research and test results as they have never treated a patient on Armour. I am doing so much better now and refuse to go back to synthetic. They also were surprised to hear I have Hashimoto’s as they have no record of that specific diagnosis. Will I need to have antibody testing again and will it even show up after so many years of treatment and a thyroid that has shrunk down to the point of being almost non-existent. Should I also have my cortisol levels checked to see how my adrenals are functioning? My tests from my endo. since June are as follows:
    TSH
    6/27/148/29/1411/7/14
    1.52 0.35 0.03
    T3, Free
    6/27 8/29 11/7
    2.6 2.9 3.3
    Free T4
    6/27/148/29/1411/7/14
    1.30 0.93 0.90
    How should I approach this switch without irritating another doctor who may not agree with my current treatment?
    To:
    Patient Medical Advice Request Message List
    Reply
    • Dr. Izabella Wentz says

      December 6, 2016 at 12:35 PM

      Jennifer- I’m afraid I can’t comment on your lab results due to liability. I can tell you that while reference ranges of what’s “normal” may vary depending on the lab that produces the test reports, most thyroid patients feel best with a TSH between 0.5-2, and with Free T3 and Free T4 in the top half of the reference range. I strongly encourage you to keep looking until you find a skilled practitioner who can help you with Hashimoto’s, they are out there. Here is an article I wrote about my challenges finding Dr. Right.

      MY RECENT CHALLENGES AND FINDING DR. RIGHT
      https://thyroidpharmacist.com/articles/my-challenges-and-finding-dr-right

      You may also like to check out the doctors that other patients recommend on this list:

      CLINICIAN DATABASE
      http://www.thyroidpharmacistconsulting.com/clinician-database.html

      Reply
  48. Karen says

    January 9, 2015 at 2:53 PM

    I had hot nodule on the thyroid and had the nodule remove, then years later was told I had Hypothyroidism and take Levothyroxine. Should I be tested for anything else. I have such a hard time with my weight, and trying to loose it…
    Reply
    • Dr. Izabella Wentz says

      December 6, 2016 at 12:37 PM

      Karen- Did you know that if you live in the United States, the UK, Australia, Europe and most developed countries that add iodine to the salt supply and take thyroid medications, there’s a higher probability that you do have Hashimoto’s?

      Depending on the source, estimates are that between 90-95% of those with hypothyroidism have Hashimoto’s.

      But most doctors will never tell people that they have Hashimoto’s, or that their own immune system is attacking their thyroid. People are told that their “thyroid is sluggish”, and that these things happen with age and “Just take this pill, you’ll be fine.” When it comes to weight gain these are a couple of things to think about.

      1) What was your recent TSH, Free T3 and Free T4? Sometimes when those numbers are on the outskirts of normal, your metabolic rate may still be impaired making it more difficult for you to burn calories. Most people report feeling well with a TSH between 0.5-2.

      2) What type of medication are you on? Some report more weight loss with T4/T3 combinations (Armour, Nature-Throid, compounded medications) versus T4 medications (Synthroid, Levoxyl, Tirosint) alone. T4 is a precursor to T3, but some individuals do not convert T4 to T3 properly, and the T3 component is the metabolically active one.

      3) What type of diet are you eating? Some report more weight loss with T4/T3 combination vs T4 alone. Some do not convert T4 properly.The Standard American Diet (S.A.D.) full of sugar and simple carbohydrates is perfectly designed to cause us to gain weight year after year. Even yogurts that are marketed as “healthy” contain the equivalent of 16 teaspoons of sugar. Divorcing the S.A.D. is often a step that many of us must take to not just lose weight, but to also feel better. Some diets that have been helpful include the Body Ecology Diet, the Paleo Diet, the Virgin Diet, Autoimmune Paleo Diet, GAPS diet, SCD diet, Weston A. Price Diet, or the Mediterranean Diet. You may need to modify these diets to your own individuality.

      BEST DIET FOR HASHIMOTO’S AND HYPOTHYROIDISM
      https://thyroidpharmacist.com/articles/best-diet-for-hashimotos-hypothyroidism

      HOW TO LOSE WEIGHT WITH HASHIMOTO’S AND HYPOTHYROIDISM
      https://thyroidpharmacist.com/articles/how-to-lose-weight-with-hashimotos

      Reply
  49. Amber Fontenot says

    January 29, 2015 at 12:43 AM

    I was diagnosed with hypothyroidism as an infant. I am 30 now and within the last year have developed sensitivity to dairy products. I also have endometriosis – which I have read is connected to hypothyroidism. Is it possible to develop hashimotos with a hypothyroidism diagnosis as an infant? What tests should I request? I would love to feel better again. I haven’t felt like ‘myself’ since the birth of my son 3 years ago. Would appreciate any advice you can give me. Thank you.
    Reply
    • Dr. Izabella Wentz says

      December 6, 2016 at 12:38 PM

      Amber- Did you know that if you live in the United States, the UK, Australia, Europe and most developed countries that add iodine to the salt supply and take thyroid medications, there’s a higher probability that you do have Hashimoto’s?

      Depending on the source, estimates are that between 90-95% of those with hypothyroidism have Hashimoto’s.

      But most doctors will never tell people that they have Hashimoto’s, or that their own immune system is attacking their thyroid. People are told that their “thyroid is sluggish”, and that these things happen with age and “Just take this pill, you’ll be fine.” These are the recommended labs from my book, page 32.

      RECOMMENDED THYROID FUNCTION TESTS
      TSH
      TPO Antibodies
      Thyroglobulin Antibodies
      Free T4
      Free T3
      Reverse T3 (Optional)

      Have you read my book, Hashimoto’s The Root Cause? Here’s the link in case you’re interested.

      http://www.amazon.com/gp/product/0615825796?ie=UTF8&camp=1789&creativeASIN=0615825796&linkCode=xm2&tag=thyroipharma-20
      
      HOW TO GET ACCURATE LAB TESTING WHEN TAKING MEDICATIONS
      https://thyroidpharmacist.com/articles/how-to-get-accurate-lab-tests-when-taking-thyroid-medications

      Reply
  50. Deborah Beeler says

    January 29, 2015 at 5:47 AM

    I 52had hypothyroid problems for several years now and no matter how hard I tried to ask for solutions ,my doctor gives me no answer,so I have decided to take a more active role in my own health, because I am convince there are some solutions and I want and need answers and I Have read several of your articles as suggested from a stranger in my line one day ,that works as a practitioner, I said I stop eating wheat and my throat doesn’t feel soar, but it does still hurt sometimes to swallow and my stomach bloats up,and I am off of dairy and soy and I am reading all labels and I am finding out a lot of information.she said that I was on the right track but I am just irritated by the fact that my doctor will not run the test that I asked her for . I don’t know if it’s because I am on low income . I also have asthma and allergies but I feel a little better each day and i feel the fog is lifting ,because I Am 52 years old and I feel I am declining instead of getting better I have noticed my memory is is off and since I started this diet I feel by fog has been lifted
    Reply
    • Dr. Izabella Wentz says

      December 6, 2016 at 12:43 PM

      Deborah- I strongly encourage you to keep looking until you find a skilled practitioner who can help you with Hashimoto’s, they are out there. Here is an article I wrote about my challenges finding Dr. Right.

      MY RECENT CHALLENGES AND FINDING DR. RIGHT
      https://thyroidpharmacist.com/articles/my-challenges-and-finding-dr-right

      Reply
  51. Mrs J says

    February 3, 2015 at 6:50 PM

    I was diagnosed last December with a thyroid problem, a full range of tests came in including my TPO ab which was 13k!! And was told to take a pill and have a nice day. That no diet will ever help. The pill was great for 2 months then all of my symptoms came back, including intense fatigue and migraines. I saw a naturopath who addressed all my issues, changed my diet and I got my TPOab down to 600 (still high but better). Now I’m pregnant and thankfully to your book I demanded TSH tests early and realized at 5 weeks preg my levels went from 1.0 to 2.36. My endo adjusted my Meds but said there was no reason to check my antibodies. My naturopath insists I need to be careful with my diet, since I have an autoimmune condition. What do you recommend, being 12 weeks now and limited to the types of supplements I take. Should I still be getting the full range of tests?
    Reply
    • Dr. Izabella Wentz says

      December 6, 2016 at 12:45 PM

      Mrs J- Here is an article you may find interesting! 🙂

      PREGNANCY
      https://thyroidpharmacist.com/articles/hashimotos-and-pregnancy

      Reply
  52. Vicky says

    February 11, 2015 at 3:17 AM

    Do you still have Hashimotos if your thyroid got removed?? Had mine removed due to a goiter causing compression on airway..autoimmune issue was never addressed..just told I had Hashimotos & hypothyroidism…
    Reply
    • Dr. Izabella Wentz says

      December 6, 2016 at 12:46 PM

      Vicky- Most thyroid conditions result from the immune system attacking the thyroid because the immune system is out of balance. Even when the thyroid is taken out surgically, is ‘dead’, or treated with radioactive iodine the autoimmunity still persists in most cases. Many people will have their thyroids removed, and will develop new autoimmune disorders such as Lupus, Rheumatoid arthritis, etc. The immune system just finds a different target. We need to re-balance the immune system to prevent this (sometimes the autoimmunity can be reversed as well). The gut determines your immune system. With the exception of discussing proper thyroid medication dosing, the majority of my website and my book focuses on balancing the immune system. The info I present is based on my own research and journey for overcoming my autoimmune thyroid condition.

      HASHIMOTO’S ROOT CAUSE BOOK
      http://www.amazon.com/gp/product/0615825796?ie=UTF8&camp=1789&creativeASIN=0615825796&linkCode=xm2&tag=thyroipharma-20

      Reply
  53. liz says

    February 11, 2015 at 5:13 AM

    Hello Dr izabella. When I was first diagnosed 3 years ago with hashimotos my antibodies were 1000. Not sure what they are now, but around 825. What do you think of these numbers? I am on 75 mgs of armour. Thank you
    Reply
    • Dr. Izabella Wentz says

      December 6, 2016 at 12:47 PM

      Liz- I’m afraid I can’t comment on your lab results due to liability. There are quite a few options for thyroid medications. In my experience, what works for one person may not work for another. If your doctor will not prescribe the medication you are looking for, ask your local pharmacist for doctors in your area who prescribe the medication you are looking to try. Have you read these articles?

      WHICH THYROID MEDICATION IS BEST?
      https://thyroidpharmacist.com/articles/which-thyroid-medication-is-best/

      TOP 11 THINGS YOU NEED TO KNOW ABOUT THYROID MEDICATIONS
      https://thyroidpharmacist.com/articles/top-11-things-you-need-to-know-about-thyroid-medications/

      Reply
  54. Linda Shutty says

    February 11, 2015 at 7:06 AM

    I have a enlarged thyroid with nodules on it, I was tol it was normal, although I was having trouble with fatigue, weight gain, and losing my hair, along with anxiety and terrible mood swings. I took the list of things to test to my dr and he told me the levels were fine and I was reading too much on the internet. Isnt it sad that we are faced with this in the medical world seeking help ? I am searching for a new doctor now. I know my body and I do have other things , fibro, chronic migraines, arthritis and many more issues I am trying to deal with. I have not given up yet, so far all my tests did not include all of the above, only they main T levels were done each time
    Reply
    • Dr. Izabella Wentz says

      December 6, 2016 at 12:50 PM

      Linda- You may like to check out the doctors that other patients recommend on this list:

      CLINICIAN DATABASE
      http://www.thyroidpharmacistconsulting.com/clinician-database.html

      Reply
  55. Tamara garza says

    February 11, 2015 at 7:24 AM

    I have hypothyroidism and have been on Synthroid for 8 years I ran into the website stopthyroidmaddness.com and it has helped me ask for armour instead. I have pain in my right side of my neck just went and had MRI and also ultrasound done! The techs didn’t want to tell me what they found. But I did see her type bp on right side. I’m hoping they find whatever is causing me pain and fix it I feel so horrible. I get hot flashes and I’m only 38 years old.
    Reply
    • Dr. Izabella Wentz says

      December 6, 2016 at 12:51 PM

      Tamara – There are quite a few options for thyroid medications. In my experience, what works for one person may not work for another. If your doctor will not prescribe the medication you are looking for, ask your local pharmacist for doctors in your area who prescribe the medication you are looking to try. Have you read these articles?

      WHICH THYROID MEDICATION IS BEST?
      https://thyroidpharmacist.com/articles/which-thyroid-medication-is-best/

      TOP 11 THINGS YOU NEED TO KNOW ABOUT THYROID MEDICATIONS
      https://thyroidpharmacist.com/articles/top-11-things-you-need-to-know-about-thyroid-medications/

      Reply
  56. Marcia says

    March 6, 2015 at 9:36 PM

    Tamara, I too have hypothyroidism. I was on levothyroxine but had troubles with this & was switched to Armour at my request (after reading articles on this page & others like it) What I want to share with you is the fact that you are having hot flashes at 38. Dont let anyone tell you that you are too young to be starting the change. I was 38 when I had my first signs. I was told I was too young. Later I was having other issues which required tissue testing. The tests came back normal. But guess what.. they found changes in the tissue.. I was starting the change. I found great relief with Lachesis Mutus from Boiron. You can get it from health food stores or on line. and its affordable. I often wonder now that I am post menopausal if the hotflashes are menopausal or thyroid?? Hope this helps. Remember normal for one person may not be normal for another.
    Reply
    • Dr. Izabella Wentz says

      December 6, 2016 at 12:54 PM

      Marcia- There are quite a few options for thyroid medications. In my experience, what works for one person may not work for another. If your doctor will not prescribe the medication you are looking for, ask your local pharmacist for doctors in your area who prescribe the medication you are looking to try. Have you read these articles?

      WHICH THYROID MEDICATION IS BEST?
      https://thyroidpharmacist.com/articles/which-thyroid-medication-is-best/

      TOP 11 THINGS YOU NEED TO KNOW ABOUT THYROID MEDICATIONS
      https://thyroidpharmacist.com/articles/top-11-things-you-need-to-know-about-thyroid-medications/

      Reply
  57. Bernita Heimel says

    February 11, 2015 at 7:36 AM

    Was told in 1996 I had Hashimoto’s. Only test done that I know is the tsh. At that time it was 9. Had weakness, and other symptoms. The Dr. put me on synthroid. Have seen other Drs. since, including endochronologists. All agre about usong the synthroid, and will not use any other medication for which I have asked. As long as tsh is normal, they say I am fine, but will ajust the synthroid according to tsh. Currently taking levothyroxine at 88mcg. a day. I have taken small dose of kelp for the iodine after reading that it would help the thyroid. It made my heart race. Since then I read information by an altrnative Dr. that iodine can be like adding fire to the hashimoto,s thus explaining the heart racing. My last tsh was 1.3. The Dr. said I was fine, and dismissed the fact I still experience the fatique, weakness, slow to loose weight, etc. Also have had problems with tachycardia, and High blood pressure since being diagnosed with hasimoto’s which seen to improve if for some reason I miss my daily synthroid. Praying you can give me some input on what I should persue next. Mornings are especially hard concernint the fatigue. THANK YOU111
    Reply
    • Dr. Izabella Wentz says

      December 6, 2016 at 12:55 PM

      Bernita- Fatigue was the most debilitating symptom I experienced with Hashimoto’s. It actually started 8 years before I was finally diagnosed in 2009, after I got Mono (Epstein-Barr Virus) in college. I needed to sleep for 12 hours each night to be able to function, and by “function” I mean after hitting the snooze button on my alarm clock for two hours (ask my poor husband), I would drag myself out of bed and then had to drink 4-6 cups of caffeine everyday to keep myself awake. I often had Red Bull and Pepsi for breakfast, and was the epitome of “wired but tired”. I hope my articles help you get started 🙂

      OVERCOMING THYROID FATIGUE
      https://thyroidpharmacist.com/articles/top-10-tips-for-overcoming-hashimotos-fatigue

      THIAMINE AND THYROID FATIGUE
      https://thyroidpharmacist.com/articles/thiamine-and-thyroid-fatigue

      Reply
  58. Amy says

    February 11, 2015 at 3:48 PM

    indudnt see the Revese T3 in your list of recommended labs. Why is it not listed when it can block the action of T3, thus rendering its level irrelevant
    Reply
    • Dr. Izabella Wentz says

      December 6, 2016 at 12:56 PM

      Amy- These are the recommended labs from my book, page 32.

      RECOMMENDED THYROID FUNCTION TESTS
      TSH
      TPO Antibodies
      Thyroglobulin Antibodies
      Free T4
      Free T3
      Reverse T3 (Optional)

      Have you read my book, Hashimoto’s The Root Cause? Here’s the link in case you’re interested.

      http://www.amazon.com/gp/product/0615825796?ie=UTF8&camp=1789&creativeASIN=0615825796&linkCode=xm2&tag=thyroipharma-20
      
      HOW TO GET ACCURATE LAB TESTING WHEN TAKING MEDICATIONS
      https://thyroidpharmacist.com/articles/how-to-get-accurate-lab-tests-when-taking-thyroid-medications

      Reply
  59. Kim H says

    February 11, 2015 at 3:55 PM

    Hi Dr. Izabella,
    I am looking forward to following your FB page, and this article was really interesting.
    My daughter was diagnosed with Hypothyroidism as age 17, in mid November.
    Her labs showed:
    TSH: 5.310 HIGH (.450-4.500
    Triiodothyronine, Free Syrum 3.5 (2.3-5.0)
    T4 Free 1.11 (.93-1.60)
    I am working with our chirpractor on treating her thyroid through supplementation and we have def changed her (already healthy) diet to make sure she is eating thryroid boosting foods, and avoiding those that would inhibit thyroid function.
    She has been on the following supplements since 11/17 :
    Endo Flex Essential Oil (Young Living)
    Symplex F by Standard Process 2 per day
    Bio-Glycozyme Forte by Biotics 3 per day
    Thyrotim by Biotics 3 per day
    We are getting ready to redo the lab work and are hoping for great results to show that she is finally in normal range. She has been doing cardio and some weight training.
    Just curious as to your thoughts based on her lab resutls as to whether or not we should look into the Hashimoto test.
    Thank you so much for your time and for caring. It is not taken lightly.
    Kim
    Reply
    • Dr. Izabella Wentz says

      December 6, 2016 at 12:59 PM

      Kim- I’m afraid I can’t comment on her lab results due to liability. I can tell you that while reference ranges of what’s “normal” may vary depending on the lab that produces the test reports, most thyroid patients feel best with a TSH between 0.5-2, and with Free T3 and Free T4 in the top half of the reference range. Most people will see a dramatic reduction in gut symptoms, brain symptoms, skin breakouts and pain by eliminating the foods they are sensitive to. Some will also see a significant reduction in thyroid antibodies! An additional subset of people, will actually be able to get their Hashimoto’s into complete remission just by getting off the foods they react to, normalizing their thyroid antibodies, and some even normalizing their thyroid function! Here are a couple of articles you may find helpful.

      FOOD SENSITIVITIES AND HASHIMOTO’S
      https://thyroidpharmacist.com/articles/food-sensitivities-and-hashimotos

      AUTOIMMUNE PALEO DIET
      https://thyroidpharmacist.com/articles/autoimmune-paleo-diet

      Reply
  60. Kim says

    February 11, 2015 at 6:26 PM

    I think someone, Amy, responded to my post, as I received an email notification, but I don’t see the response here, nor do I know how to respond to her via the email.
    Anyway I did not list T3 because it is not on my daughter’s lab work results.
    What I do see is TSH + T4F + T3FREE TSH is 5.310 But T3 is not listed separately.
    Reply
  61. Jami Wright says

    February 11, 2015 at 6:19 PM

    I was first diagnosed with Grave’s (hyper), received RAI treatment, and became hypo, and then diagnosed with Hashimoto’s. Is that possible? One is hyper and one is hypo, but I always thought I went hypo due to the RAI, even though they were hoping to only kill part of the thyroid. This was back in the early 90’s. My Dr. did the antibodies testing, even back then. I’m wondering, maybe I never really had Grave’s (nuc-med test confirmed), and it was always Hashimoto’s. Can Hashimoto’s make you hyperthyroid too? Thank you in advance for your reply!
    Reply
    • Dr. Izabella Wentz says

      December 6, 2016 at 1:00 PM

      Jami- Most thyroid conditions result from the immune system attacking the thyroid because the immune system is out of balance. Even when the thyroid is taken out surgically, is ‘dead’, or treated with radioactive iodine the autoimmunity still persists in most cases. Many people will have their thyroids removed, and will develop new autoimmune disorders such as Lupus, Rheumatoid arthritis, etc. The immune system just finds a different target. We need to re-balance the immune system to prevent this (sometimes the autoimmunity can be reversed as well). The gut determines your immune system. With the exception of discussing proper thyroid medication dosing, the majority of my website and my book focuses on balancing the immune system. The info I present is based on my own research and journey for overcoming my autoimmune thyroid condition.

      HASHIMOTO’S ROOT CAUSE BOOK
      http://www.amazon.com/gp/product/0615825796?ie=UTF8&camp=1789&creativeASIN=0615825796&linkCode=xm2&tag=thyroipharma-20

      Reply
  62. Kristen says

    February 11, 2015 at 7:54 PM

    Hi Izabella, I was diagonosed hypothyroid at 25 but I realize I was probably undiagnosed since around 16 or 17. Finally an endo tested me and told me I have Hashimoto’s at the age of 46! Do you know of any PCP in the Chicago area that are on the same page as you? Every PCP and even endocrinologists don’t address the autoimmune issue just supplemental T4. I have been struggling for decades. It’s really outrageous how doctors view this disease.
    Reply
    • Dr. Izabella Wentz says

      December 6, 2016 at 1:01 PM

      Kristen- I know how frustrating it is. You may like to check out the doctors that other patients recommend on this list:

      CLINICIAN DATABASE
      http://www.thyroidpharmacistconsulting.com/clinician-database.html

      Reply
  63. Maria says

    February 12, 2015 at 2:46 AM

    I am a 44 yr old woman was diagnosed with a thyroid gland in my throat i get alot of pains forgetful weak tired sleepy my mind forgets i can concentrate properly my tjroat always hurts i feel my body aches i get mood swings i cant study or able to remember some things i wanna go back to school but feel hopeless n just give up plz help me i dnt know who or where to go gor help or how to go get tested i am a low income mom i live in chicago please help me
    Reply
    • Dr. Izabella Wentz says

      December 6, 2016 at 1:03 PM

      Maria- Most people will see a dramatic reduction in gut symptoms, brain symptoms, skin breakouts and pain by eliminating the foods they are sensitive to. Some will also see a significant reduction in thyroid antibodies! An additional subset of people, will actually be able to get their Hashimoto’s into complete remission just by getting off the foods they react to, normalizing their thyroid antibodies, and some even normalizing their thyroid function! Here are a couple of articles you may find helpful.

      FOOD SENSITIVITIES AND HASHIMOTO’S
      https://thyroidpharmacist.com/articles/food-sensitivities-and-hashimotos

      AUTOIMMUNE PALEO DIET
      https://thyroidpharmacist.com/articles/autoimmune-paleo-diet

      Reply
  64. Joey says

    February 12, 2015 at 3:33 AM

    Hello.
    I am on so many supplements.Doesn’t anyone’s one that has it all? The zinc and B’s, ashgawanda, etc? I feel like a pill popper.I was diagnosed in November past and I just ordered your book. I am gluten free as much as possible and stopped soy and most sugars. But I am worried because I always had low blood pressure and now it has climbed continually higher in the past couple months. I don’t want to go.on.more meds. I started hibiscus, omega 3 and 5http to try and reduce it as I feel all jittery and it helps. Any suggestions? The Armour brought my levels in range but antibodies went higher. This whole thing has me nuts. I never took pills. I don’t like drugs. I was always healthy and never smoked or anything.
    Reply
    • Dr. Izabella Wentz says

      December 6, 2016 at 1:04 PM

      Joey- Thank you so much for your support. I’m looking forward to hearing your progress on this page. Make sure to take the book slow, take notes, highlight, and establish a baseline when making changes. 🙂

      Reply
  65. Laura Kirby says

    February 12, 2015 at 7:31 AM

    I was told my Thyroid was not working as it should I was told they checked my antibodies & I don’t have Hashimottos yet & if I went gluten free & dairy free for awhile it would probably keep me from getting it…Is this True? I am doing good going gluten free but not so good dairy free. Suppose to have blood work done again in two months.
    Reply
    • Dr. Izabella Wentz says

      December 6, 2016 at 1:06 PM

      Laura- Most people will see a dramatic reduction in gut symptoms, brain symptoms, skin breakouts and pain by eliminating the foods they are sensitive to. Some will also see a significant reduction in thyroid antibodies! An additional subset of people, will actually be able to get their Hashimoto’s into complete remission just by getting off the foods they react to, normalizing their thyroid antibodies, and some even normalizing their thyroid function! Here are a couple of articles you may find helpful.

      FOOD SENSITIVITIES AND HASHIMOTO’S
      https://thyroidpharmacist.com/articles/food-sensitivities-and-hashimotos

      AUTOIMMUNE PALEO DIET
      https://thyroidpharmacist.com/articles/autoimmune-paleo-diet

      Reply
  66. Carol says

    February 12, 2015 at 8:03 AM

    At first diagnosis my TSH was .001. I was so tired. Endochronologist ordered radioactive iodine. Since then my throat feels very closed. I cannot sing any more. A few lines and my throat tightens and hurts. Is there a connection and what is the purpose of radioactive iodine?
    Reply
    • Dr. Izabella Wentz says

      December 6, 2016 at 1:07 PM

      Carol- Most thyroid conditions result from the immune system attacking the thyroid because the immune system is out of balance. Even when the thyroid is taken out surgically, is ‘dead’, or treated with radioactive iodine the autoimmunity still persists in most cases. Many people will have their thyroids removed, and will develop new autoimmune disorders such as Lupus, Rheumatoid arthritis, etc. The immune system just finds a different target. We need to re-balance the immune system to prevent this (sometimes the autoimmunity can be reversed as well). The gut determines your immune system. With the exception of discussing proper thyroid medication dosing, the majority of my website and my book focuses on balancing the immune system. The info I present is based on my own research and journey for overcoming my autoimmune thyroid condition.

      HASHIMOTO’S ROOT CAUSE BOOK
      http://www.amazon.com/gp/product/0615825796?ie=UTF8&camp=1789&creativeASIN=0615825796&linkCode=xm2&tag=thyroipharma-20

      Reply
  67. Holly Smith Crump says

    February 12, 2015 at 10:16 PM

    I was diagnosed with Graves Disease in 2003. Had the ablation. I’ve been on synthroid ever since. Many times, my tsh has been too low, or too high. I’ve also been diagnosed with fibromyalgia. I never feel good, though my most recent blood work shows all my levels, tsh, t3, t4, etc, are in the normal range. My niece, who’s much younger than I also has Graves Disease, but it was controlled only with meds. She’s now been diagnosed with Hashimotos. My question is, is it possible for someone like me, who is hypo now because of the ablation, to actually have Hashimotos?
    Reply
    • Dr. Izabella Wentz says

      December 6, 2016 at 1:07 PM

      Holly- Most thyroid conditions result from the immune system attacking the thyroid because the immune system is out of balance. Even when the thyroid is taken out surgically, is ‘dead’, or treated with radioactive iodine the autoimmunity still persists in most cases. Many people will have their thyroids removed, and will develop new autoimmune disorders such as Lupus, Rheumatoid arthritis, etc. The immune system just finds a different target. We need to re-balance the immune system to prevent this (sometimes the autoimmunity can be reversed as well). The gut determines your immune system. With the exception of discussing proper thyroid medication dosing, the majority of my website and my book focuses on balancing the immune system. The info I present is based on my own research and journey for overcoming my autoimmune thyroid condition.

      HASHIMOTO’S ROOT CAUSE BOOK
      http://www.amazon.com/gp/product/0615825796?ie=UTF8&camp=1789&creativeASIN=0615825796&linkCode=xm2&tag=thyroipharma-20

      Reply
  68. Mo Leahy says

    February 12, 2015 at 10:49 PM

    they just found a nodule on my thyroid and what does this mean does this have anything to do with either of the above can you help me understand The doctor has ordered a blood test and a ultrasound can you give me some information at what I may be looking at and help me thank you
    Reply
    • Dr. Izabella Wentz says

      December 6, 2016 at 1:08 PM

      Mo- Hashimoto’s is a complicated condition with many layers that need to be unraveled. While conventional medicine only looks at each body system as a separate category, and is only concerned with the thyroid’s ability to produce thyroid hormone, Hashimoto’s is more than just hypothyroidism. I wanted to pass along these articles that I wrote. I hope they help 🙂

      WHERE DO I START WITH HASHIMOTO’S
      https://thyroidpharmacist.com/articles/where-do-i-start-with-hashimotos/

      OVERCOMING HASHIMOTO’S
      https://thyroidpharmacist.com/articles/overcoming-hashimotos-in-the-new-year/

      Reply
  69. sharon says

    February 13, 2015 at 3:53 AM

    I was diagnosed with Hoshimotos 15 years ago. Of course I was tested for hypothyroidism and my levels were always “normal” even though I had brain fog, exhaustion etc. Dr after Dr just told me being a new mother (3rd child!) Was the reason for me feeling that way.
    I finally found a Dr. that listened to me and left no stone unturned. He ordered every lab test as well as ultrasounds and dye injections. He was convinced that even though nothing showed up I had Hoshimotos as well as the start of a tumor.
    We opted for exploratory surgery, and they in fact found I had a tumor on one side. It was removed.
    My question is as I was diagnosed with Hoshimotos but have had my thyroid removed, does that also destroy the autoimmune possibilities or can it manifest in different ways?
    They have gound it difficult to maintain a proper dosage of Synthroid as sometimes I have irradicate levels.
    Reply
    • Dr. Izabella Wentz says

      December 6, 2016 at 1:09 PM

      Sharon- Most thyroid conditions result from the immune system attacking the thyroid because the immune system is out of balance. Even when the thyroid is taken out surgically, is ‘dead’, or treated with radioactive iodine the autoimmunity still persists in most cases. Many people will have their thyroids removed, and will develop new autoimmune disorders such as Lupus, Rheumatoid arthritis, etc. The immune system just finds a different target. We need to re-balance the immune system to prevent this (sometimes the autoimmunity can be reversed as well). The gut determines your immune system. With the exception of discussing proper thyroid medication dosing, the majority of my website and my book focuses on balancing the immune system. The info I present is based on my own research and journey for overcoming my autoimmune thyroid condition.

      HASHIMOTO’S ROOT CAUSE BOOK
      http://www.amazon.com/gp/product/0615825796?ie=UTF8&camp=1789&creativeASIN=0615825796&linkCode=xm2&tag=thyroipharma-20

      Reply
  70. Susan says

    February 14, 2015 at 9:53 PM

    The way I understand it is that once you have Hashimotos and have the thyroid removed you still have an autoimmune disease. It will show up in another form like rheumatoid arthritis, lupus, etc. Thats kind of scary to me – not sure what the future will hold.
    Reply
    • Dr. Izabella Wentz says

      December 6, 2016 at 1:11 PM

      Susan- Most thyroid conditions result from the immune system attacking the thyroid because the immune system is out of balance. Even when the thyroid is taken out surgically, is ‘dead’, or treated with radioactive iodine the autoimmunity still persists in most cases. Many people will have their thyroids removed, and will develop new autoimmune disorders such as Lupus, Rheumatoid arthritis, etc. The immune system just finds a different target. We need to re-balance the immune system to prevent this (sometimes the autoimmunity can be reversed as well). The gut determines your immune system. With the exception of discussing proper thyroid medication dosing, the majority of my website and my book focuses on balancing the immune system. The info I present is based on my own research and journey for overcoming my autoimmune thyroid condition.

      HASHIMOTO’S ROOT CAUSE BOOK
      http://www.amazon.com/gp/product/0615825796?ie=UTF8&camp=1789&creativeASIN=0615825796&linkCode=xm2&tag=thyroipharma-20

      Reply
  71. Angela stogner says

    February 13, 2015 at 5:43 AM

    OK I have had my thyroid removed when it came back I had hypothyroidism / hashimottos but I had graves disease symptoms! With two parathyroid glands embedded inside of my thyroid surgery took about 7 hrs my concern now it was done in 2008 my levels are still up and down constantly. I am on 175 mcg right now but I am experiencing hair loss always cold! What else could I do? I have been looking for relief cause I have restless leg syndrome and my joints on my left side hurt also since I have had thus problem I have migraines never had them before! Any advice would be appreciated!
    Reply
    • Dr. Izabella Wentz says

      December 6, 2016 at 1:13 PM

      Angela- Most thyroid conditions result from the immune system attacking the thyroid because the immune system is out of balance. Even when the thyroid is taken out surgically, is ‘dead’, or treated with radioactive iodine the autoimmunity still persists in most cases. Many people will have their thyroids removed, and will develop new autoimmune disorders such as Lupus, Rheumatoid arthritis, etc. The immune system just finds a different target. We need to re-balance the immune system to prevent this (sometimes the autoimmunity can be reversed as well). The gut determines your immune system. With the exception of discussing proper thyroid medication dosing, the majority of my website and my book focuses on balancing the immune system. The info I present is based on my own research and journey for overcoming my autoimmune thyroid condition.

      HASHIMOTO’S ROOT CAUSE BOOK
      http://www.amazon.com/gp/product/0615825796?ie=UTF8&camp=1789&creativeASIN=0615825796&linkCode=xm2&tag=thyroipharma-20

      Reply
  72. Pam says

    February 13, 2015 at 6:48 PM

    I have Graves’ disease and my TSH was high and my took me from Synthroid 175mc to 88mc
    I thought it was a big amount. Have had it 30 years. I am tired all time very depressed weakness. Have any idea what I should do
    Reply
    • Dr. Izabella Wentz says

      December 6, 2016 at 1:14 PM

      Pam- Graves and Hashimoto’s are both autoimmune conditions that affect the thyroid. They are thought to be closely related. Sometimes one turns into the other. The difference is the site of the antibody attack. In Hashimoto’s, the antibodies are found to thyroglobulin (in 80%) and thyroid peroxidase (TPO) enzyme (in 95% of people)-Hashimoto’s results in hypothyroidism and is usually treated with Synthroid and replacement hormone.

      The same antibodies may be present in a smaller percentage of people who have Graves, but the main antibody is to the TSH Receptor (TSHR-Ab). Usually people with Graves have hyperthyroidism and they are treated conventionally with thyroid suppressing drugs (methimazole) or radioactive iodine to destroy the thyroid. At that point, the thyroid will no longer produce hormones on its own and these people end up on Synthroid as well.

      Most thyroid conditions result from the immune system attacking the thyroid because the immune system is out of balance. Even when the thyroid is taken out surgically or treated with radioactive iodine the autoimmunity still persists in most cases. Many people will have their thyroids removed, and will develop new autoimmune disorders such as Lupus, Rheumatoid arthritis, etc. The immune system just finds a different target. We need to rebalance the immune system to prevent this (sometimes the autoimmunity can be reversed as well! The gut determines your immune system. With the exception of discussing proper thyroid medication dosing, the majority of my website and my book focuses on balancing the immune system. The info I present is based on my own research in journey for overcoming my autoimmune thyroid condition.

      http://www.amazon.com/gp/product/0615825796?ie=UTF8&camp=1789&creativeASIN=0615825796&linkCode=xm2&tag=thyroipharma-20

      Reply
  73. tanya seabrooks says

    February 14, 2015 at 10:19 AM

    I was diagnosed years ago with hypothyroid never has it been stable. I’ve been on 250 mcg to 50 mcg. Doctors take me from one extreme to another. I gain weight my eyes and face swell but never change my diet or pants size. I’m tired or I’m having problems sleeping. If I take synthroid or generic I’m fine at high does. Feel great lose weight and feel human. Once I stop I’m brain fogged tired and swell. I don’t have insurance and am in desperate need of a solution
    Reply
    • Dr. Izabella Wentz says

      December 6, 2016 at 1:15 PM

      Tanya- There are quite a few options for thyroid medications. In my experience, what works for one person may not work for another. If your doctor will not prescribe the medication you are looking for, ask your local pharmacist for doctors in your area who prescribe the medication you are looking to try. Have you read these articles?

      WHICH THYROID MEDICATION IS BEST?
      https://thyroidpharmacist.com/articles/which-thyroid-medication-is-best/

      TOP 11 THINGS YOU NEED TO KNOW ABOUT THYROID MEDICATIONS
      https://thyroidpharmacist.com/articles/top-11-things-you-need-to-know-about-thyroid-medications/

      Reply
  74. Carrie says

    February 14, 2015 at 3:15 PM

    I assumed because I am hypothryoid that I had Hashi’s but when I found out there is a specific test to find out I had it done and it turned out negative for Hashi’s. I guess that I’m plain old hypothryoid of unknown origin.
    Reply
    • Dr. Izabella Wentz says

      December 6, 2016 at 1:18 PM

      Carrie- These are the recommended labs from my book, page 32.

      RECOMMENDED THYROID FUNCTION TESTS
      TSH
      TPO Antibodies
      Thyroglobulin Antibodies
      Free T4
      Free T3
      Reverse T3 (Optional)

      Have you read my book, Hashimoto’s The Root Cause? Here’s the link in case you’re interested.

      http://www.amazon.com/gp/product/0615825796?ie=UTF8&camp=1789&creativeASIN=0615825796&linkCode=xm2&tag=thyroipharma-20
      

      Reply
  75. Kathy Nelsen says

    February 14, 2015 at 5:35 PM

    I was diagnosed with fibromyalgia in my late thirties. Was taking about 6 different medicines. Then I moved and went to different doctors. A nurse practitioner at my OBGYN asked me if my thyroid had ever been tested. Sure enough I had hypothyroidism. I take 100 MCG of levothyroxn. I am going to ask about Hashimotos next doctor visit because of stomach issues I believe I may have that. Do you think that fibromyalgia could be misdiagnosed in people who really have thyroid issues?
    Reply
    • Dr. Izabella Wentz says

      December 6, 2016 at 1:19 PM

      Kathy- I personally struggled with pain in the form of body aches and stiffness as well as carpal tunnel in both arms in 2010, when I was first diagnosed with Hashimoto’s. It was awful, I had to wear braces on both arms all day and even at night for about 6 months.

      I took NSAIDs every day to deal with the pain so I could get through my workday.

      I hope these articles help you get started.

      PAIN AND HASHIMOTOS
      https://thyroidpharmacist.com/articles/pain-and-hashimotos

      PAIN HASHIMOTOS AND FIBROMYALGIA…
      https://thyroidpharmacist.com/articles/pain-hashimotos-and-fibromyalgia/

      TURMERIC FOR YOUR THYROID AND HASHIMOTO’S
      https://thyroidpharmacist.com/articles/turmeric-for-your-thyroid-and-hashimotos

      Reply
  76. Karen Arcadia says

    April 2, 2015 at 6:27 AM

    Yes I truly believe that could be the case. I was having trouble sleeping and my doctor told me to skip my thyroid meds, maybe take them 3 days a week. Well I did and after 6-8weeks I started getting real sick. Too much to talk about but it was absolutely horrible. My TSH was so high and I asked her if there was a possibility of skipping my meds and all of this horrible stuff I was going through. She denied that it was related and diagnosed me with fms. I refused to believe it and it took about 6 months to begin to feel like I used to. Went to a rheumatologist and he ruled out fms due to no pressure points. I did not tell him I was hypothyroid. He asked me if I had ever been tested for thyroid problems and thats when I told him. I got the answer I needed right then. Lesson learned dont skip your thyroid medication.
    Reply
    • Dr. Izabella Wentz says

      December 6, 2016 at 1:20 PM

      Karen- There are quite a few options for thyroid medications. In my experience, what works for one person may not work for another. If your doctor will not prescribe the medication you are looking for, ask your local pharmacist for doctors in your area who prescribe the medication you are looking to try. Have you read these articles?

      WHICH THYROID MEDICATION IS BEST?
      https://thyroidpharmacist.com/articles/which-thyroid-medication-is-best/

      TOP 11 THINGS YOU NEED TO KNOW ABOUT THYROID MEDICATIONS
      https://thyroidpharmacist.com/articles/top-11-things-you-need-to-know-about-thyroid-medications/

      Reply
  77. diane says

    February 14, 2015 at 6:30 PM

    Back in 1980 I was treated for hyperthyroidism and graves disease with medication. I was only 13 at the time. In 1994 a year after the birth of my second child I was diagnosed with hypothyroidism and in 1995 was diagnosed with fibromyalgia. Now i wonder could my diagnoses of fibro be wrong?
    Reply
    • Dr. Izabella Wentz says

      December 6, 2016 at 1:21 PM

      Diane- Graves and Hashimoto’s are both autoimmune conditions that affect the thyroid. They are thought to be closely related. Sometimes one turns into the other. The difference is the site of the antibody attack. In Hashimoto’s, the antibodies are found to thyroglobulin (in 80%) and thyroid peroxidase (TPO) enzyme (in 95% of people)-Hashimoto’s results in hypothyroidism and is usually treated with Synthroid and replacement hormone.

      The same antibodies may be present in a smaller percentage of people who have Graves, but the main antibody is to the TSH Receptor (TSHR-Ab). Usually people with Graves have hyperthyroidism and they are treated conventionally with thyroid suppressing drugs (methimazole) or radioactive iodine to destroy the thyroid. At that point, the thyroid will no longer produce hormones on its own and these people end up on Synthroid as well.

      Most thyroid conditions result from the immune system attacking the thyroid because the immune system is out of balance. Even when the thyroid is taken out surgically or treated with radioactive iodine the autoimmunity still persists in most cases. Many people will have their thyroids removed, and will develop new autoimmune disorders such as Lupus, Rheumatoid arthritis, etc. The immune system just finds a different target. We need to rebalance the immune system to prevent this (sometimes the autoimmunity can be reversed as well! The gut determines your immune system. With the exception of discussing proper thyroid medication dosing, the majority of my website and my book focuses on balancing the immune system. The info I present is based on my own research in journey for overcoming my autoimmune thyroid condition.

      http://www.amazon.com/gp/product/0615825796?ie=UTF8&camp=1789&creativeASIN=0615825796&linkCode=xm2&tag=thyroipharma-20

      Reply
  78. Beth Hudson says

    February 15, 2015 at 5:07 AM

    i have been on synthroid for hypothyroidism for 8-10 years. I have been having major problems since April 2014.. I was getting so much thyroid that I was losing weight tremendously and then starting gaining weight like crazy. I mean 45-50 lbs in 8 months and I was still getting to much thyroid. Well now my doctor has done TSH, T3. T4, and free T3 and it’s all under control and I’m getting right amount of thyroid but I’m not losing any weight what so ever! So should I be checked for the Hoshinotos or what. I’m gaining weight, extreme anxiety to the point of my doctor has put me on something for anxiety, depression, crying a lot, my minds in a fog, and I had a hysterectomy at age 24 so I am in surgical menopause I assume!! HELP ME!!! Do I ask my doctor to test me for Hashimotos
    Reply
    • Dr. Izabella Wentz says

      December 6, 2016 at 1:21 PM

      Beth- There are quite a few options for thyroid medications. In my experience, what works for one person may not work for another. If your doctor will not prescribe the medication you are looking for, ask your local pharmacist for doctors in your area who prescribe the medication you are looking to try. Have you read these articles?

      WHICH THYROID MEDICATION IS BEST?
      https://thyroidpharmacist.com/articles/which-thyroid-medication-is-best/

      TOP 11 THINGS YOU NEED TO KNOW ABOUT THYROID MEDICATIONS
      https://thyroidpharmacist.com/articles/top-11-things-you-need-to-know-about-thyroid-medications/

      Reply
  79. Johnette says

    February 15, 2015 at 9:51 PM

    I take Synthroid because I was told I have an enlarged gland. The meds are supposed to keep it from growing larger. Make sense?
    Reply
    • Dr. Izabella Wentz says

      December 6, 2016 at 1:22 PM

      Johnette- There are quite a few options for thyroid medications. In my experience, what works for one person may not work for another. If your doctor will not prescribe the medication you are looking for, ask your local pharmacist for doctors in your area who prescribe the medication you are looking to try. Have you read these articles?

      WHICH THYROID MEDICATION IS BEST?
      https://thyroidpharmacist.com/articles/which-thyroid-medication-is-best/

      TOP 11 THINGS YOU NEED TO KNOW ABOUT THYROID MEDICATIONS
      https://thyroidpharmacist.com/articles/top-11-things-you-need-to-know-about-thyroid-medications/

      Reply
  80. Renee says

    February 16, 2015 at 3:25 AM

    Here’s one for you. I had an ultrasound of my thyroid last year and 4 nodules were found. Less than a month later was a thyroid scan. Those 4 nodules were 2 on the left and 2 on the right, 2 were hot and 2 were cold. All of my thryroid levels are “normal” on the lower end of normal and the antibodies were negative. I am told I have chronic thyroiditis. I have gained over 20 pounds in the past 1.5 years. I am athletic, I run and get at least 30 minutes of cardio along with weights daily. I do yoga and stretch as well. I eat a balanced diet containing mostly fruits and vegetables with an appropriate amount of protein as well. I rarely drink alcohol, I don’t smoke. I drink probably 64 ounces of water daily. My skin is dry and my hair falls out easily. My cortisol levels hardly change all day. They were 8.3 in the am and 6.8 late afternoon. Endo says it’s my diet which I don’t agree. I am an RN and know more that what he thinks I do, but none of this makes sense to me. Any advice?
    Reply
    • Dr. Izabella Wentz says

      December 6, 2016 at 1:23 PM

      Renee- When it comes to weight gain these are a couple of things to think about.

      1) What was your recent TSH, Free T3 and Free T4? Sometimes when those numbers are on the outskirts of normal, your metabolic rate may still be impaired making it more difficult for you to burn calories. Most people report feeling well with a TSH between 0.5-2.

      2) What type of medication are you on? Some report more weight loss with T4/T3 combinations (Armour, Nature-Throid, compounded medications) versus T4 medications (Synthroid, Levoxyl, Tirosint) alone. T4 is a precursor to T3, but some individuals do not convert T4 to T3 properly, and the T3 component is the metabolically active one.

      3) What type of diet are you eating? Some report more weight loss with T4/T3 combination vs T4 alone. Some do not convert T4 properly.The Standard American Diet (S.A.D.) full of sugar and simple carbohydrates is perfectly designed to cause us to gain weight year after year. Even yogurts that are marketed as “healthy” contain the equivalent of 16 teaspoons of sugar. Divorcing the S.A.D. is often a step that many of us must take to not just lose weight, but to also feel better. Some diets that have been helpful include the Body Ecology Diet, the Paleo Diet, the Virgin Diet, Autoimmune Paleo Diet, GAPS diet, SCD diet, Weston A. Price Diet, or the Mediterranean Diet. You may need to modify these diets to your own individuality.

      BEST DIET FOR HASHIMOTO’S AND HYPOTHYROIDISM
      https://thyroidpharmacist.com/articles/best-diet-for-hashimotos-hypothyroidism

      HOW TO LOSE WEIGHT WITH HASHIMOTO’S AND HYPOTHYROIDISM
      https://thyroidpharmacist.com/articles/how-to-lose-weight-with-hashimotos

      Reply
  81. renee says

    February 16, 2015 at 6:21 PM

    An addendum, all 3 of my aunts on my dad’s side have thyroid disorders ad well as my maternal and paternal grandmothers. My paternal grandfather had it as well….family history play big into all this?
    Reply
  82. debbie knight says

    February 16, 2015 at 5:38 AM

    i am just wonder if someone has been un dx with this condition could it go on to b dx as alczimlers as my aunt has all the signs of hyperthyroidism then 3 yrs ago moved house an started to get panic attacks an getting very anxious, loosing her confidence, cold feet cold hands even indoors with heating on, always suffered headaches dry mouth n many other thyroid symptom sorry typo! hairloss all these long b4 !!! now in home as started hallucinating oh an could never put weight on ? pls email me…..thanks x
    Reply
    • Dr. Izabella Wentz says

      December 6, 2016 at 1:25 PM

      Debbie- These are the recommended labs from my book, page 32.

      RECOMMENDED THYROID FUNCTION TESTS
      TSH
      TPO Antibodies
      Thyroglobulin Antibodies
      Free T4
      Free T3
      Reverse T3 (Optional)

      Have you read my book, Hashimoto’s The Root Cause? Here’s the link in case you’re interested.

      http://www.amazon.com/gp/product/0615825796?ie=UTF8&camp=1789&creativeASIN=0615825796&linkCode=xm2&tag=thyroipharma-20
      
      HOW TO GET ACCURATE LAB TESTING WHEN TAKING MEDICATIONS
      https://thyroidpharmacist.com/articles/how-to-get-accurate-lab-tests-when-taking-thyroid-medications

      Reply
  83. Lori Etchison says

    February 16, 2015 at 8:34 AM

    recently I have developed a recurring rash on my neck directly in front of my thyroid. It is itchy and dry. Is this a concern?
    Reply
    • Dr. Izabella Wentz says

      December 6, 2016 at 1:26 PM

      Lori- Here is an article you may find interesting! 🙂

      THE COMMON ROOT CAUSE OF HASHIMOTO’S, HIVES AND IBS
      https://thyroidpharmacist.com/articles/the-common-root-cause-of-hashimotos-hives-and-ibs

      Reply
  84. Amanda says

    February 16, 2015 at 11:23 AM

    hello. I requested a thyroid antibody test last year and it came back at over 3000 but my doctor says it’s nothing. Am I at higher risk of Hashemites?
    Reply
    • Dr. Izabella Wentz says

      December 6, 2016 at 1:26 PM

      Amanda- Most people will see a dramatic reduction in gut symptoms, brain symptoms, skin breakouts and pain by eliminating the foods they are sensitive to. Some will also see a significant reduction in thyroid antibodies! An additional subset of people, will actually be able to get their Hashimoto’s into complete remission just by getting off the foods they react to, normalizing their thyroid antibodies, and some even normalizing their thyroid function! Here are a couple of articles you may find helpful.

      FOOD SENSITIVITIES AND HASHIMOTO’S
      https://thyroidpharmacist.com/articles/food-sensitivities-and-hashimotos

      AUTOIMMUNE PALEO DIET
      https://thyroidpharmacist.com/articles/autoimmune-paleo-diet

      Reply
  85. rita says

    February 17, 2015 at 2:46 AM

    Plz notify me of any developments for hipothyrodism, I also have Psoriasis and I am depressed, fat and hair is falling all the time
    Reply
  86. Angela says

    February 19, 2015 at 10:49 PM

    I’m wondering…..I have been tested for antibodies 3 different times over the last 2 years and it always comes up with a number that is in the “normal” range 10 to 20. I also had an ultrasound on my Thyroid and no nodules were detected. Therefore I have felt that I don’t have Hashimotos. Yet I have had low thyroid function for many years.
    What do you do if you have low thryroid function (low Free T3 and Free T4) but no sign of Hashimotos?
    I have had a slightly elevated TSH number for years also. and very low R T3.
    I had a 24 hour iodine loading urine test to check my iodine level and was low. So I’ve been taking selenium and seaweed for the iodine thinking the selenium will protect for too much iodine and the iodine itself might be what my thryoid needs.
    I’m really wanting to know what the root cause is for my Hypothyroidism. Most everything is geared towards Hashimotos.
    I do have life long gut dysbiosis and am working on that through diet. But so far the Thyroid numbers have not improved….even with Naturethroid.
    Anyone have any ideas as to next steps?
    Reply
    • Dr. Izabella Wentz says

      December 6, 2016 at 1:28 PM

      Angela- I’m very hesitant in recommending iodine in Hashimoto’s. Although iodine serves as fuel for our thyroid and is very important in iodine deficiency hypothyroidism, Hashimoto’s is a different mechanism. It’s like pouring gas into an engine that’s on fire… that’s essentially what’s happening in Hashi’s, thyroid inflammation, and adding iodine to the mix before putting out the fire and fixing the engine may result in further damage to the thyroid. In those with a predisposition to autoimmunity, this has been documented time and time again, animal and human studies. I have spent 4 years researching this and have seen too many people suffering the consequences of adding iodine too soon. My approach is, let’s fix the engine first (usually a gut issue), and then add the fuel once we know that the engine is no longer on fire. Hope that you will check out my book. I have a whole chapter on the iodine controversy that references numerous studies as well as the work of Abraham and Brownstein.

      AMAZON
      http://www.amazon.com/gp/product/0615825796?ie=UTF8&camp=1789&creativeASIN=0615825796&linkCode=xm2&tag=thyroipharma-20

      Reply
  87. janp says

    March 2, 2015 at 4:05 AM

    Hello you mentioned you believe in functional doctors are there any you can recommend in the Ann Arbor or Canton Michigan area? I have had Hashimotos for 20 years and I have been wanting to see a functional doctor but I don’t no anyone that can recommend one.
    Reply
    • Dr. Izabella Wentz says

      December 6, 2016 at 1:29 PM

      Janp- You may like to check out the doctors that other patients recommend on this list:

      CLINICIAN DATABASE
      http://www.thyroidpharmacistconsulting.com/clinician-database.html

      Reply
  88. Julie says

    March 22, 2015 at 2:27 AM

    i was dx with iron def anemia and hypothyroid at 16. I am now 47. I was on a stable dose of levo for many years until 1 yr ago when my tsh has continued to rise and my levo dose has been increased 3 times
    I have palpitations and chest pains now and am unable to exercise because when my heart rate reaches 120 I get chest pain
    I’ve had a nuclear stress test which was normal but I have no answers about the chest pains
    My question is, why are my levo needs increasing suddenly??? My gp doesn’t know what to do except increase my levo. I am on gluten free and mostly wheat free diet, no sugar and use coconut oil. My bad cholesterol is 5.03
    And she told me to watch my diet but I’m already doing that
    My brain fog is also stressing me out
    Any advise would be appreciated
    J
    Reply
    • Dr. Izabella Wentz says

      December 6, 2016 at 1:30 PM

      Julie- Most people will see a dramatic reduction in gut symptoms, brain symptoms, skin breakouts and pain by eliminating the foods they are sensitive to. Some will also see a significant reduction in thyroid antibodies! An additional subset of people, will actually be able to get their Hashimoto’s into complete remission just by getting off the foods they react to, normalizing their thyroid antibodies, and some even normalizing their thyroid function! Here are a couple of articles you may find helpful.
      DAIRY AND HASHIMOTO’S
      https://thyroidpharmacist.com/articles/got-hashimotos-you-may-want-to-reconsider-dairy

      GOING DAIRY FREE TO REVERSE HASHIMOTOS
      https://thyroidpharmacist.com/articles/going-dairy-free-to-reverse-hashimotos

      FOOD SENSITIVITIES AND HASHIMOTO’S
      https://thyroidpharmacist.com/articles/food-sensitivities-and-hashimotos

      AUTOIMMUNE PALEO DIET
      https://thyroidpharmacist.com/articles/autoimmune-paleo-diet

      Reply
  89. Holly Keyser says

    March 23, 2015 at 5:31 AM

    All of your information sounds so intriguing but how do you find a doctor who won’t just give you the standard line? I went to a specialist who allegedly was willing to do more than write a script for Levoxyl. However, she, like every other doctor I have seen in the last 10 yeard, wrote a script for Levoxyl and sent me in my way. Waste of time and money.
    Reply
    • Dr. Izabella Wentz says

      December 6, 2016 at 1:31 PM

      Holly- You may like to check out the doctors that other patients recommend on this list:

      CLINICIAN DATABASE
      http://www.thyroidpharmacistconsulting.com/clinician-database.html

      Reply
  90. Rajesh says

    April 1, 2015 at 10:27 AM

    Nice Article on hypothyroidism.
    Reply
  91. Karen says

    April 4, 2015 at 4:03 PM

    Please enlighten me as to the reason that the conventional medical community, including endocrinologists, are so totally clueless when it comes to dealing with, diagnosing, treating, testing, etc.,etc., those w hypothyroidism and probably hoshimoto’s.Mine is a serious question, not just hypothetical. I have a daughter now almost 26, who has Hashimoto’s, finally diagnosed at age 9, yet she only received some treatment, although still inadequate, when she was 22. We have been to multiple endos over the years. Please understand, this is not a hypothetical question. FYI: I have been a nurse for 38 years.
    Reply
    • Dr. Izabella Wentz says

      December 6, 2016 at 1:32 PM

      Karen- Here is an article you may find interesting! 🙂

      WHY THYROID PATIENTS NEED CHANGE
      https://thyroidpharmacist.com/articles/why-thyroid-patients-need-change

      Reply
  92. TMsAngel says

    April 25, 2015 at 10:59 PM

    I was diagnosed with Hashimoto several years ago. Doctor wasn’t concerned. Specialist wasn’t concerned either since my TSH levels were within normal range. I should have changed doctors then, but didn’t. Is there a diet you can follow that will cure Hashimoto’s disease or do you have to take medication?
    Reply
    • Dr. Izabella Wentz says

      December 6, 2016 at 1:33 PM

      TMsAngel- Most people will see a dramatic reduction in gut symptoms, brain symptoms, skin breakouts and pain by eliminating the foods they are sensitive to. Some will also see a significant reduction in thyroid antibodies! An additional subset of people, will actually be able to get their Hashimoto’s into complete remission just by getting off the foods they react to, normalizing their thyroid antibodies, and some even normalizing their thyroid function! Here are a couple of articles you may find helpful.

      FOOD SENSITIVITIES AND HASHIMOTO’S
      https://thyroidpharmacist.com/articles/food-sensitivities-and-hashimotos

      AUTOIMMUNE PALEO DIET
      https://thyroidpharmacist.com/articles/autoimmune-paleo-diet

      Reply
  93. Nancy Wright says

    April 26, 2015 at 5:47 AM

    I was diagnose in June 2013 with diabetes. After 57 pills a week and 3 shots of insulin a day it went away in Sept., 2014. Then I was diagnosed with hypothroidism. I have been taking meds for that since. I am so confused. The doctor says I am still borderline diabetic but my blood sugar fasting is 88-97. Can these two be related? Should I be checked for hoshimoto??
    Reply
    • Dr. Izabella Wentz says

      December 6, 2016 at 1:34 PM

      Nancy- Here are a couple of articles you may find interesting! 🙂

      REVERSING DIABETES AND HASHIMOTO’S BLOOD SUGAR IMBALANCES
      https://thyroidpharmacist.com/articles/reversing-diabetes-and-hashimotos-blood-sugar-imbalances

      HASHIMOTO’S, BLOOD SUGAR AND DIABETES
      https://thyroidpharmacist.com/articles/hashimotos-blood-sugar-and-diabetes%C2%A0

      Reply
  94. Elizabeth says

    July 25, 2015 at 5:38 PM

    Hello JoAnne, I am glad that you are feeling much better. I also had the same question: How do you order your lab tests online? I also do not have insurance and have a low income. Also, agree with you about doctors ignorance. I hope that you are able to get your concerns about your nodules settled. I know that it is highly and terribly unsettling when we have these health issues especially with our thyroid and the auto immune diseases. Best to you always
    Reply
    • Dr. Izabella Wentz says

      December 6, 2016 at 1:36 PM

      Elizabeth- I’ve negotiated better pricing with Direct labs for the Facebook group Hashimoto’s 411. You will get them here cheaper than going through most other places. If you would like to order your own labs, you can use the link below.

      DIRECT LABS AND HASHIMOTO’S
      https://www.directlabs.com/thyroidrx/OrderTests/tabid/29159/language/en-US/Default.aspx

      Also, much of the information required to get your health back is covered in my book, Hashimoto’s: The Root Cause. You might be interested in checking it out.
      http://www.amazon.com/gp/product/0615825796?ie=UTF8&camp=1789&creativeASIN=0615825796&linkCode=xm2&tag=thyroipharma-20

      Reply
  95. Sandra says

    July 7, 2015 at 7:49 AM

    After my Thyroidectomy how do I treat Hashimoto’s? Is checking my antibodies important?
    Reply
    • Dr. Izabella Wentz says

      December 6, 2016 at 1:36 PM

      Sandra-Most thyroid conditions result from the immune system attacking the thyroid because the immune system is out of balance. Even when the thyroid is taken out surgically, is ‘dead’, or treated with radioactive iodine the autoimmunity still persists in most cases. Many people will have their thyroids removed, and will develop new autoimmune disorders such as Lupus, Rheumatoid arthritis, etc. The immune system just finds a different target. We need to re-balance the immune system to prevent this (sometimes the autoimmunity can be reversed as well). The gut determines your immune system. With the exception of discussing proper thyroid medication dosing, the majority of my website and my book focuses on balancing the immune system. The info I present is based on my own research and journey for overcoming my autoimmune thyroid condition.

      HASHIMOTO’S ROOT CAUSE BOOK
      http://www.amazon.com/gp/product/0615825796?ie=UTF8&camp=1789&creativeASIN=0615825796&linkCode=xm2&tag=thyroipharma-20

      Reply
  96. Amy says

    July 25, 2015 at 7:40 AM

    Donna, my doctor said the same thing. That there is no reason to test the antibodies again. I pushed for the test again to see if the changes in my life had any impact on the number (gluten free, supplements, etc.) so she tested one more time but won’t test again. Frustrating.
    Reply
    • Dr. Izabella Wentz says

      December 6, 2016 at 1:37 PM

      Amy- I strongly encourage you to keep looking until you find a skilled practitioner who can help you with Hashimoto’s, they are out there. Here is an article I wrote about my challenges finding Dr. Right.

      MY RECENT CHALLENGES AND FINDING DR. RIGHT
      https://thyroidpharmacist.com/articles/my-challenges-and-finding-dr-right

      Reply
  97. Lisa says

    October 15, 2015 at 12:33 PM

    Hi Jennifer, I’m near Ann Arbor and would be interested in more info about the Dr. Does she just treat thyroid/Hashi’s? Does she treat with alternate meds such as Cytomel and Armor? Thanks in advance!
    Reply
    • Dr. Izabella Wentz says

      December 6, 2016 at 1:37 PM

      Lisa- You may like to check out the doctors that other patients recommend on this list:

      CLINICIAN DATABASE
      http://www.thyroidpharmacistconsulting.com/clinician-database.html

      Reply
  98. Rebecca Boulineau says

    June 3, 2015 at 3:02 PM

    Hi April my name is Rebecca I also was diagnosed 15yrs ago with hyperthyroidism. I did the radiation iodine then went hypothyroid. Since then I have been on levy thyroxine. For about 6mos now I have been feeling like I am going crazy. Anxious anxiety heart palpitations. And almost seizure activity I think. My weight has been a roller coaster my body aches all the time. I have considered suicide sometimes because I can’t find a dr to help me. I have been off my meds now for 2wks went back to the Dr to refill my meds and asked him to do the extra test but refuses. …I cry for help but no one hears me.
    Reply
    • Dr. Izabella Wentz says

      December 6, 2016 at 1:38 PM

      Rebecca- Most thyroid conditions result from the immune system attacking the thyroid because the immune system is out of balance. Even when the thyroid is taken out surgically, is ‘dead’, or treated with radioactive iodine the autoimmunity still persists in most cases. Many people will have their thyroids removed, and will develop new autoimmune disorders such as Lupus, Rheumatoid arthritis, etc. The immune system just finds a different target. We need to re-balance the immune system to prevent this (sometimes the autoimmunity can be reversed as well). The gut determines your immune system. With the exception of discussing proper thyroid medication dosing, the majority of my website and my book focuses on balancing the immune system. The info I present is based on my own research and journey for overcoming my autoimmune thyroid condition.

      HASHIMOTO’S ROOT CAUSE BOOK
      http://www.amazon.com/gp/product/0615825796?ie=UTF8&camp=1789&creativeASIN=0615825796&linkCode=xm2&tag=thyroipharma-20

      Reply
  99. debbie says

    June 4, 2015 at 3:03 PM

    This is for Rebecca. Look at the link to where you can find a lab that will do the tests without the doctor ordering them. Like someone else said you pay the doctors therefore they are the employees – not gods.
    Reply
  100. Sandra says

    July 7, 2015 at 8:02 AM

    My Endo told me that I don’t need to deal with Hashimotoes since my thyroid has been removed!!
    Reply
    • Dr. Izabella Wentz says

      December 6, 2016 at 1:39 PM

      Sandra- Most thyroid conditions result from the immune system attacking the thyroid because the immune system is out of balance. Even when the thyroid is taken out surgically, is ‘dead’, or treated with radioactive iodine the autoimmunity still persists in most cases. Many people will have their thyroids removed, and will develop new autoimmune disorders such as Lupus, Rheumatoid arthritis, etc. The immune system just finds a different target. We need to re-balance the immune system to prevent this (sometimes the autoimmunity can be reversed as well). The gut determines your immune system. With the exception of discussing proper thyroid medication dosing, the majority of my website and my book focuses on balancing the immune system. The info I present is based on my own research and journey for overcoming my autoimmune thyroid condition.

      HASHIMOTO’S ROOT CAUSE BOOK
      http://www.amazon.com/gp/product/0615825796?ie=UTF8&camp=1789&creativeASIN=0615825796&linkCode=xm2&tag=thyroipharma-20

      Reply
  101. Gill says

    June 4, 2015 at 12:59 AM

    Hi Isabella, I have been reading many of your blogs, since being diagnosed with Hashimoto’s hyperthyroidism 3 years ago. In Australia, there is a class action against a soy company which was found administering 50 times above the legal limit of seaweed iodine in their soy milk. It is believed to have affect several hundred people, me included. Thank you for your research, information and supportive advice.
    Reply
    • Dr. Izabella Wentz says

      December 6, 2016 at 1:40 PM

      Gill- I’m very hesitant in recommending iodine in Hashimoto’s. Although iodine serves as fuel for our thyroid and is very important in iodine deficiency hypothyroidism, Hashimoto’s is a different mechanism. It’s like pouring gas into an engine that’s on fire… that’s essentially what’s happening in Hashi’s, thyroid inflammation, and adding iodine to the mix before putting out the fire and fixing the engine may result in further damage to the thyroid. In those with a predisposition to autoimmunity, this has been documented time and time again, animal and human studies. I have spent 4 years researching this and have seen too many people suffering the consequences of adding iodine too soon. My approach is, let’s fix the engine first (usually a gut issue), and then add the fuel once we know that the engine is no longer on fire. Hope that you will check out my book. I have a whole chapter on the iodine controversy that references numerous studies as well as the work of Abraham and Brownstein.

      AMAZON
      http://www.amazon.com/gp/product/0615825796?ie=UTF8&camp=1789&creativeASIN=0615825796&linkCode=xm2&tag=thyroipharma-20

      Reply
  102. Michele says

    July 1, 2015 at 12:22 PM

    i just had my tsh ran and it came back at 12.069.is these a dangerous number.i have .haso.i see my dr soon.im on meds.all i want to do is sleep,cold,hair falling out.please help
    Reply
    • Dr. Izabella Wentz says

      December 6, 2016 at 1:41 PM

      Michele- Fatigue was the most debilitating symptom I experienced with Hashimoto’s. It actually started 8 years before I was finally diagnosed in 2009, after I got Mono (Epstein-Barr Virus) in college. I needed to sleep for 12 hours each night to be able to function, and by “function” I mean after hitting the snooze button on my alarm clock for two hours (ask my poor husband), I would drag myself out of bed and then had to drink 4-6 cups of caffeine everyday to keep myself awake. I often had Red Bull and Pepsi for breakfast, and was the epitome of “wired but tired”. I hope my articles help you get started 🙂

      OVERCOMING THYROID FATIGUE
      https://thyroidpharmacist.com/articles/top-10-tips-for-overcoming-hashimotos-fatigue

      THIAMINE AND THYROID FATIGUE
      https://thyroidpharmacist.com/articles/thiamine-and-thyroid-fatigue

      Reply
  103. Angelina says

    July 25, 2015 at 2:12 PM

    Around the last 18 months I haven’t been feeling that well. I have depression and anxiety which I have had for the last five years. I have been reading lots of posts about thyroid conditions. A lot of depression symptoms are the same as thyroid conditions. My doctor tested me and it came back as borderline hyper/hypothyroid. Some days I feel as though I have woken up with an extra 5 kilos attached to me. I’m at my wits end. I had tests for menopause it said I was 150 / 600. Doc said I was no where near menopausal. I’m 48. Can you please tell me what I should ask my doctor to test for so I can get this sorted as it is making me very unhappy. I’m taking anti inflammatories because my joints hurt so much. It can be very painful. I’m comfortable with my doctor he will test if I ask. I’ve always been very conscious of my weight. I’ve always exercised in moderation now it’s just too exhausting to do. Thank you 😞
    Reply
    • Dr. Izabella Wentz says

      December 6, 2016 at 1:42 PM

      Angelina- These are the recommended labs from my book, page 32.

      RECOMMENDED THYROID FUNCTION TESTS
      TSH
      TPO Antibodies
      Thyroglobulin Antibodies
      Free T4
      Free T3
      Reverse T3 (Optional)

      Have you read my book, Hashimoto’s The Root Cause? Here’s the link in case you’re interested.

      http://www.amazon.com/gp/product/0615825796?ie=UTF8&camp=1789&creativeASIN=0615825796&linkCode=xm2&tag=thyroipharma-20
      
      HOW TO GET ACCURATE LAB TESTING WHEN TAKING MEDICATIONS
      https://thyroidpharmacist.com/articles/how-to-get-accurate-lab-tests-when-taking-thyroid-medications

      Reply
      • star says

        April 10, 2017 at 1:11 PM

        why not test all these
        TSh
        T4 and Ft4
        Ft3
        Rt3
        T3 uptake
        TPO
        TGA
        CRP
        cortisol and estrogen saliva test
        and how would you treat auto immune hashimotos ?
        would love to see the full arsenal of natural substances that adjust and modulate the immune system to normal

        Reply
        • Dr. Izabella Wentz says

          April 10, 2017 at 4:33 PM

          Star – please, understand that due to liability issues, I am unable to answer specific medical questions.

          I highly recommend that you work with a functional medicine clinician. It’s a whole medical specialty dedicated to finding and treating underlying causes and prevention of serious chronic disease rather than disease symptoms.

          FUNCTIONAL MEDICINE APPROACH TO THE THYROID
          https://thyroidpharmacist.com/articles/functional-medicine-approach-to-the-thyroid

          WHAT TYPE OF DOCTOR SHOULD YOU SEE IF YOU HAVE HASHIMOTO’S
          https://thyroidpharmacist.com/articles/what-type-of-doctor-should-you-see-if-you-have-hashimotos

          10 THINGS I WISH MY ENDOCRINOLOGIST WOULD HAVE TOLD ME
          https://thyroidpharmacist.com/articles/10-things-i-wish-my-endocrinologist-would-have-told-me

          CLINICIAN DATABASE
          http://www.thyroidpharmacistconsulting.com/clinician-database.html

          FIND A FUNCTIONAL MEDICINE CLINICIAN
          https://www.functionalmedicine.org/practitioner_search.aspx?id=117

          Reply
  104. Yvette says

    July 25, 2015 at 3:43 PM

    I found out I had chronic thyroiditis a year ago. At that time my “Thyroglobulin Autoantibody” was 204.6. It is now up to 911.6. The blood test shows that a normal range is 0.0 – 60.0 u/ml. What does this mean?
    Reply
    • Dr. Izabella Wentz says

      December 6, 2016 at 1:43 PM

      Yvette- I’m afraid I can’t comment on your lab results due to liability. I highly recommend that you work with a functional medicine clinician. It’s a whole medical specialty dedicated to finding and treating underlying causes and prevention of serious chronic disease rather than disease symptoms.

      FUNCTIONAL MEDICINE APPROACH TO THE THYROID
      https://thyroidpharmacist.com/articles/functional-medicine-approach-to-the-thyroid

      CLINICIAN DATABASE
      http://www.thyroidpharmacistconsulting.com/clinician-database.html

      FIND A FUNCTIONAL MEDICINE CLINICIAN
      https://www.functionalmedicine.org/practitioner_search.aspx?id=117

      Reply
  105. Jill says

    November 20, 2014 at 1:12 AM

    How often should someone with Hashimoto be tested to check levels? I was diagnosed a couple of years ago but nothing has been done about it. The TSH levels were normal and antibodies weren’t too high, 75 I think.For my annual physical this year she didn’t even order any bloodwork so I am looking for a new doctor in Michigan.

    Reply
    • Dr. Izabella Wentz says

      November 9, 2016 at 2:39 PM

      Jill- Testing TSH, Free T3 and Free T4 will help determine if you will need to have your dosage of medication adjusted.
      Testing TPO antibodies every 1-3 months may be helpful in determining progress from interventions. These are the recommended labs from my book, page 32.

      RECOMMENDED THYROID FUNCTION TESTS
      TSH
      TPO Antibodies
      Thyroglobulin Antibodies
      Free T4
      Free T3
      Reverse T3 (Optional)

      Have you read my book, Hashimoto’s The Root Cause? Here’s the link in case you’re interested.

      http://www.amazon.com/gp/product/0615825796?ie=UTF8&camp=1789&creativeASIN=0615825796&linkCode=xm2&tag=thyroipharma-20
      
      HOW TO GET ACCURATE LAB TESTING WHEN TAKING MEDICATIONS
      https://thyroidpharmacist.com/articles/how-to-get-accurate-lab-tests-when-taking-thyroid-medications

      Reply
  106. Sherri says

    April 15, 2015 at 5:05 AM

    Help with lab results please. Went to a new doctor for multiple symptoms including weight gain, fatigue, foggy brain, cold sensitivity, and many others. I’m a 44 year old female. She ran a TSH which came back at 2.78 (range .5 to 4.8-). I asked for further testing as research is showing anything over 2.5 is “at risk”. She refused to do further testing as TSH is “normal”. Other labs were fine with exception of Vitamin D and B12, both of which are extremely low.
    Fast forward a few days and I’ve ordered my own labs for FT4, FT3, TgAB, TPO. Results came in today but not exactly sure what they mean.
    TSH: 2.78 (.5 – 4.8-)
    FT4: 1.0 (0.8 – 1.8-)
    FT3: 3.0 (2.3 – 4.2)
    TgAB: <1 (< or = 1) TPO: 1 (<9) Any help would be appreciated. I have been started on 50,000 iu of Vitamin D weekly and B12 injections weekly.

    Reply
    • Dr. Izabella Wentz says

      November 9, 2016 at 2:34 PM

      Sherri- I’m sorry to hear that you are struggling with so many symptoms. I’m afraid I can’t comment on your lab results due to liability. I can tell you that while reference ranges of what’s “normal” may vary depending on the lab that produces the test reports, most thyroid patients feel best with a TSH between 0.5-2, and with Free T3 and Free T4 in the top half of the reference range. Fatigue was the most debilitating symptom I experienced with Hashimoto’s. It actually started 8 years before I was finally diagnosed in 2009, after I got Mono (Epstein-Barr Virus) in college. I needed to sleep for 12 hours each night to be able to function, and by “function” I mean after hitting the snooze button on my alarm clock for two hours (ask my poor husband), I would drag myself out of bed and then had to drink 4-6 cups of caffeine everyday to keep myself awake. I often had Red Bull and Pepsi for breakfast, and was the epitome of “wired but tired”. I hope my articles help you get started 🙂

      OVERCOMING THYROID FATIGUE
      https://thyroidpharmacist.com/articles/top-10-tips-for-overcoming-hashimotos-fatigue

      THIAMINE AND THYROID FATIGUE
      https://thyroidpharmacist.com/articles/thiamine-and-thyroid-fatigue

      Reply
  107. Desiree says

    December 19, 2016 at 9:03 AM

    I have had hypothyroid for about 11 years now recently started the gym and eating right but not losing weight just gaining it in my stomach! I have all the symptoms of hashimotos! I was just diagnosed with hashimotos! How do you have both issues? I have to now waiting 3 months to see a specialist! I’m scared and not sure what to think.

    Reply
    • Dr. Izabella Wentz says

      December 19, 2016 at 4:04 PM

      Desiree- When it comes to weight gain these are a couple of things to think about.

      1) What was your recent TSH, Free T3 and Free T4? Sometimes when those numbers are on the outskirts of normal, your metabolic rate may still be impaired making it more difficult for you to burn calories. Most people report feeling well with a TSH between 0.5-2.

      2) What type of medication are you on? Some report more weight loss with T4/T3 combinations (Armour, Nature-Throid, compounded medications) versus T4 medications (Synthroid, Levoxyl, Tirosint) alone. T4 is a precursor to T3, but some individuals do not convert T4 to T3 properly, and the T3 component is the metabolically active one.

      3) What type of diet are you eating? Some report more weight loss with T4/T3 combination vs T4 alone. Some do not convert T4 properly.The Standard American Diet (S.A.D.) full of sugar and simple carbohydrates is perfectly designed to cause us to gain weight year after year. Even yogurts that are marketed as “healthy” contain the equivalent of 16 teaspoons of sugar. Divorcing the S.A.D. is often a step that many of us must take to not just lose weight, but to also feel better. Some diets that have been helpful include the Body Ecology Diet, the Paleo Diet, the Virgin Diet, Autoimmune Paleo Diet, GAPS diet, SCD diet, Weston A. Price Diet, or the Mediterranean Diet. You may need to modify these diets to your own individuality.

      BEST DIET FOR HASHIMOTO’S AND HYPOTHYROIDISM
      https://thyroidpharmacist.com/articles/best-diet-for-hashimotos-hypothyroidism

      HOW TO LOSE WEIGHT WITH HASHIMOTO’S AND HYPOTHYROIDISM
      https://thyroidpharmacist.com/articles/how-to-lose-weight-with-hashimotos

      Reply
  108. David Holmes says

    January 6, 2017 at 2:56 PM

    Other than ultrasound is there a way to confirm Hashimoto’s with antibodies in range? TSH typically between 3.5 and 4.5, once at 5.5. Free T3/4 low in range.

    Thank you!

    Reply
    • Dr. Izabella Wentz says

      January 9, 2017 at 2:08 PM

      David- Most thyroid patients feel best with a TSH between 0.5-2, and with Free T3 and Free T4 in the top half of the reference range.

      Reply
  109. Anjali says

    January 13, 2017 at 9:13 AM

    Thanks so much for the information! I was one of those people who thought they hypothyroidism, but not Hashimoto’s — and it turns out I have both. One question – do you have links to any research that estimates that 95% of hypothyroid patients also have Hashi’s? I have come across skeptical doctors who I would like to pass along the research too. Thank you!

    Reply
  110. suzy root says

    February 9, 2017 at 2:20 PM

    my doctors did not test me for hashimoto’s and I have had rai. will I still be able to test for hashimoto’s now?

    Reply
    • Dr. Izabella Wentz says

      February 9, 2017 at 5:23 PM

      Suzy – please, understand that due to liability issues, I am unable to answer specific medical questions.

      I highly recommend that you work with a functional medicine clinician. It’s a whole medical specialty dedicated to finding and treating underlying causes and prevention of serious chronic disease rather than disease symptoms.

      FUNCTIONAL MEDICINE APPROACH TO THE THYROID
      https://thyroidpharmacist.com/articles/functional-medicine-approach-to-the-thyroid

      WHAT TYPE OF DOCTOR SHOULD YOU SEE IF YOU HAVE HASHIMOTO’S
      https://thyroidpharmacist.com/articles/what-type-of-doctor-should-you-see-if-you-have-hashimotos

      10 THINGS I WISH MY ENDOCRINOLOGIST WOULD HAVE TOLD ME
      https://thyroidpharmacist.com/articles/10-things-i-wish-my-endocrinologist-would-have-told-me

      CLINICIAN DATABASE
      http://www.thyroidpharmacistconsulting.com/clinician-database.html

      FIND A FUNCTIONAL MEDICINE CLINICIAN
      https://www.functionalmedicine.org/practitioner_search.aspx?id=117

      Reply
  111. Jen says

    March 1, 2017 at 5:08 PM

    Hi,
    I love the thyroid secret, thank you for putting this together.
    Two months ago I had a TSH of 9.00 Free t4 Free T3 reverse T3 all normal. No antibodies, tested twice for this. Ultrasound showed no evidence of Hashimotos, so does this mean I simply have hypothyroidism and not Hashimotos? I have had thyroid trouble since I was about 19, I am now 35. I take 125 mcg Synthroid now and TSH is in 4’s. I do have a functional medicine practitioner and an endocrinologist but I’m still confused. Thank you.
    Jen

    Reply
    • Dr. Izabella Wentz says

      March 2, 2017 at 1:44 PM

      Jen – thank you so much for following this page.

      Did you know that if you live in the United States, the UK, Australia, Europe and most developed countries that add iodine to the salt supply and take thyroid medications, there’s a higher probability that you do have Hashimoto’s?

      Depending on the source, estimates are that between 90-95% of those with hypothyroidism have Hashimoto’s.

      But most doctors will never tell people that they have Hashimoto’s, or that their own immune system is attacking their thyroid. People are told that their “thyroid is sluggish”, and that these things happen with age and “Just take this pill, you’ll be fine.” I hope you check out these articles that I wrote.

      ARE YOU DOING EVERYTHING FOR YOUR THYROID BUT NOT YET WELL?
      https://thyroidpharmacist.com/articles/are-you-doing-everything-for-your-thyroid-but-not-yet-well/

      DO YOU HAVE HYPOTHYROIDISM OR HASHIMOTO’S OR BOTH?
      https://thyroidpharmacist.com/articles/do-you-have-hypothyroidism-or-hashimotos-or-both/

      Here are the tests you need for diagnosis. Most endocrinologists don’t run them all so you will have to request them. Make sure to request a copy of your labs as well.

      TOP 6 THYROID TESTS FOR DIAGNOSIS
      https://thyroidpharmacist.com/articles/top-6-thyroid-tests/

      Reply
  112. Angela says

    March 2, 2017 at 5:42 PM

    What about people who have low thyroid hormones but do not test positive for Hashimotos?
    I have had the 6 tests you recommend (repeatedly over the last 5 years), but never have antibodies above the very low digits and my ultrasound came out negative. So I don’t seem to fit the 98% with Hashimotos. What do those of us do who have low thyroid hormones but do not have Hashimotos? How do I find out the root cause of my low Thyroid function? Should we ask for other tests? If yes, which do you recommend? Do you advise a different protocol for those of us who apparently do not have the root cause of autoimmune disease? Thank you for your time and wonderful heart full contributions!

    Reply
    • Dr. Izabella Wentz says

      March 3, 2017 at 4:17 PM

      Angela – thank you so much for following this page.

      Did you know that if you live in the United States, the UK, Australia, Europe and most developed countries that add iodine to the salt supply and take thyroid medications, there’s a higher probability that you do have Hashimoto’s?

      Depending on the source, estimates are that between 90-95% of those with hypothyroidism have Hashimoto’s.

      But most doctors will never tell people that they have Hashimoto’s, or that their own immune system is attacking their thyroid. People are told that their “thyroid is sluggish”, and that these things happen with age and “Just take this pill, you’ll be fine.” I hope you check out these articles that I wrote.

      ARE YOU DOING EVERYTHING FOR YOUR THYROID BUT NOT YET WELL?
      https://thyroidpharmacist.com/articles/are-you-doing-everything-for-your-thyroid-but-not-yet-well/

      DO YOU HAVE HYPOTHYROIDISM OR HASHIMOTO’S OR BOTH?
      https://thyroidpharmacist.com/articles/do-you-have-hypothyroidism-or-hashimotos-or-both/

      Here are the tests you need for diagnosis. Most endocrinologists don’t run them all so you will have to request them. Make sure to request a copy of your labs as well.

      TOP 6 THYROID TESTS FOR DIAGNOSIS
      https://thyroidpharmacist.com/articles/top-6-thyroid-tests/

      Reply
  113. LK says

    April 5, 2017 at 7:03 AM

    I tested my thyroid for the first time few years ago (I’m now 44), had no symptoms, just decided it was time to include it in my yearly check-up. My TSH came back 3.9 (normal range for the specific lab was up to 4.2), T4 was 17.3 (normal range 11-22). The borderline TSH did not bother my Dr too much, but I was worried so he recommended the antibody test which came back elevated. I had no obvious nodules, but still need to perform a thyroid ultrasound… A year later my TSH was a bit lower (2.6) and T4 was around 16. My lipid profiles have always been normal (total cholesterol around 200, HDL 73, triglycerides 45), as well as all other routine lab tests. I was not given any treatment as at the moment as I feel that I have no symptoms, but I was told by the Dr that one day I will definitely develop hypothyroidism (my mother was diagnosed with hypothyroidism at 65) and will need to take the pill for life. This is terrifying for me, as I have never taken any medicine other than a few paracetamol tablets and maybe a little antibiotic in my childhood and I was lucky enough to be able to eat everything without weight gain and no need to sweat in the gym! I fear that this diagnosis will seriously alter my quality of life, so I would like to know if there is anything I can do to prevent or at least postpone hypothyroidism symptoms. Thanks!

    Reply
    • Dr. Izabella Wentz says

      April 5, 2017 at 11:27 AM

      LK – thank you for following this page. Please, understand that due to liability issues, I am unable to answer specific medical questions.

      Hashimoto’s is a complicated condition with many layers that need to be unraveled. While conventional medicine only looks at each body system as a separate category and is only concerned with the thyroid’s ability to produce thyroid hormone, Hashimoto’s is more than just hypothyroidism. I wanted to pass along these articles that I wrote. I hope they help 🙂

      WHERE DO I START WITH HASHIMOTO’S
      https://thyroidpharmacist.com/articles/where-do-i-start-with-hashimotos/

      OVERCOMING HASHIMOTO’S
      https://thyroidpharmacist.com/articles/overcoming-hashimotos-in-the-new-year

      Reply
  114. Aimee says

    April 13, 2017 at 6:44 AM

    I am on this diagnostic journey right now. Going for my antibodies labs tomorrow, which I ordered myself after my doc said TSH and freeT4 were normal (TSH 2.05 Free t4 1.05). But I know something is off. My WBC was high also (14.9). Just sick and tired of feeling foggy and tired all the time! Have always been a healthy and active person. Thank God for awesome sites and information from people like you! I am going to pick up your new book today. I think Hashimoto’s is what I have. My mom and aunt are both hypo. Hoping to do all I can myself to find root cause and fix what I can if I am unable to get a physician’s help!

    Reply
    • Dr. Izabella Wentz says

      April 13, 2017 at 11:30 AM

      Aimee – thank you for following this page and for the support. 🙂

      I strongly encourage you to keep looking until you find a skilled practitioner who can help you with Hashimoto’s, they are out there. Here is an article I wrote about my challenges finding Dr. Right.

      MY RECENT CHALLENGES AND FINDING DR. RIGHT
      https://thyroidpharmacist.com/articles/my-challenges-and-finding-dr-right

      Reply
  115. Muriel Hykes says

    April 30, 2017 at 6:17 PM

    Women who have CVID are very likely to get subacute thyroiditis and later, Hashimotos. We don’t make antibodies but suffer the same symptoms. I keep mine under control by balancing selenium with iodine.

    Reply
    • Dr. Izabella Wentz says

      May 1, 2017 at 11:53 AM

      Muriel – thank you for following this page and for sharing.

      I’m very hesitant in recommending iodine in Hashimoto’s. Although iodine serves as fuel for our thyroid and is very important in iodine deficiency hypothyroidism, Hashimoto’s is a different mechanism. It’s like pouring gas into an engine that’s on fire… that’s essentially what’s happening in Hashi’s, thyroid inflammation, and adding iodine to the mix before putting out the fire and fixing the engine may result in further damage to the thyroid. In those with a predisposition to autoimmunity, this has been documented time and time again, animal and human studies. I have spent 4 years researching this and have seen too many people suffering the consequences of adding iodine too soon. My approach is, let’s fix the engine first (usually a gut issue), and then add the fuel once we know that the engine is no longer on fire. Hope that you will check out my book. I have an entire chapter on the iodine controversy that references numerous studies as well as the work of Abraham and Brownstein.

      AMAZON
      Hashimoto’s Root Cause
      http://www.amazon.com/gp/product/0615825796?ie=UTF8&camp=1789&creativeASIN=0615825796&linkCode=xm2&tag=thyroipharma-20

      Hashimoto’s Protocol
      thyroidpharmacist.com/protocol

      Reply
  116. amanda says

    May 11, 2017 at 2:22 PM

    I was diagnosed with subclinical hypothyroid with a TSH of 2.2. (previous years it was in the 1.3 range) My Free T3 and T4 are ok and My TPO and TA are also in ok ranges. My DHEA levels though are high, I was at a 526 last year but this year it jumped to a 830. I really want to try and change my body and life with my diet rather then taking a pill that is not natural. I would really appreciate any tips and advice you have for me. I have fought for years to figure this out and I am a little worried that I still don’t know the issue. I follow you Izabelle and Aviva Romm, I have done tons of research but I know I don’t know it all and I really would like your info. Thank you for all you have done and how you are changing the world.

    its wierd b/c my symptoms come and go, but fatigue, cold when others aren’t, pain in my joints is huge, acne (which I never even had as a teen), heavy periods with clots lasting 7-10 days and my cycle was never like this before my last pregnancy.

    Again thank you for anything you can direct me to, I am ordering your book as well. 😀

    Reply
    • Dr. Izabella Wentz says

      May 12, 2017 at 9:53 AM

      Amanda – thank you for following this page. I’m sorry to hear that you are struggling! 🙁

      I highly recommend that you work with a functional medicine clinician. It’s an entire medical specialty dedicated to finding and treating underlying causes and prevention of serious chronic disease rather than disease symptoms.

      FUNCTIONAL MEDICINE APPROACH TO THE THYROID
      https://thyroidpharmacist.com/articles/functional-medicine-approach-to-the-thyroid

      CLINICIAN DATABASE
      http://www.thyroidpharmacistconsulting.com/clinician-database.html

      FIND A FUNCTIONAL MEDICINE CLINICIAN
      https://www.functionalmedicine.org/practitioner_search.aspx?id=117

      Reply
  117. Brandy says

    May 18, 2017 at 9:15 AM

    If I’m already taking Levothyroxine, can I still be tested for hashimotos? Will the test be accurate?

    Reply
    • Dr. Izabella Wentz says

      May 18, 2017 at 10:16 AM

      Brandy – thank you for following this page. Did you know that if you live in the United States, Australia, Europe and most developed countries that add iodine to the salt supply and take thyroid medications, there’s a higher probability that you do have Hashimoto’s?

      Depending on the source, estimates are that between 90-95% of those with hypothyroidism have Hashimoto’s.

      But most doctors will never tell people that they have Hashimoto’s, or that their own immune system is attacking their thyroid. People are told that their “thyroid is sluggish,” and that these things happen with age and “Just take this pill, you’ll be fine.” I hope you check out these articles that I wrote.

      ARE YOU DOING EVERYTHING FOR YOUR THYROID BUT NOT YET WELL?
      https://thyroidpharmacist.com/articles/are-you-doing-everything-for-your-thyroid-but-not-yet-well/

      DO YOU HAVE HYPOTHYROIDISM OR HASHIMOTO’S OR BOTH?
      https://thyroidpharmacist.com/articles/do-you-have-hypothyroidism-or-hashimotos-or-both/

      Here are the tests you need for diagnosis. Most endocrinologists don’t run them all, so you will have to request them. Make sure to request a copy of your labs as well.

      TOP 6 THYROID TESTS FOR DIAGNOSIS
      https://thyroidpharmacist.com/articles/top-6-thyroid-tests/

      Reply
  118. Julia says

    July 25, 2017 at 1:21 PM

    Hi Dr. Isabella –
    I have hypothyroidism but my antibody levels are in the low-normal range, and I do not have hashimoto’s. Is there a different protocol to treating non-hashimoto’s hypothyroidism? It’s frustrating to see that there is very little information online about non-hashimoto’s hypothyroidism and how to take care of it.
    Note: I think it may have occurred after having played soccer for 14 years, and having the ball hit my neck multiple times throughout my history of playing.

    Oh, and one more question – I’m on synthroid and have read a side-effect of this specific medication can cause progressive hair loss, which has definitely been the case for me. Is there another medication you would recommend that would not have this side-effect?

    Thank you so much for sharing your knowledge and helping all of us out there!
    – Julia

    Reply
    • Dr. Izabella says

      July 26, 2017 at 12:54 PM

      Julia – thank you for following this page. If you live in the United States, the UK, Australia, Europe and most developed countries that add iodine to the salt supply and take thyroid medications, there’s a high probability that you do have Hashimoto’s. Depending on the source, estimates are that between 90-95% of those with hypothyroidism have Hashimoto’s.But most doctors will never tell people that they have Hashimoto’s, or that their immune system is attacking their thyroid. People are told that their “thyroid is sluggish,” and that these things happen with age and “Just take this pill, you’ll be fine.” A large percentage of the population is simply going undiagnosed.

      People with Hashimoto’s may experience BOTH hypothyroid and hyperthyroid symptoms because as the thyroid cells are destroyed, stored hormones are released into the circulation, causing a toxic level of thyroid hormone in the body, also known as Thyrotoxicosis or Hashitoxicosis.

      Eventually, the stored thyroid may become depleted; and due to thyroid cell damage, the person is no longer able to produce enough hormones. At this time, hypothyroidism develops.

      I’d like to pass along these articles that I wrote.

      ARE YOU DOING EVERYTHING FOR YOUR THYROID BUT NOT YET WELL?

      DO YOU HAVE HYPOTHYROIDISM OR HASHIMOTO’S OR BOTH?

      THE MANY FACES OF HASHIMOTO’S

      Reply
  119. Trish says

    September 15, 2017 at 5:22 PM

    I want to see a reputable FMD. Before I continue my per suit I want your professional opinion. I was diagnosed in 1993 while stationed in Germany and have been on high and usual doses of levothyroxine, now at 100 mcg. Ever since I have been on it I have had episodic SVT and various meds to control it. Now it’s verapamil BID. I have begged my many Drs seen to let me try T3 but they won’t. Since I weaned myself down to 100 mcg levo I have not had any more breakthrough SVT and Drs don’t correlate that!!! Rrrrrrrrr my PC said I can’t have T3 as there is no proof it works and it would only throw me in SVT! I am following your diet protocols for most part from the books and supplements, exercise etc and Fight to lose wgt with severe fatigue muscle and joint pain etc. Do you think T3 is too risky in general with hx SVT controlled with verapamil? I’m also a nurse so research as much as I can, but tend to follow your comments and books the most. Trish

    Reply
    • Dr. Izabella says

      September 16, 2017 at 2:50 PM

      Trish – thank you so much for following this page. There are quite a few options for thyroid medications. In my experience, what works for one person may not work for another. If your doctor will not prescribe the medication which you are looking for, ask your local pharmacist for doctors in your area who prescribe the medication you are looking to try. Also, If you have been prescribed thyroid replacement hormone but your thyroid levels are still not optimal and your doctor is convinced that Synthroid® (which is a T4 only hormone replacement) is the only replacement that you should try, remember, information is power! In order to self-advocate, it’s important to understand the ins and outs of thyroid medications. There are many reasons why your thyroid levels might not be optimal and my Optimizing Thyroid Medications eBook will give you those answers as well as give you a full explanation of the different options that are available to you! I want you to be empowered, so I’m giving this eBook away as a FREE download this week! Download it for FREE Optimizing Thyroid Medications eBook!
      This book will help you understand your thyroid lab results and how to optimize your thyroid hormones!!
      https://thyroidpharmacist.com/checkout/?product_id=4702

      Have you read these articles?

      WHICH THYROID MEDICATION IS BEST?
      https://thyroidpharmacist.com/articles/which-thyroid-medication-is-best/

      TOP 11 THINGS YOU NEED TO KNOW ABOUT THYROID MEDICATIONS
      https://thyroidpharmacist.com/articles/top-11-things-you-need-to-know-about-thyroid-medications/

      HOW THE DOSE OF YOUR THYROID MEDICATION CAN UNCOVER YOUR ROOT CAUSE
      https://thyroidpharmacist.com/articles/the-dose-of-your-thyroid-medication-can-uncover-your-root-cause/

      HOW TO GET ACCURATE LAB TESTING WHEN TAKING MEDICATIONS
      https://thyroidpharmacist.com/articles/how-to-get-accurate-lab-tests-when-taking-thyroid-medications/

      Reply
  120. Amy Brummond says

    October 26, 2017 at 6:58 AM

    Hello~I was diagnosed with hypothyroidism when I was 20 years old. I am now 45. For the longest time I was on 200 mcg of thyroid hormone replacement. I am now on 150mcg. I was never told that I have Hashimoto’s, but I am starting to wonder. I have only been tested for TSH and T4 most recently, and those results were “normal”. My question is–if I want to get the thyroid panel done to see if I do indeed have Hashimoto’s disease–will I need to go off of my levothyroxin for 2 weeks to get an accurate reading? I once saw an endocrinologist and they recommended something like that, but I never followed through at the time. Thanks for any guidance you can provide.

    Reply
    • Dr. Izabella says

      October 27, 2017 at 11:46 AM

      Amy – thank you for reaching out. If you are taking a T4 only medication, you can go ahead and take your medication in the morning before the test. T4 medication has a long half-life, and your levels will be stable regardless of when you take it. If you take a T3 medication on the other hand, or a combination of T3/T4, T3 has a shorter half-life so your blood work may not be reflected accurately. It will appear that you have more thyroid hormone on board than you do. Thus it may be helpful to delay your morning dose of a T3/T4 medication until after you do the test to see (try to schedule the test in the morning). Here are some articles you might find helpful.

      HOW TO GET ACCURATE LAB TESTING WHEN TAKING MEDICATIONS
      https://thyroidpharmacist.com/articles/how-to-get-accurate-lab-tests-when-taking-thyroid-medications/

      TOP 11 THINGS YOU NEED TO KNOW ABOUT THYROID MEDICATIONS
      https://thyroidpharmacist.com/articles/top-11-things-you-need-to-know-about-thyroid-medications/

      HOW THE DOSE OF YOUR THYROID MEDICATION CAN UNCOVER YOUR ROOT CAUSE
      https://thyroidpharmacist.com/articles/the-dose-of-your-thyroid-medication-can-uncover-your-root-cause/

      Reply
  121. Ashley Curtis says

    February 12, 2018 at 1:05 PM

    Hey thank you for your article, I’ve been diagnosed with hypothyroidism 6 or 7 years ago, I’m 26 now and I’ve never been tested or even told about hashimoto’s or the type hypothyroidism I have. I’ve looked up some symptoms I’ve been experiencing lately and I have many symptoms relating to hyperthyroidism which seemed strange until reading what you wrote concerning the thyroid antibodies in hashimoto’s. Also I’ve been getting chronic infections (severe) and just really sick I’m wondering if I might have an autoimmune disease (or more than one.) thanks again!

    Reply
    • Dr. Izabella says

      February 12, 2018 at 3:51 PM

      Ashley – thank you for reaching out. Graves and Hashimoto’s are both autoimmune conditions that affect the thyroid. They are thought to be closely related. Sometimes one turns into the other. The difference is the site of the antibody attack. In Hashimoto’s, the antibodies are found to thyroglobulin (in 80%) and thyroid peroxidase (TPO) enzyme (in 95% of people)-Hashimoto’s results in hypothyroidism and is usually treated with Synthroid and replacement hormone.

      The same antibodies may be present in a smaller percentage of people who have Graves, but the main antibody is to the TSH Receptor (TSHR-Ab). Usually, people with Graves have hyperthyroidism, and they are treated conventionally with thyroid suppressing drugs (methimazole) or radioactive iodine to destroy the thyroid. At that point, the thyroid will no longer produce hormones on its own, and these people end up on Synthroid as well.

      Most thyroid conditions result from the immune system attacking the thyroid because the immune system is out of balance. Even when the thyroid is taken out surgically or treated with radioactive iodine the autoimmunity still persists in most cases. Many people will have their thyroids removed, and will develop new autoimmune disorders such as Lupus, Rheumatoid arthritis, etc. The immune system just finds a different target.

      We need to rebalance the immune system to prevent this (sometimes the autoimmunity can be reversed as well! The gut determines your immune system. With the exception of discussing proper thyroid medication dosing, the majority of my website and my book focuses on balancing the immune system. The info I present is based on my own research and journey for overcoming my autoimmune thyroid condition. Here are the links to my books:

      Hashimoto’s Root Cause
      http://amzn.to/2DoeC80

      Hashimoto’s Protocol
      http://amzn.to/2B5J1mq

      Reply
  122. Erin says

    February 22, 2018 at 7:15 AM

    Thanks for all of your information! I was diagnosed with hypothyroidism first and then Hashimoto’s after having my first child. My first TPO test was 351. I was put on medication (synthroid) and then 4 months later, my TPO was down to 75. That was in 2012. In 2014, my TPO was down to 11. In 2016 it was down to an 8. I asked my endo to test it again for me and he won’t do it again because he says it doesn’t matter since I already have been diagnosed with Hashi’s. So my question is, do I still have Hashimoto’s if my TPO are below the range? I still take Synthroid at 112mcg. Thank you for your time.

    Reply
    • Dr. Izabella says

      February 22, 2018 at 12:11 PM

      Erin – – Thank you for following this page. Everyone’s healing journey is different and some may take longer than others. It took me 3 years to get to remission. One of the main markers of Hashimoto’s is reducing antibodies. IgG subclass antibodies have a half-life of 21 days, and stick around on immune cells for about two to three months. They need constant “reminders” in the form of an antigen so that their production continues. If the antigen is removed, the antibodies will go away as well. The time period required for them to completely forget about the antigen and disappear is nine to twelve months.

      The following things need to be in place for the antibodies to forget about the thyroid:

      1) The thyroid stops expressing TPO.
      2) The thyroid cells are not damaged and able to regenerate.
      3) There are no substances that look like TPO (glandulars, gluten, infections, other triggers).
      4) The immune system is balanced.
      5) The autoimmune cells are confused by a decoy.

      Some of these requirements are quick and easy, and others will take some time …

      The thyroid will stop expressing TPO for two reasons. One of them is thyroid destruction, which we do not want; the other is thyroid suppression. Thyroid suppression is induced by limiting iodine and taking a thyroid supplement to bring TSH to 1 mIU/L or so. This can take up to three months

      In the case of autoimmune conditions, traditional and alternative medicine practitioners may focus on rebalancing the immune system (i.e. steroids and immune-modulating drugs used in traditional medicine; herbs, supplements, or acupuncture used in alternative medicine).

      While this approach may be helpful for taming the immune system in the short term or overcoming autoimmune flares, it is often a temporary solution and the immune system may become imbalanced again once the medications, acupuncture, and herbs and supplements are stopped if the underlying issue that lead to the immune system imbalance is not addressed. Thus we can say that immune modulation treats only the symptoms, and not the root cause.

      As we can’t change genes, our approach to addressing the root cause of Hashimoto’s is threefold:

      1) Reducing triggers
      2) Eliminating intestinal permeability
      3) Providing the body with nutrients to regenerate

      Identifying and eliminating triggers and toxins will likely take a few weeks to a few months. Providing the thyroid with the nutrition needed to help rebuild and detoxify will likely take three to six months.

      Rebalancing the immune system by addressing the root cause of autoimmunity (intestinal permeability, gut dysbiosis, infections) may take one to three years, but in the meantime, we can modulate the immune system and throw our thyroid antibodies a decoy.

      Hope this helps!

      Reply
  123. Sara says

    April 28, 2018 at 7:00 PM

    I was diagnosed with Hypothyroidism almost 4 yrs ago, finally was just told when I asked that it is Hasimotos. I’ve been on levothyroxine the whole time with about 7 dosage changes over the years because my levels won’t even out and through all of this time I have not felt any better even one day. I deal with lightheaded/dizziness everyday to the point where I almost feel like I will pass out but both my PCP and my Endo don’t seem to think it has anything to do with my thyroid although many other tests have been done to no results. Could it be my thyroid causing this issue?

    Reply
    • Dr. Izabella says

      April 30, 2018 at 12:49 PM

      Sara – thank you for reaching out. Vertigo or dizziness can be common symptoms seen in people with thyroid disease. In one research study, 52% of Hashimoto’s patients showedan alteration of Vestibular function, which can affect balance and lead to vertigo and nausea. Getting your thyroid antibodies down will, of course, help vertigo, but in the meantime, I wanted to share a new advancement with you:

      https://denver.cbslocal.com/2012/04/23/colorado-doctor-finds-way-to-treat-common-vertigo/

      Here are some article you might find helpful as well:

      ANTIBODIES PART 1
      https://thyroidpharmacist.com/articles/hashimotos-and-thyroid-antibodies/

      ANTIBODIES PART 2
      https://thyroidpharmacist.com/articles/part-2-mechanisms-reduce-thyroid-antibodies/

      Reply
  124. Shannon Huffman says

    August 13, 2018 at 8:29 AM

    Please help …My most recent blood test came back with high TSH of 4.31 ml U/L And very high TGAB of 166 IU/ml.. My TPEX/TO is high/normal range of 32 IU/mL. My T4 is 85nmol/L and FREE T4 is 14.20 pmo and FREE T3 is 4.40 pmol/L..What do these results mean Is it just hypothyroidism or Hashimotos or Graves disease And should I take iodine with selenium OR only take selenium?

    Reply
    • Dr. Izabella says

      August 15, 2018 at 12:00 PM

      Shannon – thank you so much for sharing. Most people feel best with a TSH of around 1 or lower and with a Free T4 and Free T3 in the upper half of the range. It is expected that your TSH will be very suppressed when optimal on NDT medication. How much thyroid replacement therapy is needed is unique and different for each person, so it’s important to work with a functional medicine practitioner or a doctor, who can closely monitor your dosage and your progress. Every six weeks is usually a good schedule for testing your thyroid hormones. Here is a research article which might help further:

      TOP 10 THYROID TESTS FOR DIAGNOSIS
      https://thyroidpharmacist.com/articles/top-6-thyroid-tests/

      You might also find these articles helpful as well.

      Iodine
      https://thyroidpharmacist.com/articles/iodine-hashimotos/

      Selenium
      https://thyroidpharmacist.com/articles/nutrient-depletions-in-hashimotos-part-i-selenium/

      Reply
  125. Laurel Jefferson says

    August 16, 2018 at 11:17 AM

    Hi there, so I’ve got to share my story and ask your opinion after reading all of this.
    I was first diagnosed with hypothyroidism my freshman year of high school, after a year and a half of my doctor not being able to explain why I always felt “sick” but couldn’t say what felt bad ( because I was just tired/sluggish/depressed/and was gaining weight).
    From that point forward and switching between doctors as I changed locations, I was taking levothyroxine off and on as my thyroid function fluctuated to where I needed the supplement or not, according to whichever doctor I saw at the time.
    Today I am 23 years old with a 2 1/2 year old.
    Fast forward to me having a medical emergancy about a year an a half ago after not taking the supplement for about two years, I found that my tsh was slightly elevated again. I started taking the supplement again but when tested again, my thyroid function was actually worse than before so I was sent to an endocrinologist.
    She is not the warmest person in the world so I’ve never questioned anything she said, however after all of this, I have never been tested for Hashimoto’s. What is the likelihood that I am dealing with that as well? My T4 was in normal range and my tsh is now as well, but it took a dosage change of my normal 25mg to 100mg this time.
    Any insight would be much appreciated, I don’t have great insurance so my dr options are extremely limited and I don’t know how to talk to this dr about this being a possibility because I feel like she will just shoot me down.

    Reply
    • Dr. Izabella says

      August 21, 2018 at 2:14 PM

      Laurel – thank you so much for sharing your journey with me. <3 I am so sorry you are struggling with this. I understand how frustrating it can be. This is why I highly recommend that you work with a functional medicine clinician to be a part of your own health care team. It’s an entire medical specialty dedicated to finding and treating underlying root causes and prevent serious chronic disease rather than treating individual disease symptoms. I believe that everyone needs to find a practitioner that will let him/her be a part of the healthcare team. You want someone that can guide you, that will also listen to you and your concerns. You want someone that’s open to thinking outside of the box and who understands that you may not fit in with the standard of care. It's a good idea to ask some standard questions when contacting a new doctor for the first time. Something else to consider is you can work with a functional doctor remotely, via Skype. You could also contact your local pharmacist or compounding pharmacy, who may be able to point you to a local doctor who has a natural functional approach. But I encourage you to keep looking for the right one for you! Here are some resources you might find helpful.
      CLINICIAN DATABASE
      https://www.thyroidpharmacistconsulting.com/pages/clinician-database

      FIND A FUNCTIONAL MEDICINE CLINICIAN
      https://ifm.org/find-a-practitioner/

      http://www.thyroidpharmacistconsulting.com/recommended-compounding-pharmacies.html

      Reply
  126. Sarah Conklin says

    February 5, 2019 at 3:02 AM

    I am just learning about Hashimoto’s (as in like 5 minutes ago). I’ve been diagnosed with hypo and have been on medication since I was 12 or 13. I’m 37 now. I have blood work every 6 months or so to check thyroid levels, but they are likely the most mainstream tests. What would I specifically ask my PCP to order? And would that change my treatment?

    Reply
    • Dr. Izabella says

      February 5, 2019 at 8:31 AM

      Sarah – thank you for reaching out and sharing! <3 Here are the tests you need for diagnosis:

      ¨ TSH
      ¨ TPO Antibodies
      ¨ Thyroglobulin Antibodies
      ¨ Free T4
      ¨ Free T3
      ¨ Reverse T3 (optional)
      ¨ Thyroid Ultrasound (optional)

      Here is a research article which might help further:
      TOP 10 THYROID TESTS FOR DIAGNOSIS
      https://thyroidpharmacist.com/articles/top-6-thyroid-tests/

      Reply
  127. Rob says

    March 5, 2019 at 6:06 PM

    Hello,
    I was wondering if I should ask for any additional testing? I was just diagnosed with hypothyroidism and told they tested for autoimmune causes and that they were all negative including hashimotos.
    My Primary was surprised my TSH was elevated since I’ve been having intermittent fevers and intermittent tachacardyia cardiologist is looking into. I’m also only 34.
    Thanks

    Reply
    • Dr. Izabella Wentz says

      March 9, 2019 at 12:59 PM

      Rob – thank you for reaching out. I do recommend starting off with these thyroid function tests:
      ¨ TSH
      ¨ TPO Antibodies
      ¨ Thyroglobulin Antibodies
      ¨ Free T4
      ¨ Free T3
      ¨ Reverse T3 (optional)
      ¨ Thyroid Ultrasound (optional)

      Here is a research article which might help further:
      TOP 10 THYROID TESTS FOR DIAGNOSIS
      https://thyroidpharmacist.com/articles/top-6-thyroid-tests/

      Reply

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Lifestyle changes can result in improved thyroid function and/or an increased absorption of thyroid hormone medications, leading to a lower required dose and possible symptoms of hyperthyroidism at a dose that was previously stable. Please discuss lifestyle changes with your physician and ensure that your thyroid function is monitored every 6-8 weeks while making lifestyle changes. Symptoms of overmedication include, but are not limited to: rapid or irregular heartbeat, nervousness, irritability or mood swings, muscle weakness or tremors, diarrhea, menstrual irregularities, hair loss, weight loss, insomnia, chest pain, and excessive sweating. Do not start, change, increase, decrease or discontinue your medications without consulting with your physician.


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